Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 23, 2012

Monday, January 23, 2012

Monday, January 23, 2012

Tonight's picture was taken in February of 2009 right in the middle of the pediatric unit hallway. Along side Mattie was Anna, his physical therapist pushing his IV pole, and behind Mattie was Jessie (Mattie's art therapist) and Linda (Mattie's childlife specialist). This was what a typical physical therapy session looked like when Mattie was in-patient. I am not sure I know of too many other hospitals that would have done this. But therapy at Georgetown became a family affair. These women understood what a feat it was for Mattie to exercise and move his body when he was in SO much pain, that they all joined forces and made therapy as fun and interesting as it could possibly be. As you can see, Mattie made himself a long tail of plastic cones attached to his walker that day and put Jessie in charge of carrying it. Everyone in Mattie's therapy scenario had a purpose and a job. As we moved through the hallways we weren't quiet either. Mattie was either singing something, chatting up a storm, giving out directions, or on really tough days, Linda would carry a boom box with her and blast out ABBA music. Needless to say, Mattie caught a lot of attention on ABBA days!

Quote of the day: The heart is the only broken instrument that works. ~ T.E. Kalem


I had to think about this quote for a while. As we know an instrument is not only for playing music, but an instrument can also refer to an electrical or mechanical device. The heart is such a device because it is an organ that is controlled by a precise electrical system that sends signals to contract the heart's walls. Thankfully though unlike other instruments, when the heart figuratively breaks, it doesn't STOP working. Or does it? We wouldn't be human if we did not experience what it feels like to have our heart strings pulled and occasionally broken by others. However, contrary to what the quote implies, I do believe that  when our heart is emotionally broken, there are ramifications on how it works. In fact our heart may not function like it once did when broken by stress and trauma. After all, we know that stress is highly linked to heart disease and therefore over time our emotions may cause major changes to our heart. Changes that impact the blood supply to the rest of our body. We are constantly bombarded with information about heart health, through diet and exercise, but I would also add that keeping this electrical instrument healthy also requires a mental and emotional devotion. A devotion that requires the presence of others in our lives, people who appreciate us, people who make us feel needed, wanted, and special. That may sound trite, but human beings require this in order to keep our minds and bodies stable.

On Wednesday, January 25th, Mattie Miracle will be having a five percent sales day at Whole Foods in Alexandria, VA (5% of ALL sales that day will go to the Foundation!). The momentum in our community is growing in anticipation of this day and it is my hope that Whole Foods gets a Wednesday turnout like they never had before. Messages are all over town and even Georgetown University Hospital is sending out messages about the event through Twitter!

On the 25th there will be three vendors at the store doing food demonstrations on our behalf. We are very grateful to Pork Barrel BBQ (www.porkbarrel.com), Mom Made Foods (www.mommadefoods.com), and Perfect Foods Bar (www.perfectfoodsbar.com) who are supporting us with their service and wonderful food products! In addition from 11am to 2pm, the Georgetown University Hospital nurses will be at the store offering free health screenings! In the midst of planning these things, one of our avid supporters and friends donated money to the Foundation to have a Super Bowl raffle basket at the Whole Foods event. The goal being to raise additional funds for the Foundation. So over the course of the last two weeks, I have been purchasing items for this raffle item! Below if the finished product! 


Here is the announcement I created today that will go on display at the store.
I assembled this raffle item in Mattie's room, and today we ran all over town searching for Patriots and Giants items. That was quite an ordeal for some reason! But we were successful!
Here is the final wrapped product. The irony is that I have learned to create, stage, and wrap baskets from working on our Foundation Raffle over the years. However, Peter has never watched me put a basket together since in the past I always assembled and completed them at Ann's house. So for him watching me in action was novel. However, Peter feels he has found another job for me if the foundation doesn't work out.... baskets by Vicki! NO THANK YOU!

The Washington Post is featuring charities this week who are sponsoring local events and Mattie Miracle was mentioned. Check it out! I hope to see you on Wednesday! Come by and say hi! We will be in the front entrance of the store. You can't miss us!

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