Friday, September 13, 2024
Tonight's picture was taken in August of 2009. By that point in time, we knew that Mattie's condition was terminal. Mattie was in the child life playroom and surrounded by lots of people. They were all there to try to distract and engage him. You can see his art therapists kneeling down on either side of him, and the woman in black was Liz. Liz was a poet and came in many times throughout Mattie's journey and worked with the children on creating compositions. She captured many of Mattie's quips and reflections while sitting there. As I told these women countless times..... all the items Mattie created with them over 14 months became part of his legacy.
Quote of the day: The train blows, just when I was forgetting. Forgetting that I am here alone. And I wonder if those cars got held up by its passing, just as I have yours. ~ Kellie Elmore
I am so thankful that the weather is warm! Because I have the windows open and I am trying to air out the house. I am working hard on the spread of germs, but it is an uphill battle, especially when I have a patient who constantly takes off his mask. Especially while coughing. The beauty of dementia!
For the most part, my dad has spent the day resting in his recliner. He has been able to eat light meals, but it exhausted, has a cough, and this evening his fever has returned. Of course, I am trying to balance his care and keeping my mom healthy!
It is hard psychologically to be tied down to the house. Not to be able to freely get about! It only adds to my sadness and angst. When someone in my home gets sick, I typically make a big batch of homemade chicken soup. I started the process this morning and this is the final product. It keeps me moving, which is necessary, because sitting still only causes me to feel awful, dwell on my miserable existence, and analyze what has happened to my life.
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