Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

May 14, 2022

Saturday, May 14, 2022

Saturday, May 14, 2022

Tonight's picture was taken in May of 2006. Mattie was four years old and that day, Peter and Mattie went out to purchase his first bicycle. Mattie was SUPER excited. He loved the commons area of our townhouse in Washington, DC and it was in this space that Mattie learned the art of walking, biking, and flying a kite. 



Quote of the day: Life's under no obligation to give us what we expect. ~ Margaret Mitchell


I am not sure what to say about today, other than it was a day I don't wish repeated. I think we have the usual stressors and then add the Walk to the mix. Needless to say, for me it is like the perfect storm. I also think I am down right tired, so YES I may not be as kind and patient as I once may have been. In fact, I would say caregiving changes one's personality. Or at least it does mine. When you have no time to rest, focus on yourself for a minute, it is hard not to want to lash out and fly off the handle. 

Tomorrow the Foundation will be hosting its 13th annual walk, virtually. I have mixed emotions about doing anything virtually. Yet I am quite aware of the simple fact that given all I am balancing there is NO WAY on earth I could handle a live event right now. I have a core group of volunteers who have truly tried to help raise funds for the Foundation. We are at 82% of goal, and I am hoping we raise more money tomorrow. 


In any case, we welcome all of our supporters to snap a photo of themselves with our "Mattie Miracle is shining here" logo and send it to us or post it to social media (use the #MMCFWALK). Much thanks to all of our supporters who make the Mattie Miracles possible. 



May 13, 2022

Friday, May 13, 2022

Friday, May 13, 2022

Tonight's picture was taken in April of 2006. Mattie was smiling next to his dinosaur themed birthday cake. That year we had Mattie's 4th birthday party at the the Riverbend Nature Center. Based on the advice we received from Mattie's preschool, we invited a handful of friends. The children had a wonderful time on a nature walk, meeting a naturalist who gave the children a hands-on learning experience with several local animal species, along with a mock excavation in a sandbox for plastic dinosaur bones. Don't you just love that smile?!


Quote of the day: Although the days are busy and the workload is always growing, there are still those special moments when someone says or does something and you know you’ve made a difference in someone’s life. ~ Diane McKenty


Last night was an interesting dinner. I have had issues with this particular couple who are friends with my mom. In 2019, one of them said to me that I need to give up my Foundation work and do something more productive. This comment was said to me minutes after our 10th anniversary Walk, which they attended. Needless to say, you can imagine I was less than pleased to hear this and did push back. In fact, from that moment on, I have kept my distance from them. But last night they were in my house. I am juggling a ton on any given day. In addition to what I am juggling, I had to grocery shop, cook, serve and clean up last night's dinner. There was very little appreciation for this effort. In fact, I was even asked.... what do I do? How do I spend my days? HONESTLY!

Literally my response was mature, but if you have to ask me, then you have NO UNDERSTANDING or insight into my day to day life. I responded that I was a full time caregiver as well as run the Foundation. I leave it at that, I think you get the picture. 

Today my dad went to his memory care center and for four hours, I worked non-stop of Foundation things. The time went so quickly! My dad says going to the center is boring, but I remind him, it is far more stimulating than sleeping the day away. He couldn't argue with that logic.

After I picked my dad up, I took my parents out for a late lunch. While at lunch, as usual my dad ate too fast. When he does this, the food literally backs up into his esophagus. He then starts to hiccup and it goes down hill from there. After the food was finally processed and went down, he immediately had to go to the bathroom. In mid bite, I have to stop what I was doing and it feels like a national crisis. I have to mobilize forces and get him to the bathroom ASAP. Literally he can be very stressful as he will start shouting.... move quickly. The restaurant is so used to us, that they make me feel normal. After the ordeal in the bathroom, I then had to come back to the table and finish eating. I assure you, this isn't for the meek, as most people would we sworn off food after the bathroom show. While resuming to eat, my dad out of no where thanked me for taking and helping him. He maybe out of it most times, but he is still in there. 

When I got home, my friend Carolyn surprised me with these treats. In fact for 13 years, Carolyn has always given me a treat and flowers before a Foundation Walk. Her tradition and kindness mean a lot to me. 

