Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

July 27, 2008

Day Three

July 25, 2008 - After another sleepless night for Pete and Vicki, Mattie went for an MRI and blood work at Lombardi. We arrived at 11am, registered and then went to the Pedriatric Surgery center since Mattie had to be sedated with a drug called Propofol (nicknamed Magic Milk since it looks like milk), which required an IV. Betsy Moran, a RN in the ward preped Mattie for his IV, and then we went up to the clinic (the Pedriatric Hematology/Oncology Center), to play and get the IV put in and some blood drawn.

The IV insertion did not go well, and Mattie was very upset by the whole process. Fortunately, although there was a huge backlog of MRI appointments and things were being delayed, Mattie was taken on time as he was considered a special patient. The MRI lasted 90 minutes, and when Pete and Vicki were called to greet Mattie as he came out of the anesthesia, we were also greeted by five members of the Hematology/Oncology Team who are assigned to us.

In attendance were Jennifer Rabin, RN, the Peds Nurse Manager (she manages the coordination of everyone), Kathy Myint-Hpu, CPNP, our Nurse Practioner who is on point for Mattie's health, Denise Garner, LICSW, LCSW, our Social Worker, and two of the full time Art Therapists, Jenny (a GW graduate) and Jessie, in addition to the Anesthesiologist, Dr. Natarajan, and Debbie the MRI Nurse who managed Mattie's MRI testing. Mattie had a tough time recovering since he was still doped-up and was disoriented, dizzy and sounded incoherent. After about an hour of crying, thrashing about, nose-blowing, a blue flavor-ice and modeling clay, the three of us left the hospital armed with Morphine, Codeine, an unlimited parking pass, and an armful of information.

Once home, Mattie took to our bed, watched several Scooby Doos on the Tivo, and within two hours was outside running around with JJ, an energetic and fun-loving three month old Jack Russell Terrier who belongs to JP de Andino, a trusted and incredibly caring neighbor.

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