Saturday, October 14, 2017
Tonight's picture was taken in October of 2008. Mattie had already undergone his first limb salvaging surgery which was why he was in a wheelchair. I know that this photo was taken on a Friday. Why? Because Mattie was watching the chemistry club doing experiments on the hospital floor. Every Friday the club came and interacted with patients. They were fabulous and the chemistry club president took a liking to Mattie. On days Mattie wasn't able to come out into the hallway, Chris (the president) brought the experiments into Mattie's room. That particular day, Chris was making ice cream with nitrogen gas. This fascinated all of us. Mattie was surrounded by buddies... his two child life specialists (Whitney and Lesley) and his big buddy (and fellow childhood cancer friend), Brandon. Though that did not take Mattie pain or issues away, having this support made a huge difference to our quality of life.
Quote of the day: We are shaped and fashioned by what we love. ~ Johann Wolfgang von Goethe
Peter and I were tired today after a long week. I have to remember that in addition to doing Mattie Miracle work, I was hit by a horrible migraine for a week. I am finally coming out of that. Despite the grayness and change of weather, Sunny needs to go out for a walk. So we headed to Roosevelt Island, a Mattie and now Sunny favorite. In the spring and summer, the Island is always packed with people and it is hard to find parking. But now that the weather is turning cooler, there is no parking competition. This is the one benefit of the weather changing. I also find that in the winter time, only Sunny and I are outside walking. There is no congestion on the sidewalks, and it is delightful.
Meanwhile this afternoon, while I was sitting on the couch, I saw that the sun was coming out. It was such a glorious sight, I snapped a photo! I really rely on our room with view in the cooler weather months, and soon many of our outdoor plants will be brought in for the winter. Indie just LOVES all the plants coming in and we are entertained at watching her hide and jump around the plants.
Tonight's picture was taken in October of 2008. Mattie had already undergone his first limb salvaging surgery which was why he was in a wheelchair. I know that this photo was taken on a Friday. Why? Because Mattie was watching the chemistry club doing experiments on the hospital floor. Every Friday the club came and interacted with patients. They were fabulous and the chemistry club president took a liking to Mattie. On days Mattie wasn't able to come out into the hallway, Chris (the president) brought the experiments into Mattie's room. That particular day, Chris was making ice cream with nitrogen gas. This fascinated all of us. Mattie was surrounded by buddies... his two child life specialists (Whitney and Lesley) and his big buddy (and fellow childhood cancer friend), Brandon. Though that did not take Mattie pain or issues away, having this support made a huge difference to our quality of life.
Quote of the day: We are shaped and fashioned by what we love. ~ Johann Wolfgang von Goethe
Peter and I were tired today after a long week. I have to remember that in addition to doing Mattie Miracle work, I was hit by a horrible migraine for a week. I am finally coming out of that. Despite the grayness and change of weather, Sunny needs to go out for a walk. So we headed to Roosevelt Island, a Mattie and now Sunny favorite. In the spring and summer, the Island is always packed with people and it is hard to find parking. But now that the weather is turning cooler, there is no parking competition. This is the one benefit of the weather changing. I also find that in the winter time, only Sunny and I are outside walking. There is no congestion on the sidewalks, and it is delightful.
Meanwhile this afternoon, while I was sitting on the couch, I saw that the sun was coming out. It was such a glorious sight, I snapped a photo! I really rely on our room with view in the cooler weather months, and soon many of our outdoor plants will be brought in for the winter. Indie just LOVES all the plants coming in and we are entertained at watching her hide and jump around the plants.
1 comment:
Vicki,
I love your room with the beautiful view and lots of light.. Even though the sun was peeking out then, I bet this room at least has natural light. We had a gray day in OC but all our window make it less gray. Light is very important to me!
I have to go to Roosevelt Island. Now I realize, you don't walk there since you mentioned parking. I had this vision of it being a place, you walked with Mattie & now you walk with Sunny. I am glad to know you go back frequently to this special place.
It sounds like Georgetown had some pretty good programs for patients when Mattie was in treatment. Posting about the different diversions, where Mattie participated always prompts me to take note. These kinds of activities buoy a child's spirits while they are hospitalized. They also encourage a child to look forward to something different & fun. I wonder how many Pediatric Oncology Units bring people from the outside to entertain their patients?
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