Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

December 13, 2018

Thursday, December 13, 2018

Thursday, December 13, 2018

Tonight's picture was taken in December of 2003. Mattie was visiting my parents for Christmas. Since it took Mattie days to get on California time, we were always up VERY early the first couple of days after we arrived. Try 4am! In any case, Mattie had this lovely room to escape to, where we kept him very busy. Mattie rarely sat down, but why I captured this photo was because this TV show, called Oobie, which was on the Noggin channel was a Mattie favorite. So much so that it 
stopped Mattie in his tracks and we went close up to the TV screen to examine the  characters. Why? Well the characters were cleverly done as they were literally hands talking. 








Quote of the day: Grief is never something you get over. You don't wake up one morning and say, 'I've conquered that; now I'm moving on.' It's something that walks beside you every day. And if you can learn how to manage it and honor the person that you miss, you can take something that is incredibly sad and have some form of positivity. ~ Terri Irwin



I received a holiday email from a local non-profit, who specializes in meeting the supportive care needs of those in the Washington, DC area dealing with grief and loss. I knew about this organization and its reputation way before I even gave birth to Mattie. 

If you want me to tune out almost automatically, then you supply me with a how to list. I admit I am not wild about how to lists period, regardless of the subject matter, but when it comes to grief and loss, I truly can't stand them. I typically find them too prescriptive and trite. 

The list you see on the left, is definitely more thoughtful, flexible, and open. But its down fall is it seems time specific (e.g., REMEMBER that this holiday will be different than ones in the past). Specifically geared to those who maybe dealing with the upcoming holidays for the first time after the death of a loved one. 

The first Christmas (let's say) after losing a loved one, people around you may definitely be open to communicating with you about how much you can handle and what you may want to participate in with others. 

However, as the years go by, such a list is not only unhelpful, but such factors aren't even on the radar scope of others around us. In their minds, we survived the worst (holidays during the first year) and therefore we can manage. In a way, things return back to normal. Well not normal for the bereaved individual but normal for those around us. 

What surprises me is this holiday greeting was sent out by an organization that is supposed to understand and respect grief. Yet how does such a greeting apply to someone like myself who is 9 years into child loss and counting? What I would have loved to see in this list is the simple opening statement reflected in tonight's quote..................... grief is never something you get over. NOW that is honest and such honesty is needed in our society as it relates to grief. It is hard enough to cope with the actual loss, but when societal expectations, myths, and platitudes are added to the mix, it further compounds the loss and makes us feel isolated, misunderstood, guilty, and hopeless.  

Lastly, the PLAN ahead portion of this list troubles me. It would bother me regardless of the loss being new or sustaining. Planning is the exact problem...... we can plan and think through what might be upsetting, or what strategy to use if we find ourselves becoming upset. But here's the thing, what catches us off guard are things that WE DID NOT plan for, and with human interactions you can't possibly imagine every scenario and how to plan for it. It is the unexpected triggers and thoughtless comments that wreck havoc and can provide great instability to us. These comments and triggers are like tidal waves, that we have to learn to navigate in order to come up for air and survive. I think the problem with saying PLAN ahead, is that it sets up a person for failure. Because 9 out of 10 times, it is the unexpected that causes great pain. When we are faced with the unexpected scenario, it isn't uncommon for the bereaved person to blame one's self, as being ill prepared and for not having thought and planned ahead. So now we are dealing with grief, anger, and guilt wrapped up into one. Which is why planning ahead, though designed to provide empowerment and control, can actually do the exact opposite.  

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