Mattie Miracle 9th Annual Walk & Family Festival -- Raised over $97,000

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

February 18, 2019

Monday, February 18, 2019

Monday, February 18, 2019

Tonight's picture was taken in March of 2009. I honestly did not remember this photo at all, until our Facebook friend, Tim, posted it on my page. When he did, he actually cropped it so there was no cake or context to the photo. Once he mentioned that the original photo had a cake in it that read, Thank you, I knew immediately the moment in time this photo was taken. Mattie and I took part in the ribbon cutting ceremony of the child life playroom at the hospital. After the ceremony, there was a party! Mattie typically never turned down a party, and I never turn down cake. 


Quote of the day: If we had no winter, the spring would not be so pleasant: if we did not sometimes taste of adversity, prosperity would not be so welcome. ~ Anne Bradstreet


When it comes to winter, I would be just fine without it entirely. I do not need to have it, to appreciate the warmth and beauty of the sun and milder temperatures. Having a dog, is a reality check, because regardless of the weather and temperature, you are out walking in it. Though I am not a cold weather person, it is actually more painful to walk Sunny in the dead of summer. When the humidity is a killer and I am not sure which one of us is going to pass out on the sidewalk. 

Unlike yesterday, today was a much better day. My headache was much more manageable and I could see light and hear noise again without feeling totally ill. Amazing what difference a day makes. However, now that I am re-focusing from being away, I see the ton of work before me. Before we leave next week for a conference, I literally have a list of things that must get done. These back to back trips make it hard to accomplish anything, but hopefully it will be a productive week. 

February 17, 2019

Sunday, February 17, 2019

Sunday, February 17, 2019

Tonight's picture was taken in March of 2009. Mattie was in the clinic and truly wanted a hot pretzel! Now when you are in the hospital, fulfilling such a request is close to impossible. But thanks to friends and our network, no demand seemed too challenging or difficult to meet. 


Quote of the day: Every day is a battle. He has great difficulty getting past these migraine headaches and he takes a cocktail of medications to get through it.Keith Sullivan


We each have an animal in our home who is attached to us. For Peter it is Indie the cat!
For me it is Sunny. Today I woke up with a wild migraine. It was so bad and debilitating, that within an hour of waking up, I had to return to bed. I spent the majority of the day there. If it weren't for all my migraine rescue medications and medications for nausea, today would have been even worse than it was. 

In any case, Peter escorted all the animals out of the room so I could rest. However, Sunny did not like that and instead found a way to open the door and then jumped on the bed. Apparently he was worried about me. He spent several hours with me while I was resting. He is a true pal!

February 16, 2019

Saturday, February 16, 2019



Saturday, February 16, 2019

Tonight's picture was taken in March of 2009. You maybe asking what was going on here! Mattie was talking to his child life specialist, Linda. Mattie and Linda had a very close relationship. So much so that after Mattie died, we have been raising money for child life programs at different hospitals. We could never have managed the day to day turmoil without Linda. That day at the hospital, there was a special ribbon cutting ceremony to officially announce the launch of the child life playroom in the pediatric units. Believe it or not, when Mattie started treatment at Georgetown there was NO playroom. The addition of a playroom was a God sent. Linda understood that Mattie thrived on tasks and responsibilities. So she asked Mattie if he would like to cut the ribbon during the ceremony. Literally Mattie cut the ribbon with all the chief executives of the hospital standing behind him. Mattie loved it!


Quote of the day: To me a birthday means celebrating the presence of an individual in our lives. ~ Meena Bajaj 


In June of 2016, we became the God parents of baby Charlotte. Charlotte's parents worked with Peter. They are from Peru and their entire family lives there. So it was an honor to be asked to serve as her God parents. 

Today we hosted a birthday luncheon for Charlotte, who is turning three. Time has a way of flying by, as she seems like she was just a baby a minute ago. Naturally when we are around other children, we have the insight of what it takes to be parents. Despite the fact that Mattie is no longer with us, what we learned from Mattie follows us everywhere.
Charlotte did a great job at the table and actually tried all the food presented to her. She is very different from Mattie in this way and in some others. I don't think Peter and I ever had a peaceful meal with Mattie until perhaps he entered kindergarten. With Mattie there had to be challenges, games, and lots of stimulation at the table, otherwise, he would disengage and not eat. 
A beautiful face and I think Charlotte had a good time today. Which of course included gift opening!
Not only did Charlotte carefully open her gifts, but then she played with each one of them with me. It was fun to see how she interacted with the gifts I picked out for her. 
This is Daniel and Eric. They are friends of Charlotte's and came to the luncheon today with their parents. Sunny absolutely loved the attention!
Charlotte loved playing on the piano! I find it fascinating how kids gravitate to music. Mattie did too! Which is why our neighbor who moved out years ago, insisted on giving us her piano for FREE. She wanted Mattie to learn to play. So to me, this will always be Mattie's piano. 
I have to say this was the best chocolate cake I have ever made. It was absolutely delicious and moist. Not to mention easy to do! I added fresh mashed raspberries in between the cake layers and it was a wonderful addition. 

