Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

September 30, 2013

Monday, September 30, 2013

Monday, September 30, 2013

Tonight's picture was taken in October of 2007. Mattie loved fall festivals, riding on hay wagons, and searching for the best pumpkin! As you can see, Mattie picked out three pumpkins he wanted to take home with him from the patch. Frankly I am not sure I ever rode on a hay wagon before, but there were a lot of firsts for me with Mattie. It is not at all surprising that Mattie gravitated to pumpkins. He loved bright colors like orange and red and he also loved all things made out of pumpkin. In fact, prior to having Mattie, I really wasn't a pumpkin fan. Like so many things, Mattie changed my opinion of pumpkin products and now like him, I love them! 


Quote of the day: The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well. ~ Ralph Waldo Emerson

Emerson's quote completely resonates with me! In fact, I really dislike the word HAPPY for the most part. It occasionally comes out of my mouth, but usually I catch myself. The term just doesn't have the same meaning for me now that Mattie is gone from our lives. Today, I spent about eight hours in Arlington, VA at the Red Mango yogurt store. Mattie Miracle worked with the Chris Lantos Foundation to host a successful Smoothie Fest to raise awareness of childhood cancer as well as to raise funds to purchase iPads for children with cancer.

In the summer of this year, I was introduced to a couple who lost their only child to cancer. Their son, Chris battled leukemia for only nine months and lost his battle in June. When their son died, they asked their oncologist to be connected to another family who lost their only child. There are not many of us around, so this is a tall order. But somehow this couple had the where with all to realize that grief could possibly look different for a couple with only one child. They are indeed correct and I am not sure I ever verbalized that until I met them. In any case, through our connection, I learned that before their 12 year old son died, he planned a fundraising event with his music teacher. Chris wanted to host a smoothie fest. Chris loved Red Mango frozen yogurt. This was like Mattie's equivalent of a vanilla shake from Mac Donald's. So Red Mango was a meaningful place to host such an event in Chris' honor.

At times during treatment Mattie could only drink a vanilla shake, and apparently Chris was similar in the sense that he would request a yogurt smoothie from Red Mango. Though Chris is no longer with us, his parents and his teacher made his dream become a reality today. Hundreds of people showed up to have yogurt or a smoothie, they learned more about childhood cancer, and were there to support a worthy cause. Of course for me there were many memorable moments from the event that will always remain with me.

Throughout the day, I met a handful of people who were directly impacted by childhood cancer. Several cried with us, some couldn't talk about their loved one because of the emotion associated with it, but overall, those whose lives were affected by childhood cancer all spoke the same language as us. I remember when Mattie Miracle hosted a 5% sales day at Whole Foods in January of 2012. I was amazed by the number of cancer stories people, complete strangers (store shoppers), shared with me. Cancer has a way of leveling the playing field, and bonds people together in a profound way. Today was no different.

I spent the majority of the day outside the Red Mango store by a table we set up. The table featured information about Chris and Mattie Miracle. At the table we distributed Mattie Miracle brochures, business cards, beads, and encouraged people to sign up for our e-newsletters. At the table, people also made contributions to the Foundation. During a lull in the afternoon, a man approach our table. I could clearly see he was homeless. He asked me what I was doing outside and I told him. He said that he had no money otherwise he would support our cause. Then he walked away after wishing me a good day. I have to admit, I felt badly because I did not handle this interaction well. But unlike most cases in life, I was given a second chance. He came back to our table and when he did, I asked him if he wanted frozen yogurt. I told him I would be happy to have him participate in the day, and he did not have to pay anything. He turned down my offer, but came up to shake my hand and told me how special my offer was to him. I have to say for just that moment in time, I forgot about my cause, and reflected on his situation. I think his face will remain with me for quite some time.

Later in the day, Chris' mom and I went to about 10 local stores and businesses to ask them to display a flyer about the Smoothie Fest. We figured since their stores were close to Red Mango, perhaps some of their customers would visit us after shopping. Many of the stores we spoke with couldn't be nicer and more accommodating. However, two refused to help us. One of which was Barnes and Noble. I honestly couldn't believe they wouldn't take our flyer and I told them I was disappointed in their decision and that I was fortunate that there were other places I could buy books! The other store was Apple. Those who know me, know I am not an Apple fan (yes I'm in the minority!), but when this store refused to even listen to us (two moms who lost a child to cancer), my simple response was..... and this is why I'm a Blackberry user. Of course since I know Blackberry is probably going to go out of business, I am sure this Apple person thought.... who cares! But stores like Barnes and Noble and Apple do catch my attention when they refuse to help even in the smallest way with childhood cancer.


I captured a few photos from the day! This was a poster that Chris' parents created that was displayed right outside the store! Part of me wonders what Chris would have thought about today's event. I have no doubt he would have been proud of his parents. But hosting such an event like this three months after losing your child is terribly difficult. In fact, I told Chris' parents that helping others, raising awareness, and creating a legacy for our children are all very important. But at the end of the day, no matter how hard we work, the people around us are all going home to their children and families and we are going home to an empty home. That may sound depressing or perhaps not helpful advice for me to share, but on the contrary I think sharing such real emotions is key. Because chances are they will feel this way tonight and if it isn't discussed they will think something is wrong with them. Of course nothing is wrong with them, everything is wrong with the situation!

I had the opportunity to interact with Chris' music teacher today, who helped Chris' parents plan and coordinate this event. She is a remarkable, dedicated, and energetic woman who really wants to make a difference and keep the memory of her student alive. This is one of the smoothie fest signs we had out on the street!













The Red Mango store looked very festive today with red balloons everywhere!













Before the store opened up, we took a photo with the owners Betsy and Monty. From left to right are: Betsy, Monty, Ilona (Chris' mom), Lisa (Chris' music teacher), and Vicki.






To many of our Mattie Miracle supporters, thank you for coming by to visit with me today. Your presence meant a lot to me! For an hour or so, Ann came by to lend support for the cause. As my faithful readers know, Ann was our Team Mattie coordinator and is also a Foundation board member.






Pictured here from left to right are Katie, Jess, Linda, and Tim. These are very special people to us at Georgetown University Hospital. Tim, as my faithful readers know, is the Georgetown administrator who is famous for his orange tie campaign the week after the anniversary of Mattie's death. Tim is a big Mattie Miracle supporter. The ladies in this photo are ALL Child Life Specialists. Linda, Mattie's Child Life Specialist, will always hold a special place in our hearts. Jess, the lady in purple, is the professional that Mattie Miracle has funded three years in a row!

I do not know everyone in this photo, but pictured from left to right are: a Chris Lantos Foundation friend, Miki (one of Mattie's outstanding HEM/ONC nurses), Katie (an art therapist), Ilona (Chris' mom), Julia (a HEM/ONC nurse), and a med student at Georgetown.  



Mattie Miracle was glad that we could help our new found friends in cancer. Today's event was the first of its kind that I hosted in which Mattie wasn't the main focus, he wasn't the direct reason we were raising money, and another child was pictured and featured. Mattie Miracle is named after my Mattie and therefore what we do and how we do it always reflects upon our special seven year old. But as Emerson's quote so aptly stated.... the purpose in life is to make a difference, and helping grieving parents honor their child's memory sounds like a pretty great purpose to me.
 

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