Tonight's picture was taken in July of 2007, a year before Mattie was diagnosed. Back then we truly were clueless about childhood cancer and the notion would never have even dawned on us. Of course a year later, it became a diagnosis that permanently altered our lives. This photo was taken on Roosevelt Island, a place Mattie loved to explore, as he enjoyed climbing rocks, collecting sticks, and walking in nature.
Quote of the day: That's the thing with dementia. If you're with somebody who has a serious illness, you can usually talk to them, have a laugh every now and then - the person is still with you. With dementia, there's no conversation; there's no togetherness, no sharing. ~ Judy Parfitt
This morning, I was downstairs making breakfast and the next crisis arose. My mom called me from upstairs to tell me that her bathroom rug was completely wet. She wanted me to bring it downstairs to drip dry. So I stopped what I was doing because a wet rug is heavy and will drip water all over the place. I figured the bath mat got slightly wet, but when I went to her bathroom, it looked as if she took the rug and stuck it in the shower. It was soaked and dripping water everywhere. I wrapped the rug in a towel and carried it downstairs. But unfortunately in the process I got water everywhere and had a big clean up job on the staircase and first floor.
It would be very easy to snap and start yelling. After all I am tired and still had to get my dad up and shower him. But I kept it calm and tried to figure out if she could recreate how this happened. Mainly because I don't want to be dealing with this on a daily basis. My mom really had no insight into how this happened. I went through every scenario possible, but the only thing I can think of is she had the inner lining of the shower curtain not tucked inside the shower. Though I am not sure that would explain the issue. Unlike my dad, my mom doesn't consult me or ask for help. I don't get involved until after the problem has occurred and then I am left to figure things out and correct them.
After I did brain games with my dad, had him walk for ten minutes and then did his occupational therapy exercises with him, Peter and I took Sunny out for a walk. I was really looking forward to that walk, until we got into it for about a block. The heat was a killer and it wasn't good for Sunny. So after a couple of blocks, we turned back and came home. Very disappointing, especially since Sunny doesn't get much walk time in anymore since my parents moved in!
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