Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

June 11, 2015

Thursday, June 11, 2015

Thursday, June 11, 2015

Tonight's picture was taken on April 4, 2002 at 1am... the moment Mattie was born. Peter clearly snapped this photo and in typical Mattie style, he had one eye open and was engaged with the world. Even right out of the womb! This was Mattie's theme..... he never wanted to miss out on anything, and he always absorbed everything and everyone around him!



Quote of the day: When people talk, listen completely. Most people never listen. Ernest Hemingway


Hemingway's quote is most beautiful and really very telling. Sometimes when one listens, one needs to listen to more than the words that are being communicated to fully get the picture of what is being expressed. I think yesterday's episode at the hospital was case in point. I could clearly express my anxiety about having a scan, and technically the person administering the scan was "listening" but there was no true acknowledgment or processing of the content or feelings of what I was expressing. So the art of listening is more than the mere physical nature of processing noises. Listening is truly an art and when done effectively is VERY tiring! Try listening to what someone is saying to you even for ten minutes. Think about the content and the underlying feelings expressed, stay engaged and don't allow your mind to wander. It isn't easy, especially in our fast paced world in which we have ten thousand things pulling at us and demanding our attention. 

After yesterday's ordeal, and it was an ordeal by every stretch of the imagination, I needed to talk about it after it was over. Naturally I shared my concerned with the hospital administration, which was step one, and I wrote on the blog last night, but immediately after it was over, I got in the car and called my mom. I must have talked non-stop for an hour. That is how anxiety provoking the scan and experience was and for me (and remember I am NOT a phone person!). Through Mattie's crises, I developed two modes of operating.... the very quiet mode of getting through things and then the very hyper mode of letting someone have it. Both modes serve great purposes and over time I learned which mode I needed to be in to survive. However, in all reality I think if Mattie were working with that tech yesterday, I would have pulled him from the room and reported her much sooner. But I wanted the data and the test to be over with. Talking with my mom for an hour re-stabilized me yesterday, because I can feel sometimes when anxiety just takes over and then it can be hard to function. Again, this is a direct after effect (and a long-term one) of Mattie's cancer! As my call with my mom ended, Peter arrived home from his business trip and then I shared the ordeal with him. 

Today, I spoke to Sylvia, who is the Executive Director of Radiology Services at Georgetown. She actually read last night's blog, shared my posting with the rest of radiology, as well as the radiology leadership team. I walked her through everything that happened from dealing with the administrative staff, to my issues with the tech. Sylvia was deeply apologetic, understood my concerns, and expressed that she was going to take my feedback to the department to improve patient care. Which of course is important to me, since I wouldn't want another person to experience what I went through yesterday on any level. 

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