Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

April 19, 2012

Thursday, April 19, 2012

Thursday, April 19, 2012

Tonight's picture was taken in August of 2009. Linda, Mattie's Child Life Specialist, planned this special evening for Mattie and Ann's daughter, Abigail. Mattie and Abbie were able to go to the Lego store after hours, when the store was closed. They had the whole store to themselves and could build anything Mattie wanted. Literally any Lego Kit. The ironic part was Mattie had and built almost every kit in the store, since this was our form of therapy within the hospital. Legos kept us busy, sane, and talking to each other even under the worst of circumstances. Which is why Peter and I are very fond of Legos. Linda approached the Lego store at the mall and told them about Mattie and about his terminal status. In a way, this was like his one last great adventure, though none of us could bear to think about it that way. As you can see from the picture above, Mattie used his wheelchair to maneuver around the store and secure the Lego bricks that he needed. Mattie decided instead of building from a kit, he wanted to build a NYC bright yellow taxi from scratch. The wonderful Lego team within the store mobilized forces and assisted Mattie and Abbie in this endeavor. This wonderful and one of a kind yellow taxi still sits in our living room today.

Quote of the day: Health is not valued till sickness comes.  ~ Dr. Thomas Fuller


I spent the majority of the day working on Foundation items. Mid-day I got out of our home and went back to the Mattie Miracle post office box. As soon as I walked into the post office, my favorite postal worker greeted me and told me everything was back on track with our mailbox. Music to my ears! I personally thanked him because if it weren't for him the problem would never have been corrected! Don't you know it, as soon as I went to the mailbox, I found more raffle donations inside. Carolyn (our Walk raffle chair) and I are almost laughing now. At first I worried we wouldn't have enough items, and now this couldn't be further from reality!

This afternoon, I went through the walk website that Peter generated and edited it and we made sure it was up and operational. We are now one month away from the third Foundation Walk, and with that it means the start of promotions and advertising. If you would like to see our Walk website, click on the link below, or the "Love of Family" logo on the top of the blog!

https://www.mattiemiracle.com/Home.php


On Friday, I head back to Georgetown University Hospital to give a parent testimony at Medical Grand Rounds. I did this last year, and was asked to participate again. My testimony consists of a 10 minute presentation about the importance of family centered care. This is done in the context of caring for Mattie and my observations of what worked and didn't work through our journey at the hospital. The attendees are doctors and other medical personnel. My verbal testimony is followed by the four minute remembrance video of Mattie that is posted on the blog. Last year's testimony was a very good experience for me, but I have found with my level of exhaustion that it impacts my mood and outlook on things, people, and events. After Grand Rounds, I will be meeting up with Linda (Mattie's Child Life Specialist) and donating all the items that were given to the Foundation in honor of Mattie's 10th birthday. My trunk is filled to capacity, and I have no doubt that all these wonderful gifts will be very much appreciated by families living within the pediatric units.  

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