Proud of my work -- 16 Years of Service

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



A Remembrance Video of Mattie

March 12, 2015

Thursday, March 12, 2015

Thursday, March 12, 2015

Tonight's picture was taken in March of 2009. Mattie was in the child life playroom at the hospital and doing yoga on a wii entertainment system. Mattie's nurse, Katie, and Peter captured several photos that day. They were both totally impressed with the fact that despite all of Mattie's surgeries and weakened conditioned he was able to balance and do many of the yoga positions with such grace and beauty! But that was Mattie. There was a great deal of true strength and awesomeness in his character. Check out the position of the character on the screen and how Mattie was mimicking the position on the wii board. Keep in mind because of Mattie's surgeries he couldn't raise his arms ABOVE his head anymore!!!!!!!!!! Also know that if Mattie stepped off the board he would have fallen. Mattie couldn't walk either (after his limb salvaging surgery in October of 2008 on his right leg). So the fact that he was balancing on the board like this was a feat of grand proportion. 


Quote of the day: You have power over your mind - not outside events. Realize this, and you will find strength. Marcus Aurelius


This afternoon Peter and I are flying to Fort Lauderdale, FL. We are attending the National Comprehensive Cancer Network Conference (NCCN) in Hollywood. NCCN, is a not-for-profit alliance of 25 of the world's leading cancer centers devoted to patient care, research, and education, dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives. 

On Friday, we have to be at the conference center at 6:45 am to set up our research poster and the session starts at 7am. We have to be on hand throughout the day until 1:15pm to present and answer questions. So Friday will be a full day and a whirlwind trip, since we fly back to DC that evening! I am signing off to pack and get ready for our trip! I will report back tomorrow night! 

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