Friday, October 16, 2026

Friday, October 16, 2026

Tonight's picture was taken in October of 2008. Mattie was home between hospital treatments and though Mattie wasn't able to go to Fall Festivals like we did in the past, we brought pumpkins to Mattie. Mattie absolutely loved these orange orbs and he particularly loved all pumpkin themed food! This Thanksgiving, I am baking a three layer pumpkin cake with cream cheese frosting! A Mattie approved Autumn dessert!

Quote of the day: Unlike death, an ambiguous loss may never allow people to achieve the detachment that is necessary for normal closure. ~ Pauline Boss

I dropped my dad off at his memory care center today, and then went grocery shopping. It is my Friday ritual. In fact, if you speak to any trauma survivor, or someone dealing with loss and grief, you most likely will hear a similar theme! We thrive on consistency, structure, and routine. Why? Because it provides comfort and safety. Just like my grocery shopping routine, I also have a routine when I check out. I go to the self check out area, and while there, I have befriended a store employee. I do not recall what got us talking over a year ago, but what she tells me is that she is an introvert and typically doesn't chat with customers like she does with me. In any case, each Friday, we pick up where we left off the week before. Today, she started the conversation off by saying...... My mom said, XYZ, and I immediately thought of you! Why did she think of me? She thought of me, because I prepared her that XYZ was going to happen! Our conversation usually entails me listening, absorbing what she is saying, and then either reflecting back or providing commentary. She doesn't know anything about me. Does this bother me? Not in the least. In fact, for the most part this is typical of most of my connections. If I share things in a conversation, then it usually means I have a high level of trust and friendship with you. Rather funny, given that I write daily on the blog and those of you who read my words, know a lot about me. That maybe true because it is a pattern that started in a vulnerable moment, when Mattie was diagnosed with cancer. Outside of the blog, rarely do I talk about myself or expect others to listen.

While driving back from the grocery store, I saw my neighbor outside with her son's dog. This dog has anxiety and typically doesn't get along with strangers. Guess who he loves? YES, he loves me. We relate to each other. I know when I see Roger, not to approach him. I have him approach me and I follow his cues. What Roger loves however, is when I call him 'a good boy.' If a dog could smile, then Roger beams with happiness. Any case, my neighbor was over wrought. She is caring for her son who is recovering from surgery and she is worn out from caregiving and trying to clean, cook, and do laundry. She feels comfortable talking to me about this because she knows how I spend my days. I told her that I would be looking for resources for her today and would send them to her. For one brief minute, I almost offered to help her, but then I didn't. I didn't because I have to be realistic, as I am balancing the care of two people already. 

I reached out to the outreach coordinator at my dad's memory care center. I happen to love Erin. Without fail, Erin provided me the names, direct cell phone and email addresses of the owners of two home health agencies. What I like about these agencies is they were started and are run by health care providers who had the personal experience of needing help with a loved one, and the system failed them.  

I have had this plant stand for decades! Pre-Mattie to be specific! I remember buying it when we moved to Washington, DC at the Bombay Company. Which no longer exists. When we moved into this house, my other half bought 12 flower pots, in Mattie Miracle themed colors, to go on this stand. For quite some time, I literally had all those pots on this stand. However, now that I am divorced, slowly, one by one, each and every pot has been removed. Today, I literally removed the remaining pots, put them in the shed, and these three remain. I do not think this stand was designed for clutter. All I know the more clutter I see, the more anxious I get. So for now, I am happy that I can see shells and English house figurines.

Thursday, October 15, 2026

Thursday, October 15, 2026

Tonight's picture was taken on October 20, 2008. I will never ever forget that day! We were in the pre-op area awaiting to meet the surgical team for Mattie's first limb salvaging surgery. To say I was stressed, was putting it mildly, but because Mattie was clued into my every move and emotion, I kept my fears, feelings, and thoughts to myself. As it was Mattie who mattered, not me, and I was determined to do whatever was necessary to try to stabilize the disease. Since Mattie's surgery was the first case of the morning, we were up and moving from his hospital room at 4am! Yet despite everything Mattie was enduring..... he was smiling! What an amazing fellow he was!!!

