Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

July 31, 2013

Wednesday, July 31, 2013

Wednesday, July 31, 2013

Tonight's picture was taken on July 31 of 2008. Five years ago today. On that day we took Mattie to the Hospital's clinic and together with Mattie's oncologist and his wonderful art therapists we explained his diagnosis to him and the purpose of the treatment he had to undergo. Mattie loved bugs, and therefore I coined the term "bone bugs." I figured Mattie would understand the concept of having bugs in his bones and the need to stomp them out with medicine. So thanks to Jenny and Jessie (Mattie's art therapists), they helped to create a bone bug out of clay (you can see the colorful bug on the floor). In this photo Mattie was using his foot to stomp out the bug. This was symbolic of what the chemotherapy was supposed to do inside his body.

Fun Fact of the day: Drivers in Barcelona are considered among the worst in the world, with accidents occurring in the city every nineteen seconds! This can go up to ten accidents every second on weekends, which makes it safer to walk than to drive. A majority of Barcelonans therefore prefer to be pedestrians and at any given time most roads are thronged with people on foot. Barcelona is said to have large portions of the city devoted exclusively to pedestrians, the total area is equivalent to about 260 football fields.

After four days at sea, today we arrived in Barcelona, Spain. Someone could have described the nautical distance from Southampton to Barcelona to me, but unless I traveled it personally, I wouldn’t have possibly understood or appreciated the great distance. Four days at sea is LONG and it gave me great appreciation for how any explorer must feel when seeing land for the first time! There is a certain level of joy about being on solid ground after seeing nothing but sea for days.

For those of you who can’t tell, I have returned to writing the blog for the next seven days. I have received MANY emails from our readers telling me how much you enjoyed hearing from Peter these past four days. As you have seen, Peter is quite a capable writer himself, who can not only synthesize content but can also express thoughts and feelings quite beautifully. My joke with him is that he better watch out, because I just may transition the blog over to him indefinitely. I am not sure he appreciated my sense of humor since writing the blog is a labor of love.

Not only was I thrilled to be on solid ground for a few hours today, but I was able to turn on my cell phone!!! Since Mattie’s diagnosis, my cell phone has become my security blanket. When Mattie was in the hospital, it was my only lifeline to support and connection to the outside world. Those of you, who know me well, know my phone comes with me everywhere. It is by my bedside at night, I take it into the bathroom with me when I shower, and honestly it has become like my fifth appendage. Naturally I no longer live in crisis mode like I did in 2008 and 2009, but this is one of the many after effects of cancer. While at sea, I had NO cell phone coverage. I wasn’t sure how I would manage this for four days. Somehow I did it, but was thrilled to turn the phone on today!!! I did it while pulling into port at 7am!!!

Peter and I visited Barcelona in 1998. So we haven’t seen this city in 15 years! Some things have changed and yet the tradition of the city remains! Our tour guide today was named Paloma and our bus driver was Diego. Paloma let us know that Barcelona is the second largest city in Spain, Madrid being the largest. Barcelona has 4 million people living in it and get this…… it has 750 cruise ships that visit it a year. That is more than two cruise ships a day, bringing in thousands of people each day.

In 1992, Barcelona was home to the summer Olympics. To commemorate this special occasion in this seaside town, this Happy Lobster sculpture was created. It is actually a funny site to see incorporated within a town filled with historic buildings and structures. Check out the lobster’s face!



Peter snapped this wonderful photo of the lively streets of Barcelona! The streets are clean and there is a great deal of both pedestrian and motorized traffic. Though most of the streets only go in one way directions, so that it helps with traffic flow. Just like we have a Starbucks or Dunkin Donuts on every corner in some parts of the US, Barcelona has cafes everywhere! The fragrance of bread and pastries definitely caught my attention!

