Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

December 15, 2016

Thursday, December 15, 2016

Thursday, December 15, 2016

Tonight's picture was taken in December of 2006. We took Mattie to visit Peter's parents for Christmas in Boston. Behind Peter's childhood home are woods. Peter spent many days as a kid in these woods and wanted to share that experience with Mattie. Mattie enjoyed the adventure, but wasn't appreciating my need to capture this in a photo. How do I know? I can tell by Mattie's expression. He was giving me one of his "false smiles," because I had asked him to pause and look at the camera rather than the stream. Nonetheless, I caught that moment. As we head up to Boston at the end of the week, we will now be walking Sunny in these woods. Mattie would have thoroughly enjoyed doing this, he would have loved Sunny's companionship, and they would have been a great twosome. 


Quote of the day: What good is the warmth of summer, without the cold of winter to give it sweetness.John Steinbeck


I get Steinbeck's quote in theory, but in my reality, I do not need to experience Winter to have a great appreciation for summer. I could live with summer weather year round. Today was 21 degrees in DC, but with the wind chill it felt like 8 degrees! EIGHT degrees! The wind was whipping, and things went flying. I had a flower pot that went airborne and all three of our bird feeders toppled over! In the past, on a day like this I would have retreated inside. But with Sunny that is NO longer possible. Sunny likes to walk and he doesn't seem bothered by temperature extremes! For him it is business as usual. So I walked him 2.5 miles this morning in terrible wind gusts! Mind you I was the only person braving the streets in this. For the first 15 minutes, it is painful, but then when your whole body freezes over, you start to forget how cold you are. Sunny and I will be having many adventures together I can tell this winter. I am preparing myself. It is funny when I wish for 40 degree weather days back again. In comparison to today, yesterday felt like spring!!! Just to put it into context. 

This morning, Peter and I had a conference call with several professionals from Dominion Consulting. Dominion is Mattie Miracle's corporate donor. Peter knew many of these consultants when they worked together years ago at Arthur Andersen. I am deeply grateful that they stand behind our Foundation, us, and our mission. On January 24, the Foundation is holding an invitation only Round Table event on Capitol Hill to strategically focus with stakeholders [researchers, payors (such as private insurance and Medicaid), legislators, and advocates] on the implementation process for the Psychosocial Standards of Care. Though Mattie Miracle is sponsoring this, we felt that it would be important to have the session facilitated by a third party. So I reached out to Dominion Consulting, and they agreed to support us in this way. Which is a major gift given their level of expertise and skill set they bring to facilitation. We dialogued for 40 minutes this morning about how the event should go in order to maximize the time and energize the group to invest in this implementation phase and leave the event with solid tangible next steps and action items. 

1 comment:

Margy Jost said...

Vicki,
I find myself genuinely excited when you mention the next steps in implementing the standards of care in the area of Psychosocial needs.. I realize nothing happens quickly but the knowledge that MATTIE MIRACLE is working towards this goal, leaves me with a confidence that only good will come from this.

I will be thinking of you & Peter that day!!!