Quote of the day: When our grief cannot be spoken, it falls into the shadow and re-arises in us as symptoms. ~ Francis Weller

In just two days, I went from needing heat, to air conditioning, and now back to heat in the house. Truly it is enough to make a body unstable. Last night, it was literally 85 degrees inside the house. My parents love it that hot, but it was so hot and humid, that by 9pm, I said.... I CAN'T TAKE IT! So I turned the air conditioning back on. Literally within about an hour, the humidity was out of the house, and I could feel myself becoming calmer. 

This morning, my mom had a physical therapy appointment. I prepared my mom last night for the fact that she had to get up early today. Yet if I did not move the process along, she would never have made it downstairs in time by 10am. I told her that now whenever she has appointments, I will be giving her 60 minute, 30 minute, and 15 minute reminders, because otherwise it is just too stressful. I am balancing my dad in the morning, who is a full-time assist, so I truly need my mom to manage timing more effectively. That said, I am aware that in order to accomplish this, I will need to provide her with a lot more structure.

While my mom was in her session, I drove my dad to his memory care center. On the drive home, I turned on the radio. Those of you who have been reading this blog for a while, know that I am a country music fan. This love started early in life, because my dad loved country music. As a kid, he would turn it on in the car, so at a tender age, I learned about emotions, feelings, and human hurts that are so often expressed in country music. I am quite sure that this is why the music resonates with me, because it speaks to the human condition. 

The song my dad and I used to get a chuckle over when I was a child was Sylvia's, Nobody. I think why my dad and I got a kick out of this song was because we both were rooting for the woman whose significant other was cheating on her! Literally we would sing right along with the lyrics! My dad and I operate under a strict moral code, we are loyal to the end, and we expect those in our lives will be this way too. Here is Nobody, in case you want to hear it:

This morning while driving back home, they played a throw back country music song from the 90s. I haven't heard this song in a long time, but certainly I remember it well. While listening to it, I felt I was meant to hear this song. John Michael Montgomery's love ballad, I Swear, is about deep devotion, lifelong commitment, and the promise of standing by a loved on through thick or thin. All I can say is for those of you out there who have such devotion in your lives, you have life's greatest gift. If you are unfamiliar with 'I Swear,' here it is:

When I got home, I moved from one task to the next. Including washing my mom's car by hand, driving it around for 15 minutes, and going to the bank. I absolutely LOVE our neighborhood bank. I know every woman in the bank and each one has helped me in numerous ways. While I was at the teller counter, there was a man at the next counter. He was making multiple deposits for a business. When he heard everyone say.... Good morning Victoria, he told me that he loved my name and that his sister is a Victoria too. Any case, both of the tellers, me, and the fellow next to me got to talking. Each of us has our own struggles and as I said to all of them.... we take it one day at a time. Which resonated with them. Then I joked with them, that several people I interact with, who are also struggling, talk about "living the dream." This made them chuckle. This is a comment that I absolutely love, and for the most part, when people use this line, they are being sarcastic. As they are not living a life that brings them love, support, and happiness. Any case, the four of us did not solve any problems today, but we definitely felt bonded over struggles! I mention this because it speaks to the human condition, we all need a listening ear and to feel understood. As I always say, the greatest words are..... YOU ARE NOT ALONE. 

Wednesday, October 14, 2026

Wednesday, October 14, 2026

Tonight's picture was taken in October of 2008. Mattie was recovering in the hospital from his first limb salvaging surgery. That whole experience was a nightmare as the pediatric intensive care doctors were not listening to Mattie's surgeon regarding the dosage of pain medication. I remember doing a lot of screaming in order to get Mattie's pain under control. But during that time, Mattie had a craving for potato chips. Not just any chip, they had to be UTZ potato chips. I remember going all over the hospital, at various hours, from vending machine to vending machine in search of UTZ chips! You can see, they made Mattie happy, and if something made Mattie happy, I was going to get it! 