Aren't these cuties..... with little sunshine rings!
The perfect Mattie Miracle rose! 



May 12, 2022

Thursday, May 12, 2022

Thursday, May 12, 2022

Tonight's picture was taken in April of 2004. Mattie was two years old and as you can see he was examining what was in Peter's hand. We were at a pond with fish, and we purchased fish food. Mattie was suspect of the food. For the most part, Mattie left the feeding of fish up to Peter and me. However, Mattie was a keen observer and watched eagerly to see how the fish would respond. 


Quote of the day: In life, you can never be too kind or too fair; everyone you meet is carrying a heavy load. When you go through your day expressing kindness and courtesy to all you meet, you leave behind a feeling of warmth and good cheer, and you help alleviate the burdens everyone is struggling with. ~ Brian Tracy


In addition to my usual chaos, I also planned a dinner party for my parents, as their friends drove from New York today to visit. You should have seen me juggling things today, I looked manic and frenetic. 
What's on the menu.... string beans with mint and lemon zest. 
Pecan crusted halibut. Which still needs to be cooked. 
Honey and ginger carrots. An easy and delicious recipe. 
Tomato/basil soup. Also easy and equally delicious. 
Corn with tomatoes and basil! Yes I love basil, if you couldn't figure this out. 
Fruit salsa (pineapple, watermelon, and mango) with cilantro to accompany the fish. 

I posted my blueberry pie last night, which is tonight's dessert. In my opinion, no meal is complete without something sweet. 


May 11, 2022

Wednesday, May 11, 2022

Wednesday, May 11, 2022

Tonight's picture was taken in April of 2006. Mattie was four years old and that day we took Mattie out for Easter brunch. Overall Mattie wasn't as wild about food as I am, yet we always had our bag of activity tricks in tow and of course French fries also were good motivators!



Quote of the day: Offering care means being a companion, not a superior. It doesn’t matter whether the person we are caring for is experiencing cancer, the flu, dementia, or grief. If you are a doctor or surgeon, your expertise and knowledge comes from a superior position. But when our role is to be providers of care, we should be there as equals. ~ Judy Cornish


This morning, my dad had a follow up doctor's appointment at the hospital. This doctor runs the acute rehab department, where my dad spent a week recovering from his pacemaker surgery. I feel it is important to keep a relationship with this doctor, especially given the fact that any hospitalization will be problematic for my dad and he will need the time rehabbing. I pulled it off once getting my dad into rehab, but having connections moving forward I think is crucial. 

My mom has friends coming over tomorrow night for dinner. Not the best timing for me, as I am desperately trying to juggle our virtual walk on Sunday. In any case, because one of our visitors only eats fish, I decided to buy fresh fish today. So literally after the hospital visit, I went to Whole Foods. I left my dad in the car for a few minutes. I thought going to Whole Foods would be a good idea! It wasn't. I had the WORST experience ever. I was totally ignored at the fish counter. The person who eventually worked with me was surly and completely incompetent. I also landed up not getting the fish I wanted and had to spend more than I was planning on. Try $131 for fish! In my opinion that is ridiculous. I only wanted 3.5 pounds of fish, but the person sold me 4.5 pounds. Honestly because my dad was in the car, I just dealt with it. But when I got to the check counter and put the fish on the counter, it was SO POORLY wrapped that all the fish practically fell out. That was the LAST STRAW. I demanded to see a manager.

I explained my whole experience at the fish counter and she could see how poorly wrapped the fish was.... so being ignored, not having a person who knew anything about fish, the person refused to go in the back and look to see if they had flounder, and then selling me a pound extra of halibut overall made for a very unpleasant experience. I get better treatment at my neighborhood grocery store. In any case, the manager took $80 off the price of the fish, so I got it for $51. Better.  