I love the look on Peter and Charlotte's faces! 
Peter snapped a photo of all of us together!

February 15, 2019

Friday, February 15, 2019

Friday, February 15, 2019

Tonight's picture was taken in February of 2009. I snapped this photo because I loved how Mattie devoured a homemade cupcake! He honestly lived on cupcakes for a period of time at the hospital. Cancer treatment wrecked havoc on Mattie's appetite. He went through a donut phase, a chicken tenders phase, an Utz (and ONLY Utz) potato chip phase, a vanilla shake phase, and  finally a cupcake phase. When ever we were home between hospital stays, I baked dozens of cupcakes, so I would have them available at the hospital!  




Quote of the day: Above all, be the heroine of your life, not the victim.
~ Nora Ephron


My morning started with a ct scan of my abdomen, with and without contrast. The last time I had such a test was back in 2012. Ordered by the same doctor, my urologist. However, in 2012, instead of finding an issue with my bladder, the radiologist found masses on my cervix and said it was indicative of an aggressive form of cancer. The pronouncement left me scared and shocked. But it also added a new doctor to my life, a gyn-oncologist. This doctor followed me with monthly scans for a year. Thankfully, that issue is benign. So needless to say, when my urologist asked me to repeat this scan today, I was less than eager. 

Every person I worked with today for the scan was delightful, starting with the lady who had to insert an IV in my arm for the contrast dye. But I made my wishes known early on in the process today. When Mattie was battling cancer, I learned from one of the hospital radiologists that patients have rights, and we have the right to ask to speak with a radiologist after completing a scan. Well since I learned that IMPORTANT piece of advice, I now always ask to speak to a radiologist so I know immediately what they are seeing on a scan. 

The tech also prepared me for the feeling of the contrast. When this contrast goes into your veins, it literally makes you feel like you are on fire from your head to your toes. Thankfully that feeling passed quickly and thankfully the radiologist saw no cancerous masses. My issues are kidney stones, yet again. Who knew one could be celebrating kidney stones. Considering the alternative, I will take the stones. Now of course, I need to figure out how to deal with them.


When I got home, I went upstairs to wash my hands in the bathroom. Look who followed me up and was eagerly awaiting his walk!
After Sunny's walk, I went grocery shopping, as we are hosting a birthday lunch for our God daughter, Charlotte tomorrow. Her family is coming over with some friends. 

I put a springy (I am hopeful!) table arrangement together.  
Tonight we set the table, so I don't have to worry about it tomorrow morning. In a way, we are cooking a special, almost Thanksgiving day, feast. Including a big turkey! 

PS..... do you see Sunny?? He's worn out, from watching me work all day!
This will be the first dinner we are serving on our new table. When our neighbors moved back to Ireland, they asked me if I wanted to purchase their table and chairs that they bought in Macy's. I am thrilled to have this new set up!

February 14, 2019

Thursday, February 14, 2019

Thursday, February 14, 2019

Tonight's picture was taken on Valentine's Day of 2009, our last Valentine's Day together. This photo was taken by one of Mattie's art therapists. This maybe one of my all time favorite photos, mainly because it captured the way Mattie always looked at me. He would touch my nose with his nose and stare into my eyes. He literally did this with me even when he was a toddler, before he could utter a word. Which is why I am so happy Jenny captured this Mattie tender moment. It was an unplanned moment, in which Mattie surprised me with a box full of Valentine's day creations. 


Quote of the day: Love cures people - both the ones who give it and the ones who receive it. ~ Dr. Karl Menninger 


As it relates to the photo above, It was a valentine to remember! Mattie worked for hours that day in the child life playroom with his art therapists. When I was invited back into the room, I was surprised with a crown of paper hearts and a box full of Mattie creations. Creations which I still have today. Because ten years have gone by, doesn't mean it gets any easier with time. In fact, I would say it gets more complicated and challenging. If your children are alive and healthy, then you have received the best Valentine's gift ever. It is that plain and simple.

I am not a big Valentine's day person. However, it seemed like everyone I saw today, wished me a happy Valentine's day. They of course were wearing pink or red! I was wearing neither. But it does lead me to question, what is the history behind this holiday? Well here are two historical accounts for the significance of the holiday and how it got its name........

FIRST:
The Catholic Church recognizes at least three different saints named Valentine or Valentinus, all of whom were martyred. One legend contends that Valentine was a priest who served during the third century in Rome. When Emperor Claudius II decided that single men made better soldiers than those with wives and families, he outlawed marriage for young men. Valentine, realizing the injustice of the decree, defied Claudius and continued to perform marriages for young lovers in secret. When Valentine’s actions were discovered, Claudius ordered that he be put to death.