Quote of the day: Some things cannot be fixed. They can only be carried. ~ Megan Devine

My day started at 5:45am. I had to get up at that hour in order to get my usual tasks done so that I could get on the road at 10am, to drive to the National Institutes of Health (NIH). One of Mattie Miracle's Snack & Item Carts is located at NIH's clinical center, and I try to visit NIH, at least three times a year to personally drop off items. The rest of the time, I mail items directly from Amazon. Visiting NIH is not a simple task! It literally takes me an hour to drive there, and go through security. I have to be scanned and my car has to be fully inspected in order to get onto the campus. 

My NIH contact, who I have known for years, just retired. So today, I met a whole new set of people who were thrilled to get boxes of toiletry supplies. They told me how vital the Mattie Miracle Cart is and how everyone is looking forward to a candy and snack delivery in November! Specifically I was told...

"We appreciate you and everything you do in ways we can never fully or adequately express!"

When I got home, I moved onto laundry and I worked on the Foundation's October newsletter. I then took my mom out for tea. After I picked my dad up at his memory care center and got my parents settled, I decided to transplant all my hibiscuses inside for the winter. I chose today, because it was 85 degrees and glorious out. Typically I transplant things when it is much colder and I am miserable, as I hate the cold. Today was too beautiful to be stuck inside! Three hours later.... everything is now inside and cleaned up! 

My two big sunny hibiscuses in the white terracotta pots, got significantly trimmed and I dug up their root balls and transplanted them into two different plastic pots. It makes it a lot easier to carry the plastic pots inside! These are glorious plants, that I bought in 2024, in memory of my beautiful Australian Shepherd, Sunny.

I bought another hibiscus this spring. So I have three staged here.

These two hibiscus I bought in the spring of 2025. They are thriving and the geranium in the red pot, I bought in 2024. I trimmed it back today, but it grows like a tree!

This beauty is a Butterfly Ginger Lily! We bought this plant together in 2014 (YES I HAVE HAD IT 12 YEARS), at the Elizabethan Gardens in the Outer Banks of NC. When it blooms, its flower looks like a white butterfly, with an intoxicating fragrance. I seriously thought I killed this plant off over the winter. It wasn't doing well. This spring, I decided to place the pot outside in a different location.... in direct sunlight! As you can see, it responded!!! 

Tuesday, October 13, 2026

Tuesday, October 13, 2026 -- Mattie died 867 weeks ago today.

Tonight's picture was taken in October of 2008. I will never forget this day! My students at the University put together this amazing Halloween basket for Mattie. It was filled with balloons, decorations, cards, and other goodies. I was deeply honored that my students thought of us, yet for Mattie seeing this big basket upset him. On some level he loved the basket, what was in it, and the thoughtfulness, but on the other hand the basket reminded him that he wasn't living a normal kid life. His friends were going to school, playing, and going to enjoy Halloween. But Mattie felt sick, did not have the same energy, looked different and lived in a hospital. If you think seeing Mattie sad, depressed, and anxious did not impact me, you would be very wrong. I remember absorbing Mattie's pains and trying to make the impossible seem a little more manageable. But I would say, it is very traumatic to see your child suffering and not being able to do anything about it. 

Quote of the day: It’s like I don’t have a right to grieve. ~ Kenneth Doka

This morning, after I showered my dad, I noticed he had two big welts on his temples, right by each of his eyes. Now if I did not shower him myself, I would have thought he hit himself in the head with the telephone shower head. But given that I now do the full shower process, I knew he did not hit his head. I also know he hasn't slipped or fallen AT ALL, since he has been with me 24/7 since Friday evening. So I had to quickly think this through..... what was going on?

I then started connecting the dots. For weeks, my dad has been struggling with an itchy right arm. It is so bad, that he has practically scratched his skin off. Mind you his arm has no insect bites and no rash on it, yet he has this phantom itch. An itch that has been made worse by his scratching. His arm literally looks like he has been attacked by a kitten. 

So this morning, I realized itching and now welts..... equals an allergic reaction. Typically a reaction to a new medication. My dad's doctor started him on a new diabetes medication about a month ago. The new drug has wreaked all sorts of havoc with my dad's irritable bowel issues, but I thought that was the extent of it. Now that I am seeing these other signs, I grabbed my phone, snapped photos of the welts and his arm and sent it to his doctor. I then alerted the doctor to my plan. My plan was to stop giving my dad this diabetes medication for three days and see whether his symptoms subside. I also started him on Zyrtec. This may sound like overkill, but my dad is super sensitive and if I don't catch the allergic reaction in time, I will have to inject him with an epi pen. I have learned this the hard way, which is why I travel with an epi pen in the car and also have one at home. 