I then took my parents to Clyde's of Reston. Since my parents have moved in with us, we have spent a great deal of time going to this restaurant. Given my dad's dementia..... consistency, familiarity, and structure are important to him. Sitting next to my dad is Dawn. Dawn has been caring for us since December. We have gotten close to her and she is good mental stimulation for my dad. Today was her last day at the restaurant, because tomorrow she goes on vacation. This restaurant closes on May 21, but fortunately she is relocating to another Clyde's and we will follow her there. We had a chance to say good-bye to her today and she brought over a parting gift. A bottle of ketchup for my dad, which she signed. The joke behind this is I carry a bottle of ketchup in a tote bag. I do this because my dad wants a lot of ketchup and during COVID many restaurants no longer bring out a bottle. Inside they provide a little cup, which doesn't cut it for my dad. Dawn gets a kick out of my bottle, which is why she gave my dad one to take home. 

In addition to Dawn, we have gotten to know Anthony the assistant GM of the restaurant. Together they have made it feel like this is our second home. It is a shame that this restaurant is closing and I will miss the care and understanding that all the staff show to me. It is hard being a caregiver, but when others around me understand, it makes even the challenging moments of dining out with my dad, much easier. 


When I got home, I started preparing for our dinner tomorrow night. I baked a blueberry pie, as there is no way, on top of everything else I am doing tomorrow, that I am going to tackle that too.

May 10, 2022

Tuesday, May 10, 2022

Tuesday, May 10, 2022 -- Mattie died 658 weeks ago today. 

Tonight's picture was taken in April of 2005. It was Mattie's third birthday, and we hosted a party for him at our home. I hired a student from the university to run a magic show and he also did balloon animals. He brought along his pet bunny, Hobbs. Hobbs was a hit!



Quote of the day: Sometimes our work as caregivers is not for the faint of heart. But, you will never know what you’re made of until you step into the fire. Step bravely. ~ Deborah A. Beasley


I am exhausted. So much so that while driving this afternoon, I wanted to pull over and close my eyes. I did not, but I truly felt like I needed to rest. My morning started early as I had to get myself up, showered, dressed, have breakfast made, and out the door with Sunny by 7:30am. Sunny visited the oncologist today. He was at the oncology center for about ten hours. I got to meet the oncologist, and he was thoughtful, kind, compassionate, and thorough. He presented facts and options. I was able to tell him about my cancer experiences with Mattie and therefore wanted him to know that I KNOW ALL TOO WELL that the medicine has ramifications on quality of life. 

Today we agreed to have more blood work done, to get a more comprehensive urine analysis, using something called Lacuna. Lacuna Diagnostics diagnoses cytology cases at the speed of digital. Much like radiology, Lacuna has created a Point-of-Care solution that moves images of microscope slides through the cloud to specialists for rapid review. This enables a team of pathologists to collaborate with each other and provide high quality diagnostic reporting back to the veterinary team in hours, not days. I also agreed to have an ultrasound guided needle aspiration of Sunny's spleen. I wasn't worried about the 2 inch mass in the spleen until the oncologist told me it could rupture, which is life threatening and also if the mass is cancerous, it could spread these cells all over Sunny's body. 

I had to make quick decisions today, and knew I wasn't jumping into aggressive treatment without more facts. The doctor thought this was a sound decision. I also learned today that Sunny's BRAF test from last week came back negative. BRAF is a genetic mutation that is identified in around 80% of dogs with transitional cell carcinoma in the bladder and prostate. The BRAF test is PCR based genetic test that allows detection of this mutation in the urothelial cells that have been shed in the urine. In addition, they collected urine today from Sunny and spun it at high speeds to see if any cancerous cells showed up in the sediment. None did. So this is good news and yet perplexing news. It doesn't mean that Sunny is cancer free, it just may mean he doesn't have a standard form of the disease. NO SURPRISE there!  

But what today's testing did reveal was that Sunny has a massive urinary tract infection. So the doctor has him now on antibiotics and anti-inflammatories. Mind you I have been saying for a week that he is acting like someone with a UTI. Being the queen of UTI, I know the symptoms. I am so glad Sunny is being treated and I am hoping this eases his discomfort and frequent urinations. 

