A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



February 24, 2012

Friday, February 24, 2012

Friday, February 24, 2012

Tonight's picture was taken in June of 2002. Mattie was two months old and Peter, I have no doubt, snapped this picture because in our home this was a novel sight. Mattie rarely napped, but if he did, he usually was attached to me. Mattie was a precious bundle and from this picture he also was an angelic one.


Quote of the day: Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, I will try again tomorrow. ~ Mary Anne Radmacher

Anyone who has had to face a challenge or obstacle, would probably admit that it wasn't possible to manage without courage. Courage is the quiet character that is needed to persevere when things seem at there worst, or with no end in sight. We all have defining moments to reflect upon, and perhaps my greatest one was helping Mattie battle cancer and then to help him die. This battle remains so fresh in my mind, which is why having to deal with my current unknown situation is causing me great angst. Within the last three weeks, there have been many feelings that "roar" within me, but listening to my "quiet voice" is truly hard. 

I spent part of the day working on the Foundation's Symposium. I have assembled a great group of psycho-oncologists to work with, and I am truly enjoying my interaction with the psychologist from Children's Hospital of Philadelphia who I appointed as our scientific chair for the event. Over the past two weeks, I have targeted organizations and individuals to personally invite to the Symposium and I am thrilled so far with the response, and hope that is indicative of the need for such a venue.

At lunch time I met up with my friend Tina. Today was Tina's birthday, and we had a lovely time together over food and conversation. Despite how I am feeling, it made me feel good to make someone else happy. Lunch was the highlight of my day, because after that I came home and returned to being in a mood, with a bad headache, and simply not feeling well. When Peter got home from work, he found me in pajamas and in bed and quickly assessed dinner was not getting made by me. So instead he made it, brought it upstairs, and we watched a movie together while I ate in bed. Not a typical occurrence for me, but then again the last three weeks have been sheer havoc for me.

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