It was another glorious weather day! The kind of day that makes you feel good, no matter what else is happening in the world and in your life. My dad was able to do his physical therapy session outside today and while he was out there, I made service calls to arrange for our annual heating check and also reached out to my mortgage company to discuss the escrow. If you have been following along, I have been dealing with a mortgage assumption since May! We are now in October and I am hoping by next week, all aspects of this hateful process will be done. 

Later this afternoon, I took my parents out for frozen yogurt. We visit this store every Tuesday, so you can imagine I know the store manager and all of her employees. In fact, one of the women who works in the store has the same birthday as me! The store loves my parents and they treat them beautifully. But today, I was talking to my birthday mate and she was explaining that she has been unable to sleep for three days. It was so bad, that her husband took her to the emergency room. She got fully checked out (as she is recovering from surgery), and got a clean bill of health. The doctor literally told her she has anxiety, and wait for it...... SHE JUST HAS TO CALM DOWN! When I heard this, I literally laughed out loud! It is very clear to me that this doctor knows nothing about anxiety! Do you know what happens when you tell an anxious person to calm down..... they get more anxious! In addition to talking about anxiety, we also talked about the things happening in her life. I knew immediately that there was a REASON for the triggered intense anxiety. It always comes down to our interpersonal relationships. I say this from experience and I wasn't off based today either. 

Needless to say, I did not solve my birthday mate's problems, but what she did say was.... thank you for listening, for understanding, and for truly understanding how debilitating anxiety can be. She told me that she is in awe of what I do each day for my parents, as she observes it in the store, and we both agreed.... we each have to take it one day at a time. This may sound like a trite statement, until you experience something that makes you reach your breaking point. Then you realize this mantra is the way to survive each second, minute, hour, day, week, month, and year. 

Monday, October 12, 2026

Monday, October 12, 2026

Tonight's picture was taken in October of 2008. Mattie was admitted to the hospital that day! How do I know? Because Mattie was wearing clothes. Whenever Mattie was in the hospital, he only wanted to wear pajamas. However, between hospital admissions, Mattie would wear clothes. Therefore, I can always tell admission days by the photos! The child life playroom at the hospital was having pumpkin decorating that day and of course Mattie was eager to join in as Mattie was all about the pumpkins! 

Quote of the day: Ambiguous loss is the most stressful loss people can face. ~ Pauline Boss

Given that today is a holiday, I had the luxury of getting up at 8am. This is literally unheard of for me, as most days I am up between 6 and 6:30am. Some days earlier. It was a pleasure not rushing around and meeting a time clock! Even Indie seemed to understand not to wake me up, which was appreciated. 

After I got my dad showered, dressed, had breakfast, and then settled in his recliner, I started to do chores. I reprogrammed outdoor light timers, I picked up fallen limbs in the backyard, naturally did a ton of laundry, and even tackled cleaning the inside glass of my oven door. I have been trying to clean this glass on the door for weeks. Nothing seemed to work! I finally read an article by Martha Stewart, who recommended making a paste out of baking soda and water, spreading it all over the glass and letting it sit for 15 minutes. I decided to try it and she is absolutely correct. It cleans the glass without damaging it! So next I am going to try her steam cleaning method for cleaning my oven. Not sure when I will tackle that, but it is on my list. 

This afternoon, I took my parents out to Dairy Queen. It was a beautiful weather day, and it helps to have outings. This chocolate extreme blizzard was the highlight of my day. While we were having our blizzards, I pulled out the game of Quirkle. It is a color and shape game with tiles and it gets both of my parents to think, looks for patterns and converse. Conversing is vital, because if I left my dad to his own devices he would say NOTHING all day long, and my mom would be glued to her phone. So games help draw them both out. They both had a lovely day out and I celebrate these small wins. 

