Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

December 9, 2022

Friday, December 9, 2022

Friday, December 9, 2022

Tonight's picture was taken in December of 2003. By this point in Mattie's development, he loved the bathtub. So much so that even when it wasn't bath time, he wanted to sit there and play. If you look closely though you will see Mattie had red eyes and his nose was dripping. I can't remember exactly what was going on, but it was possible Mattie was having a tantrum. Mattie's tantrums were overwhelming physically and emotionally and when I was exacerbated, I would put him in the tub. Let him regroup, while I sat on the floor watching him and trying to calm down. Needless to say, we learned a lot about each other and through the tough times, we grew incredibly close. 


Quote of the day: Grief can be the garden of compassion. If you keep your heart open through everything, your pain can become your greatest ally in your life’s search for love and wisdom. ~ Rumi 


It was another ridiculous morning. I got up at 6am because I knew the HVAC folks were coming around 8am. Which meant that the water was going to be turned off for them to work, and I had to get breakfast made and my dad up and showered before any of this happened. Literally I was running around like a chicken without a head this morning, moving rapidly to get things done. Mind you I am tired beyond belief and had a six hour stint in the hospital yesterday while my mom underwent testing. 

Peter got my dad to the memory care center and during the four hours he was gone, I put together a December newsletter for the Foundation and completed two hours of continuing education credits. I have only ONE more to go! Totally amazing, no? I was dead set on getting 40 hours if it killed me. 

In the middle of all the activity, Sunny's mobile groomer came to the house. This is NOT one of Sunny's favorite activities, but it is very important, especially now that he is on chemotherapy. He gets washed and cut monthly and Courtney even gave Sunny a Christmas bandana. Peter took Sunny to the garden center later today and I hear all the women stopped and wanted to pet and get to know Sunny. The power of the Sunman!!! I can't think of a better and more loyal companion. I feel guilty that I can't spend the same amount of time I once did with him, because at one time we were inseparable. Now I can hardly care for myself. 

When my dad came home from the memory care center, I took my parents out to eat in Rockville, MD. My dad gets along splendidly with Dawn, a server we have known for over a year now. She understands his memory issues and peppers him enough to keep him engaged at the table. She is worth her weight in gold for doing just that. On the way to the restaurant, I shared with my dad that my mom's test results from yesterday came in. My mom doesn't have Parkinson's or any movement disorder disease like Parkinson's. Of course this is great news, but I admit, I am FRUSTRATED as there is no physical data or explanation for her symptoms. But I know she has PLENTY of them. 

In any case, my dad was upset that we withheld this information from him. He thought we learned about the results in the morning and did not tell him until 3pm. Which was NOT true. I read the scan report in my mom's medical portal only minutes before we got in the car. Despite trying to reason with him, he couldn't get it. He kept shaking his head. I finally was able to get through to him but it took several attempts, which only further wiped me out. 

No comments: