Sunday, January 8, 2023
Tonight's picture was taken in January of 2009. We took Mattie to New York City to start an experimental treatment. In between hospital visits, we toured the city. That day we went to the Empire State Building. Specifically we went up to the 102nd observation floor. The Empire State Building was not busy that day and there were NO lines. We zipped from one floor to the other and Mattie had a great time exploring the world from this incredible height.
Quote of the day: Kindness is a passport that opens doors and fashions friends. It softens hearts and molds relationships that can last lifetimes. ~ Joseph B. Wirthlin
This morning Peter sent me a text message suggesting that we walk Sunny at 11:15am. Yes, we live in the same house, but we text each other throughout the day. This is typical for us, a pattern we developed while caregiving for Mattie in the hospital. During our Mattie days, after he was diagnosed, Mattie did not like hearing Peter and me talking. Mattie was very anxious and traumatized and noise truly bothered him. Therefore, if Peter and I wanted to communicate with each other, we turned to our cell phones. I became an expert at pecking away on my phone and my phone became my life line to the outside world. Unfortunately that hasn't changed for me even today!
I am once again am facing a challenging caregiving role. If Peter and I want to have a private conversation, it can't easily happen in our own home. So we text message. Fortunately we are survivors, caregiver troopers. We just jumped right back into a pattern we grew to know SO SO well. After Mattie died, it took us time to re-learn how to orally communicate with each other, as we hadn't had this opportunity for months while actively caring for Mattie. So many factors could have impacted our relationship and marriage. But with each obstacle, we find a way forward. Remarkably!
I appreciated the opportunity to walk! It is very easy to take on one task after the other at this house. Therefore, someone forcibly stopping me to do something I like to do is a real gift. I like the time to be outdoors, getting fresh air, walking with Sunny and chatting with Peter.
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