Sunday, October 11, 2026

Sunday, October 11, 2026

Tonight's picture was taken in October of 2008. Mattie was in between treatments and was home from the hospital. Of course being at home never lasted more than a few days, because Mattie typically would become ill with a fever and would need to be admitted. Next to Mattie was his "Haunted Mansion" that he built from tinker toys and ghosts and pumpkins we made together. As you can see, our apartment was getting filled up with all sorts of gifts and toys. Literally by the time Mattie died, our home looked like a warehouse. I had things stacked (up to my waist) around the perimeter of our dining room, living room, and Mattie's room. It took me years to cope with this and eventually have the courage to clean out our home. I can assure you that having to throw out, donate, and organize items that belonged to Mattie was hellish. It is a thing no parent should ever have to do. 

Quote of the day: There is no ritual for grieving someone who is still here. No casserole, no card, no closure — just the quiet, daily work of loving what has already begun to leave. ~ Georgia Clare

At 4:20am, the power went out. You wouldn't think I would notice, but I MOST CERTAINLY did! Since Mattie was diagnosed with cancer, I sleep with a sound machine that plays the sound of rain. When that sound stops, something in my brain is triggered to wake up. As I was coming to consciousness, I could hear my neighbor's generator turn on and I knew exactly what was going on. I did eventually go back to sleep, but when my alarm went off, I went to turn it off and I was having trouble seeing the print on my phone. At first, I just thought I was blurry eyed, but as I sat at the edge of the bed, I knew exactly what was happening. I was having an ocular migraine in both of my eyes. It is hard to describe this feeling, but you know what it feels like when you stare at the sun and then look away? You see a bright light in your eyes, well that is part of how I felt, but add to that jagged zigzag patterns floating around your eyes! Fortunately I was not out and about or driving. I have had this happen in both cases and naturally in this condition, I can't drive. I have to wait for the feeling to pass. 

I remember my first ocular migraine. I literally thought I was having a stroke or was seriously ill. It is downright frightening. Thankfully with consultation from my ophthalmologist and neurologist, I learned that nothing was physically wrong with my eyes. Now, I know what's happening and as soon as I got up, before feeding Indie, I quickly took my migraine rescue medication. 

By 12:45pm, my mom still hadn't come downstairs. Her breakfast had been waiting for her for hours, and yet there was no sign of her. My mom can get lost on her phone. I am seeing this more and more. When I say lost, I mean LOST for hours. I now have to keep a closer eye on her, and since we needed to leave the house by 1:15pm, to head to brunch, I went upstairs to help her get herself together. I literally blow dried and styled her hair, so she did not have to. 

Every Sunday, I take my parents out for brunch. We go to the same restaurant and have been going there since 2021. So you can imagine in five years, I have gotten to know most of the people who work there! Our long time server is named Cheryl. Cheryl now works every other Sunday brunch, so the weeks she isn't there, we have gotten to know the tag team of Stephanie and Rachel. Also lovely women. 

Stephanie brought these squishy things for us today. She has a collection of about 80 and always has one on her. These items are used for all sorts of things like fidgeting, anxiety and stress. Any case, that navy blue one now sits on my desk! I joked with Stephanie that when I get mad, I am going to whack that thing against the wall! 

Meanwhile, Cheryl came into the restaurant for her evening shift and brought me items for the Fall. Cheryl exchanges gifts with us on all holidays and birthdays! Cheryl has given me so many lovely Fall items over these last five years that have added to my collection. Would I decorate if my parents weren't with me? Most likely not! But I do it because it brightens the house and helps orient them to the season. 

See the sunflower arrangement on my coffee table? The arrangement is made out of silk flowers. This was a centerpiece at Cheryl's son's wedding last October. I was not able to go, but she saved me a centerpiece because she knows I love sunflowers. 

This is my favorite counter space in my kitchen. I decorate it for every holiday. 

This floral arrangement and sunflower vase was given to me by Cheryl several years ago. We tell Cheryl all the time that she missed her calling, she has a wonderful creative flair!

Fall towels from Cheryl and my 'former' mother-in-law.