There are two very noteworthy individuals who have made Barcelona famous. These two men are referred to as the “sons” of Barcelona. They are architect Antoni Gaudi and the other is the artist I know a lot about, Pablo Picasso. On our previous trip to Barcelona, I had the opportunity to visit Picasso’s museum. Today we certainly got an eye full on Gaudi’s works and accomplishments. Gaudi never married and had no children. Nonetheless, his contributions to the world are endless. He gave us lasting gifts through his works of art and designs in the city of Barcelona. In fact, much of Gaudi’s money went into the project of designing the Basilica, La Sagrada Familia. A project that was started in the 1850s and is still in progress today! YES, I emphasize, this Basilica is over 150 years in the creative making.

In Gaudi’s youth he was dapper, blond, and blue eyed. As he aged, he became more religious and focused inwardly on matters of the soul – so much so, he often ignored his appearance. As an elderly man, dressed in rags, he was hit by a tram. Passersby, thinking he was homeless, ignored “God’s Architect” as he lay on the street. Gaudi was finally taken to a hospital a day later where he died from his injuries. When I heard this story, it saddened me. It saddened me first of all that such a contributor to society would die in such a horrific and disgraceful manner, but then the larger context of the story was equally disgusting. We live in a world which seems to value not necessarily people and human life, but only human life we perceive as valuable!

Along our tour, we passed this housing complex designed by Gaudi. Once you see one Gaudi design, it then is easy to recognize his other structures. His style is like NO other I have EVER seen. It is creative, whimsical, and structurally fascinating and complex. In this particular housing complex, look at the balconies, what do they look like to you? The railings represent theatrical masks! Also another tell-tale sign of a Gaudi masterpiece are the mosaics! He incorporated intricate mosaics of found materials into most of his designs. Which makes every structure he created colorful and come alive.





We visited Parc Quell today. Quell was a millionaire in 1900, who asked Gaudi to design a housing community for him. In a way Quell was ahead of his time, because he envisioned a community with huge houses, a market place, parks, and churches. Communities which we see throughout the United States. The one thing that Quell did not foresee however is that the property he selected was not centrally located and also wasn’t near the water. You know what they say in real estate….. Location, Location, Location! Any case, Gaudi started designing and constructing the Quell community, but it was never completed because no one wanted to live there. Instead, because of the artistic nature of the designs and the property it eventually was turned into a park. Today we toured around this incredible park and I could only imagine what Quell envisioned this place to be.

This is a close up of the benches at Parc Quell. Check them out! Have you ever seen a bench so beautifully designed? Most likely not, unless you have seen a Gaudi work of art. Gaudi designed these benches. This area was planned to be an open park space within the housing community for neighbors and people in the town to gather. The mosaic patterns and designs are so inviting, they almost call you over to sit on them! Though Quell’s housing community was never finished, I am happy that people can indeed come to this park and appreciate these magnificent benches the way Gaudi had intended them to be used.

While pausing by these wonderful benches, we heard squawking in the palm trees. When we looked up….. this is what we saw. Lots of wild parrots all over the place!









Gaudi loved nature! A man I can relate to!!! He believed it was important to incorporate nature into his designs, in fact nature gave him his inspiration! I can’t think of a better example of this than this glorious wall. I call it “the palm tree wall.” In this photo it is hard to know where the palm trees start and end. Some are alive and some are carved in stone!

Now that you have seen a few Gaudi structures, I bet you can figure out from this photo what was designed by Gaudi here!!!! His work just jumps out at you. As you can see this shocking blue and white chimney is full of whimsy and is just different from everything else around it. His designs almost seem story book like to me.



This cutie on the left hand side of the photo is entitled, “the chocolate house.” Needless to say the title alone got me. There is NO chocolate in this house, but its story book like quality gave it this cute title. Any case, this house in the early 1900’s was considered a MODEL HOUSE! Remember this was going to be a Quell housing community. Gaudi designed this house and it served as the model home for people to tour in before investing and buying into the community. Unfortunately for Gaudi and Quell that never happened!

This colonnade served as the marketplace for Parc Quell. Mr. Quell envisioned a housing community with its own market and stores! He was totally ahead of his time! Look at the attention to detail Gaudi included. What you can’t see are the intricate mosaics that line the ceiling of the colonnade!