SECOND:
Other stories suggest that Valentine may have been killed for attempting to help Christians escape harsh Roman prisons, where they were often beaten and tortured. According to one legend, an imprisoned Valentine actually sent the first “valentine” greeting himself after he fell in love with a young girl–possibly his jailer's daughter–who visited him during his confinement. Before his death, it is alleged that he wrote her a letter signed “From your Valentine,” an expression that is still in use today. Although the truth behind the Valentine legends is murky, the stories all emphasize his appeal as a sympathetic, heroic and–most importantly–romantic figure. By the Middle Ages, perhaps thanks to this reputation, Valentine would become one of the most popular saints in England and France.

My doggie valentine... Sunny got a grooming today! Not his favorite activity, but his groomer is in LOVE with him!














February 13, 2019

Wednesday, February 13, 2019

Wednesday, February 13, 2019

Tonight's picture was taken in February of 2009. Mattie was home in between hospital stays. Though it was painful for Mattie to walk, he did try taking some steps around our home with his walker. Mattie did not like a forward facing walker, somehow it made him feel like he was falling. But the reverse walker was a hit. Back then, our goal was to get Mattie walking again after treatment. Never realizing that this wasn't going to happen. 








Quote of the day: You can be a good neighbor only if you have good neighbors.  Howard E. Koch


Yesterday Peter told me he saw staff from the DC medical examiner's office come into our building. They were taking photos and also had a body bag and gurney with them. Never what you want to see! Of course we did not know what had happened, but bad news has a way of traveling around quickly. Who died? The neighbor above me, who hated dogs. This woman and I had several major run ins with each other. In which she yelled at me and told me she was going to report me to management every time she saw me. She had an absolute fear for ALL kinds of dogs, even the little ones in our building. Imagine being scared of a docile chihuahua? 

Though this neighbor and I did not get along or even see eye to eye on pets, I certainly wouldn't wish her harm. Now that I know she died (and mind you she did not look physically ill) I actually feel badly that I couldn't find a way to get along with her. As Koch's quote points out, it is easy to be a good neighbor when you are surrounded by good neighbors. Unfortunately this woman did not bring about my best traits. Which illustrates who we surround ourselves with makes a big difference in our own attitude, opinions, mood, and behavior. 

The death of this neighbor truly bothers me. I am not sure it is because of our disagreement over Sunny, or because she died alone. So alone, that it wasn't until neighbors reported a bad smell coming from the apartment, that her body was found. Clearly she had no family around to check in with her. Which of course has me reflecting on my own life. My biggest fear is to land up like this lady, which could happen, since we too have no children. Caregiving responsibilities typically fall on one's children, but what happens if you lost your child to cancer? I am sure one figures out alternatives, but it isn't the same. As my neighbor's death poignantly reminds me. 

February 12, 2019

Tuesday, February 12, 2019

Tuesday, February 12, 2019 -- Mattie died 491 weeks ago today.

Tonight's picture was taken on Valentine's Day of 2009. I have been posting a series of photos taken from that moment in time. When Mattie surprised me with a crown of paper hearts and a box filled with Mattie creations and valentine's. Mattie was very proud of his accomplishments that day, and worked for hours on this surprise with his art therapists. When I was invited back into the child life playroom, Jenny (Mattie's art therapist) snapped a wonderful series of photos. Photos that I consider some of my favorites now. 




Quote of the day: Life is a question and how we live it is our answer. ~ Gary Keller



It was a very, very long day of traveling. I left by car for the airport at 9:30am, and now it is 11:15pm, and I am finally home and unpacked. The man who drove me to the airport was lovely. He basically told me his life story of immigrating to this Country from Armenia. I learned about his children, his wife, his philosophy on working hard, his religious beliefs, and his opinion about illegal immigration. He shared with me that many of his friends also lost their children to drug over dosages and how horrible he thinks legalizing any drug will be for our society. Needless to say it was a fascinating hour long drive, and I have to say I admire how this man came to this Country and made a life for himself and his children. I also admire how he has helped numerous people in his community turn their lives around. For example, he stopped three people from defacing property through graffiti. He literally jumped out of his car and stopped three men before they started spraying. He mentioned that his wife was frightened for his life while this was happening, but he gave the perpetrators a lecture about doing something more positive with their lives and that basically that after they made a mess, they wouldn't be feeling any better. 

Checking into the airport was also easy, which was a first for Los Angeles International Airport. Literally I had people coming up to me today to offer to help me with my luggage. I was stunned. It all worked out great, until the flight itself. 

It was 4.5 hours of turbulence. Not just any turbulence, but violent shaking. Needless to say, we did not have many opportunities to use the restroom, and even our descent was a pip. When we landed, we literally hit the runway with a bang! All I know is if I did not take Dramamine before boarding the plane, I would have definitely vomited all over the place. It was quite the welcome home.