When we moved into the house in 2021, my parents hadn't moved in yet until December. So that September, I went to the craft store, which isn't far from our house. I can't tell you how excited I was to know that I had such a store so close by. Any case, I bought this Fall centerpiece and take it out every fall. 

This pumpkin plate was also a gift from Cheryl. 

The pumpkin on the coffee table and round table are from Cheryl, as is the Autumn themed decorative ball. 

While chatting with Stephanie, Rachel, and Cheryl today, they all requested my pumpkin cake cookies. They think I am a great baker, so I put "bake" cookies on my iphone calendar. Here's the funny story about all of this, I love the restaurant that they work at but they know I HATE their desserts! The chef tells me they run a scratch kitchen, but seriously if this is what they concoct from scratch, I am not impressed. When I told the ladies today that the chef told me NO ONE has ever complained about desserts at the restaurant until me, Cheryl's response was..... "most people don't cook and bake like you!" Anycase that made me smile.  

Saturday, October 10, 2026

Saturday, October 10, 2026

Tonight's picture was taken in October of 2008. Mattie was in his third month of cancer treatment and had just completed his first limb salvaging surgery. His right arm was in a cast and sling. However, his child life interns, child life professional, and art therapist got Mattie out of his room and to the hospital playroom. The goal was to work his lungs post-surgery. Naturally doing the typical pulmonary exercises did not interest Mattie, so they instead decided to play games with blowing bubbles. That Mattie was up for! It was a great team of women.... they will never be forgotten. 

Quote of the day: When a loss is ambiguous, no public ceremony acknowledges the loss and its fallout, or honors the memory of the loved one. It was true for us. People still were unsure how to respond to the endlessness of our unique form of loss. Should they grieve with us or pretend life was fine now. ~ Pat McLeod

This morning my dad had another physical therapy session. Given that it wasn't raining and the weather was manageable, I encouraged them to do his session outside. Psychologically, my dad accomplishes a lot more outside. Whereas when he is inside, he is constantly looking to sit down and "relax." Being outside, he is too distracted by nature and other things going on to want to sit. 

While my dad was outside, I sat down to focus on bills and figured out how I will be paying for everything this month. I wish I could say that three years into this, things are like a well oiled machine. They are not and given that I receive no financial support post-divorce, I have had to become a creative accountant. Something I NEVER EVER thought I would have to do, much less could do. 

My lifetime friend, Karen, texted me to encourage me to complete some health insurance reimbursement forms for both of my parents. Since Karen and my parents share the same health insurer, she felt it was worth doing. If she did not write to me, I would have blown it off, because sometimes I feel like I am on overload..... that one more thing could set me off. But I did do it, and Karen is right, we should get reimbursed for money owed to us. It is a matter of principle. So another thing checked off my list. 

Later today, I took my parents to our local diner. We go there every Saturday. The diner was a zoo today, filled to the brim with people. They had a party of 35 people sitting together that took up half of the restaurant. This was a huge problem, because the diner is small and Saturdays are busy dining days! Half way into the meal, I could see that my mom was upset and unable to eat (I wasn't far behind!). There was just too much chaos and it was frenetic. I would like to say it is age that is impacting me, but my age has nothing to do with it. Even when I was a teenager, I couldn't eat when there was a lot of noise and chaos around me. So in essence my mom and I are alike on this front! The diner sent us home with multiple desserts for free, but frankly the damage was already done. My parents were so traumatized from the experience, that they came home and have been sleeping for two hours. 

Yet while I looked around at people eating at the diner, they did not seem upset. The noise did not bother them. They were all chatting away, engaged, and having a good time. I absorbed it all, and that reminded me once again..... this is not my life. 

Friday, October 9, 2026

Friday, October 9, 2026

Tonight's picture was taken in October of 2008. Mattie was in-between treatments and home from the hospital. That day, Debbie, Mattie's art teacher from school came over to do some creative projects with him. Mattie met Debbie when he was in kindergarten. They instantly connected and I will never forget that in Mattie's mid-semester commentaries from his teachers, Debbie wrote..... Mattie is a "old soul." Debbie understood Mattie and she brought out the inner artist in him. Mattie's Mr. Sun painting, was created with Debbie in her studio a month after this photo was taken. Mr. Sun is part of Mattie's legacy and serves as the symbol of Mattie Miracle!