After touring Parc Quell, we then went to see the Basilica designed by Gaudi, La Sagrada Familia. This church is awe inspiring and when you consider that it is in its second century of construction, it makes you pause. The church is HUGE and features intricate spires, endless mosaics, and detailed stained glass.














On November 7, 2010, the La Sagrata Familia was solemnly dedicated and declared a basilica by the Holy Father Benedict XVI and became a holy place open for worship.  In 1882, the foundation stone of a project conceived by Francisco de Paula del Villar, the first architect of the church, was laid. A year and a half later, Antoni Gaudi took over the work and turned the initial project around to create, over 43 years (his life’s project!!!), an outstanding, innovatory church which is still being built today according to HIS MODELS.  Around 8000 people can worship in this Basilica. Gaudi envisioned 18 bell towers: 12 representing each apostle, four for the evangelists, a tower dedicated to the Virgin Mary, and the highest tower in honor of Jesus.

Unlike other churches which have their details INSIDE, Gaudi did the exact opposite. The details, the figures, the stories are ALL outside. Here is just one example of the intricate carvings on this church. It depicts the nativity scene of the birth of Christ. This sculpture is found above the entrance to the Basilica and it expresses the joy of the birth of Jesus and recounts the main events in the lives of the Holy Family of Nazareth.

The inside of the Basilica is quite different from the outside. To me it has a modern and austere flair to it. Yet the stone work and stained glass do captivate your attention. Keep in mind that this WHOLE interior did not exist 15 years ago when we visited Barcelona. Back then, it was just an open and unfinished space inside surrounded by Gaudi’s spires and some exterior. So in essence the interior of the church is new architecture and it shows. Which may be why I did not like the inside as much as the outside. Nonetheless, Gaudi wanted to capture the feeling of a forest inside the church, and his plans achieved this in theory with the use of green and blue stained glass windows. When the sun shone through these windows, the Basilica was aglow in blue and green.


The ceiling within the Basilica featured several apostles, such as St. Matthew. Notice that Matthew is portrayed here as an angel. This resonated with us, and it reminded us of our littlest lost angel, Mattie.















The final feature that I would like to point out to you is the oculus (open air portion of the roof) behind the alter. This is an architectural feat in and of itself. It is hard to imagine that there is a hole in the roof, to let natural light in, and yet rain and other elements are unable to come inside. This open air component gives the inside of the Basilica an ethereal quality.

The ship is filled with families from England. You can count the number of Americans on two hands! Peter has done a great job at describing some of the differences between Americans and Brits on travel. However, I would like to point out a commonality. Yesterday, my mom and I were riding on one of the ship’s elevators (or LIFT --- yes I am getting into the Brit lingo), and with us was a mom and a SCREAMING toddler. The toddler was a little boy. I remember the screaming toddler stage very well. I learned after having Mattie never to judge a mom with a screaming child. Instead, I made a comment to that mom that I was sorry her son was crying. She then told my mom and me that her son was pitching a fit because he did not like the shoes she chose for him to wear. So I looked at the shoes and they were crocs (sandals) with Mater on them, a character from the Disney movie Cars. Thanks to Mattie, I know ALL about CARS and crocs (one of Mattie’s favorite sandals)! I also learned about the art of distraction with Mattie because it was the number one way to pull Mattie out of a tirade and tantrum. So I began to make a big deal over the Mater crocs on the elevator, and told the little boy I loved Mater, and asked whether I could borrow his shoes. I asked him if he thought my feet would fit into his shoes. He stopped crying and wasn’t sure whether I was serious of joking, but he was listening.  

We accomplished the Barcelona tour in four hours today! Amazing if you think about it. We are now back on board the Crown Princess and setting sail for Monaco, where we will be visiting Nice, France (a part of the French Rivera) tomorrow. Learning to pace one’s self on a cruise is a challenge. The tours are aggressive and when you hit one port after another, it takes a lot of stamina but also great concentration not to forget what you did the day before. Thankfully, as Peter and I say often…. we have the blog. It captures Mattie’s battle, our feelings and memories about Mattie, as well as our life journey without Mattie. 

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