Mattie Miracle Childhood Cancer Psychosocial Symposium -- March 20, 2012 (8am-4pm)

Mattie Miracle Childhood Cancer Psychosocial Symposium -- March 20, 2012 (8am-4pm)
Join us at the Capitol Hill Visitor's Center for a Congressional briefing, research sessions conducted by leading psycho-oncologists, and learn about the psychosocial impact of childhood cancer from six wonderful families touched by this disease. Help us make this first event like this on the Hill a success. LPCs, Social Workers, and Psychologists can earn 8 continuing education contact hours for attending. Click on the picture of the US Capitol Building to REGISTER!

Mattie Miracle Day at Whole Foods -- AN $8540 SUCCESS!!!

Mattie Miracle Day at Whole Foods -- AN $8540 SUCCESS!!!
THANK YOU for visiting us at Whole Foods in Alexandria, VA on Wednesday, January 25, 2012. Whole Foods 5% day generated $6935, and from donations and selling 209 tickets for the super bowl raffle basket we generated $1605!

Bows for Hope

Bows for Hope
Mattie Miracle's Face of Hope, Lauren Chelenza (a 13 year old Osteosarcoma survivor) is the Founder of a non-profit called Bows for Hope. Lauren is an outstanding spokesperson for childhood cancer and a role model for us all. She designs duct tape hair bows by hand and 100% of her proceeds go to Mattie Miracle. Help support this amazing young woman and tell your friends and family members about her. She is making a difference one bow at a time! Click on the picture of the bows to visit Lauren's website!

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful.
As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its second anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) non-profit and tax exempt charitable organization dedicated to finding better treatments and a cure to Osteosarcoma and Childhood Cancers. We help build the awareness of osteosarcoma and childhood cancers, and educate the public and medical professionals about the realities of childhood cancers. We advocate for the psychosocial needs of the children and their families who are fighting this terrible disease. Please visit the website at: http://www.mattiemiracle.com/ and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

Number of Visitors Since October 12th, 2008

January 24, 2012

Tuesday, January 24, 2012

Tuesday, January 24, 2012 -- Mattie died 124 weeks ago today.


Tonight's picture was taken in August of 2009. Mattie and I were riding in "Speedy Red." Speedy Red was a gift my parents gave Mattie. He always wanted a ride-on car when he was healthy and well and my response was.... NO! However, my opinion about the ride-on vehicle changed dramatically when we learned of Mattie's terminal status. Speedy Red gave Mattie great pleasure in his last few weeks and though you are unable to see it, behind Mattie (in Speedy's trunk) was his pain pump which was attached to his central line hanging from his chest and in addition we had an oxygen tank with us. You can clearly see though that I am TOO big for this car! But there was no way I was going to let Mattie drive this car without an adult in the car with him. Mattie took to driving like a duck to water. He just understood the mechanics of the whole thing and he also seemed to understand what you had to do on curves and turns. At age 7 he was a great driver and we spent time zooming around outside in the fresh air during very challenging times. Which maybe why I can't seem to part with Speedy Red. Speedy takes up a great deal of real estate on our deck, but I am fine with that. In fact, at the moment, my sparrows seem to like perching on Speedy and even sitting inside the trunk! Over time I may figure out what to do with Speedy, but for now, he guards the deck and is the symbol of Mattie's last wish.  

Quote of the day: Wisdom is offtimes nearer when we stoop than when we soar. ~William Wordsworth

It is hard to believe that as of today, Mattie has been gone from our lives for 124 weeks! It just doesn't seem possible. Wordsworth in a way was correct, we do gain great knowledge, perspective, and maybe wisdom by being humbled and removed from a position of superiority. Cancer is most definitely that humbling force and add to that the death of a child and it shatters everything one seemed to hold dear and of value. In the midst of this harsh reality check, it is almost impossible not to learn something. I suppose in a way, my nightly writings or rants are my attempts at understanding my circumstances and the world around me. I AM IN SEARCH OF WISDOM..... it is my nightly quest to write and look for it, because no matter how much processing I do, it just doesn't make sense as to why Mattie was chosen to suffer and die.

I began my day by contacting my doctor. Or I should say one of my many doctors. After Mattie's death, I need a team of people to keep me well. But I have been struggling for the last two weeks and thought I was doing better, but I am back to where I started from, feeling awful again. Before seeing my doctor, I had an extensive visit with her resident. Typically I have no patience for residents, but this fellow caught my attention. Mainly because he wasn't only competent but he was an outstanding listener and great empathizer. I explained to him about Mattie's death and he immediately could put two and two together..... trauma and loss can equal great stress leading to illness. When my doctor finally came into the exam room and the resident stepped out so I could be examined, my doctor and I started talking about her resident. I basically gave her a mouth full about him and she quickly stopped what she was doing and took notes. She says she is putting my comments on his evaluation. When you find a doctor who listens, communicates, takes his time to connect with you, that needs to be acknowledged and rewarded.

I spent the rest of the day running around doing last minute chores for tomorrow's Whole Foods Day. We look forward to seeing many of our supporters and I am pleased to share with you Whole Foods' Ad that was circulated electronically today!








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