Mattie and Debbie and of course... Mr. Sun!

Quote of the day: The way I see it, if you want the rainbow, you gotta put up with the rain. ~ Dolly Parton

At 6:45am, I went outside (in my pajamas) and found that all my pansies were decimated. In the middle of the night, a group of deer came and ate the heads off of all my pansies. If that wasn't bad enough, they then pulled each and every plant out of the box. I found the actual plants all over the driveway! Needless to say, I was NOT happy. I collected all the plants and replanted them. It is my hope they will take and possibly rebloom. Though I love these four legged friends, I do not like their eating frenzy. 

In addition, I have roses in front of the house that my other half planted after we moved in. I rarely get a rose on these plants! Why? Because they serve as deer food! I have neighbors with red roses! The deer don't touch them, but my pretty pink roses, are apparently highly desirable!

After I dropped my dad off at his memory care center, I headed to the grocery
store. It is my Friday morning ritual. When I got back home, I put away groceries, dealt with laundry, and then went into the backyard with my green's barrel. I spent an hour outside pulling weeds. I find being outside and pulling weeds very therapeutic and there are times I get so overwhelmed with feelings over my divorce that I can't sit still. I have to move around. Needless to say in an hour's time, I filled up an entire barrel. It is hard to believe that now I need to turn my attention to transplanting my sunny hibiscuses into plastic pots to winterize them inside. I can't seem to get myself to do this yet. Instead, I set up the flower pot holders and coasters inside the house today and am slowly accepting that winter is coming. 

Thursday, October 8, 2026

Thursday, October 8, 2026

Tonight's picture was taken in October of 2008. I know it was a Friday, given the activity in the hallway. The chemistry club came to the pediatric floor to do a hands on activity with the kids. That day, they were taking fresh roses, and putting them into dry ice. The team then dropped the dry iced roses onto the floor, and they broke into a million pieces. Here's the kicker though! Mattie wouldn't give up his fresh rose. He did not want to see it frozen and broken. Instead, he gave me the rose! What a boy! Pictured with Mattie were his best buddy in cancer, Brandon, and two child life interns (Whitney and Lesley). Mattie, Brandon, Whitney and Lesley got along splendidly with each other and anyone who got along with Mattie and made him happy was a blessing. 

Quote of the day: Be brave enough to try something new; you might just succeed. ~ Stacey Kehoe

My dad had a physical therapy session this morning. It was a glorious weather day, so he did his session alfresco. My dad seems to respond positively to being outside and gets a lot more accomplished with his therapists when he is outside. While he was busy, I decided to make a phone call to a governmental agency in Richmond, VA that oversees the Foundation's fundraising registration. As an aside, in order for a non-profit to fundraise, one has to be registered in the state they are incorporated in and where they collect the majority of their funds. 

Typically this registration process has been paper and pencil. It is laborious, because it needs to be signed by two board members. Not signed electronically, but with fresh ink signatures! Literally it involves me mailing documents to my board member to get her signature and then finally remailing the whole package to Richmond. But this year, the agency created an on-line portal. If you know me, then you know I always have technology issues. When I first registered for this agency's portal in the summer time, you want to know how long it took me to get logged in? Try a month! I couldn't get onto this system for the life of me. It was only through multiple emails and tries that I finally got it to work. 

This week, while Cody (my plumber) was here, I had the time at home to work on the fundraising registration renewal application. I got through the whole thing, and there was even a link to electronically send the application to my board member for her to review and sign. Sounded great! Seemed streamlined! Except my board member never received the email request for her signature! Given that the application is due in the beginning of November, I was getting frustrated. Me and my board member even considered going back to the paper and pencil version. 

But today, I said to myself..... NO! I have figured out other harder things, I can get this to work too! So what did I do? I called the technical support staff at the agency and got connected to Sam. Sam was super helpful and very patient. He confirmed that an email was sent to my board member, but he decided to resend it and copy me by email. Thankfully I had the wherewithal to ask Sam, the steps that my board member needed to follow to get onto the system and sign the document. Seriously if Sam did not give me a step by step process, my board member would have never figured it out. I literally wrote down everything Sam told me, put it in an email, and sent it to my board member with Sam on copy! 