While I left Sunny there all day, I went home and got my dad up at 9:30am to shower and dress. He practically slept 12 hours last night and yet today was wiped out as always. After doing brain games, my dad got it in his head that all the sinks in the house needed their drains cleaned. At this point, drains are LOW, or non-existent on my problem list. But he was perseverating on the issue. So I told him instead of his exercise routine, I was going to take him back upstairs for him to clean all the sink drains with a Q-tip (his instrument of choice). Where I got the patience for this, I HAVE NO IDEA! Once I finished with my dad and got him settled, my mom needed helped and wanted to go to the bank and post office. So that meant I stopped whatever I wanted to do work wise, to manage these issues. Then I took my parents out to lunch. At lunch, Sunny's oncologist called twice, my dad had to jump up to the bathroom, and I am hoping you are getting the picture.... I never stop moving or have a minute's peace. EVER!!! 

May 9, 2022

Monday, May 9, 2022

Monday, May 9, 2022

Tonight's picture was taken in April of 2005. Mattie was three years old and that day he and Peter went outside on our deck to open up a fresh coconut that Peter's mom sent to Mattie from Florida. It was always a riot seeing a coconut coming in the mail. Literally the actual shell was addressed and had postage on it. Opening up a coconut was no easy task, but Mattie was always intrigued, which was why we also brought this project to Mattie's preschool and kindergarten classes. Mattie's classmates were mesmerized by the whole process too, as Peter got into it with googles and a saw!


Quote of the day: The disease might hide the person underneath, but there’s still a person in there who needs your love and attention. ~ Jamie Calandriello


Don't ask me how it can be 8pm, and I feel like I haven't accomplished anything. Or anything that I really need to be doing. My day was inundated with laundry and chores. In fact as I am typing this, I have another load going. Peter is on the road again this week. He has been traveling practically weekly for a month now. It is hard on him and it is definitely hard on me. Peter works from home typically and I try not to bother him most days, but it is always comforting to know if I need another hand or if something goes wrong in the house, he is there to help.

Besides laundry, I did a big grocery store run today, as my mom's long time friends are coming to visit on Thursday and I am cooking a big dinner. Honestly prior to my parents moving in, if you told me that I would be focused on anything else other than fundraising the week of the Walk, I would have laughed. Years prior, my number one priority was fundraising and leadership around this event. This isn't possible this year and naturally I could feel guilty about this, but instead I am a realist. I can only do so much as one person, and already I am strung out and working like I had ten hands. 

Since Peter is away, I took my parents out to lunch. We went directly there after we picked up my dad from the memory care program. He entered the car, not happy. He doesn't like the program and he feels many of the people running his sessions aren't 'bright.' This bothers him greatly because I think if the person he interacts with doesn't engage him and stimulate him with thoughts and ideas, he tunes out. So today wasn't a good day. We went into lunch with this attitude. While eating, he literally had to run to the bathroom twice. Which means I take him into the women's room and go into a stall with him. As he can't logically go through the necessary steps to go to the bathroom. The second trip to the bathroom was a mess as he pooped all over himself. Which means it is a big clean up job for me in the bathroom. Mind you I am supposed to be eating. The average person I am quite sure would feel sick to their stomach after cleaning up what I did, but someone I keep moving forward. Despite sheer exhaustion. 

I have no idea when my dad's Irritable Bowel Syndrome got so bad, but I truly believe his moderate to late stage dementia plays a key role in the uncontrollable nature of this disease. My dad no longer is rational enough to recognize the physical signs that he has to go to the bathroom, until it is too late. Again, I am not trying to toot my own horn, but I am not sure many people could juggle my parents even at home, much less at a restaurant. 

May 8, 2022

Sunday, May 8, 2022

Sunday, May 8, 2022

Tonight's picture was taken on Mother's Day of 2006. We took Mattie out for lunch at one of his favorite restaurants. The restaurant gave all moms that day a beautiful geranium, which you can see in the photo on the right. We don't have many photos of us together, but our waiter snapped it for us on that day and I am so glad I have it. 


Quote of the day: For when a child is born the mother also is born again. ~ Gilbert Parker


As of today I have acknowledged 13 Mother's Days without Mattie and only 7 with him. So how do I feel about Mother's Day? I think the notion of the day has evolved over my 13 years of loss. Unlike in the beginning, I can now accept that this is a national holiday, that there are reasons to celebrate the day, and that whether I want to hear it or not, people I DON'T know will wish me a happy Mother's Day! Whether they know my story, whether I have a child, or not. Shortly after Mattie died, if someone tritely wished me a Happy Mother's Day, I would want to scream. It was as if someone was psychologically stabbing me. 