As of tonight, the application is completed, the fee paid for, and I am awaiting a decision from the agency. I would have to say that with my separation and divorce, I have learned to work BEYOND my comfort zone. I have no problem admitting I have no idea how to do something, and I know when to turn to professionals for help. I would say this is the only GOOD thing I have learned from my divorce. 

Wednesday, October 7, 2026

Wednesday, October 7, 2026

Tonight's picture was taken in October of 2007. Mattie was five years old and that weekend we went to Butler's Orchard to pick out pumpkins from the pumpkin patch. I am not sure what Mattie loved more.... going into the fields and picking pumpkins from the vine or the hay wagon ride! What I do know is Mattie gravitated to the color orange. No surprise that orange is the main color of the Mattie Miracle Cancer Foundation! We did so many fall festivals that I can't look at a pumpkin now without being transported back to these happier times. Pumpkins symbolize these Mattie moments, when we were an intact family. 

Quote of the day: In the realm of Ambiguous Loss, the absence persists, the closure eludes. A narrative without an ending, where the lines between presence and absence blur, where endings are but distant mirages. Its chronic presence perpetuates a narrative of loss, a loss that remains unclear and without resolution. It has no closure or finality because the loss is ongoing... ~ Carson Anekeya

The highlight of my day is that my mom and I met my friend Ilona for lunch. I have known Ilona since 2013, when her only child, Chris, died from cancer. Back then, even while intensely grieving, Ilona had the wherewithal to ask our mutual oncologist to be connected to a family who also lost an only child. I give Ilona credit, because after Mattie died, that notion never even crossed my mind. I can still remember that July day when we went to visit Ilona and Attila in their home. I truly did not know what to bring with us, but I brought a black forest cake. Don't ask me why! But for me the answer to all problems is sugar and chocolate, so that was probably my thinking.

In 2013, I was four year into the grieving process, and therefore I was far enough away from the initial shock to be able to listen and absorb someone else's trauma. That said, every journey is different and I never try to tell a bereaved parent what to do, how to do it, or what the process will look like. The only thing that I do convey is that child loss is a lifelong process, and this is key. I say it is key because our society expects all of us to bounce back after one year! I don't just think this, I had it said to me. As one friend told me I needed to see a therapist to help me get "back to normal." I will never, EVER, forget that commentary! Given society's pressure, at the one year mark, if you are no further along in the grief process, you can easily think that something is wrong with you! WRONG!!!!! Something is wrong with the situation we are facing, as no parent should have to see their child die!

The first year after Mattie died, I truly did not know if I was coming or going. It was a year of just trying to get my basic needs met. The real emotional grief work did not happen until year two and three! Those years were sheer hell, and I longed to go back to year one when I was completely numb. 

I know for me, connecting to people by text messaging, helped me stay somewhat grounded and in touch with the world, after Mattie died. After all, while Mattie was battling cancer, he did not like hearing noise. Which meant I couldn't hold conversations with people, so I got conditioned to turn to text messaging. Unfortunately that conditioning remains intact with me today, as I rather text than talk. I was NOT like this pre-cancer. Therefore, when I got connected with Ilona, I did what I knew best..... to stay connected by text messaging. After visiting Ilona at her home in 2013, my text messages began. We chatted with each other daily for about three years. The beauty of these messages was it helped both of us and in the process we developed a mutual friendship. I just can't believe we have been friends for 13 years, as I remember July 2013, like it was yesterday. 

Any case, my mom and I met Ilona today for lunch. She introduced us to a new restaurant known for its fresh breads and pastries. We had an amazing turkey, cranberry, and goat cheese sandwich, a chicken salad sandwich and a wonderful cinnamon apple pie. The pie was more like a the texture of a light and flakey croissant. It was very tasty, along with with lively and stimulating conversation. These visits are good for my mom too and for the time we were with Ilona, I took a pause from my usual feelings of grief, loss, and divorce misery.