That said, as a bereaved mom, you learn strategies to help you cope with a forever loss. But that doesn't mean that the pain and heartache aren't still there. Unfortunately they remain, and Mother's Day is a bittersweet day for me, as no mom should have to outlive her child. It just isn't natural or normal. But finding a way forward with this pain truly takes fortitude, courage, and the strength to figure out who I am, what provides me meaning, and how to live a life without Mattie. 

All I know is Mattie is my greatest teacher. Given my own experiences, I am now much more aware of using the words... Happy Mother's Day. Because a woman is of child bearing age or perceived to be old enough to have a child, doesn't necessarily mean she has a child. This day can evoke all sorts of feelings because what if your mom died, what if you are unable to have children, or..... fill in the blank. There are many reasons why this day could bring about sadness, rather than happiness and joy. But in all honesty, I am not sure I would have been that clued in, if it weren't for Mattie. 

On Mother's Day, I like to repost two things. The first is the origin of Mother's Day and the second is a piece by Erma Bombeck that my friend Denise gave me years ago. Each year that I read it, I get something new from it. Meaning, this year I highlighted the words... instrument who is left behind. Indeed, that is referring to me, I am the instrument that was left behind to perpetuate Mattie's life and legacy. Funny how I have read this passage each year, but it is in this 13th year of loss, that these words simply jumped off the page at me.  


The origin of Mother's Day in the US:

In the United States, Mother's Day did not become an official holiday until 1915. Its establishment was due largely to the perseverance and love of one daughter, Anna Jarvis. Anna's mother had provided strength and support as the family made their home in West Virginia and Philadelphia, Pennsylvania where her father served as a minister. As a girl, Anna had helped her mother take care of her garden, mostly filled with white carnations, her mother's favorite flower. When Mrs. Jarvis died on May 5, 1905, Anna was determined to honor her. She asked the minister at her church in West Virginia to give a sermon in her mother's memory. On the same Sunday in Philadelphia, their minister honored Mrs. Jarvis and all mothers with a special Mother's Day service. Anna Jarvis began writing to congressmen, asking them to set aside a day to honor mothers. In 1910, the governor of West Virginia proclaimed the second Sunday in May as Mother's Day and a year later every state celebrated it.


Mothers Who Have Lost a Child - May 14, 1995 by Erma Bombeck

If you're looking for an answer this Mother's day on why God reclaimed your child, I don't know. I only know that thousands of mothers out there today desperately need an answer as to why they were permitted to go through the elation of carrying a child and then lose it to miscarriage, accident, violence, disease or drugs.

Motherhood isn't just a series of contractions, it's a state of mind. From the moment we know life is inside us, we feel a responsibility to protect and defend that human being. It's a promise we can't keep. We beat ourselves to death over that pledge. "If I hadn't worked through the eighth month." "If I had taken him to the doctor when he had a fever." "If I hadn't let him use the car that night." "If I hadn't been so naïve. I'd have noticed he was on drugs."

The longer I live, the more convinced I become that surviving changes us. After the bitterness, the anger, the guilt, and the despair are tempered by time, we look at life differently.

While I was writing my book, I want to Grow Hair, I Want to Grow Up, I Want to Go to Boise, I talked with mothers who had lost a child to cancer. Every single one said death gave their lives new meaning and purpose. And who do you think prepared them for the rough, lonely road they had to travel? Their dying child. They pointed their mothers toward the future and told them to keep going. The children had already accepted what their mothers were fighting to reflect.

The children in the bombed-out nursery in Oklahoma City have touched more lives than they will ever know. Workers who had probably given their kids a mechanical pat on the head without thinking that morning are making calls home during the day to their children to say, "I love you."

This may seem like a strange Mother's Day column on a day when joy and life abound for the millions of mothers throughout the country. But it's also a day of appreciation and respect. I can think of no mothers who deserve it more than those who had to give a child back.

In the face of adversity, we are not permitted to ask, "why me?" You can ask, but you won't get an answer. Maybe you are the instrument who is left behind to perpetuate the life that was lost and appreciate the time you had with it.