Mattie Miracle 9th Annual Walk & Family Festival -- Raised over $97,000

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

July 19, 2012

Thursday, July 19, 2012

Thursday, July 19, 2012

Tonight's picture was taken in August of 2008 in the pediatric clinic of the hospital. At the art table, Mattie had created a sculpture out of clay and was in the process of painting it with different color glazes before it went into the kiln. You may not be able to determine the structure he formed out of clay, but Mattie created a drive-in movie theatre. The irony was Mattie never went to a drive-in movie, so I am not sure how he learned about the concept, but this was only one of several drive-in themed clay structures he created. The sequel was entitled "big head." It was a woman who had a melon sized head of clay, who would come to the drive-in theatre and block the movie goers' view. Each of Mattie's sculptures had a story associated with it, and many of these pieces are still on display in our living room.

Quote of the day: When you come to the end of your rope, tie a knot and hang on. ~ Franklin D. Roosevelt

I know I have used FDR's quote before, but I like it. I feel that it captures how I have been feeling. Since the end of May, I would say I have been battling one physical issue after the other. It has been a non-stop battle this summer, and I am getting to the end of my rope with not feeling well. Recently I have been having trouble with breathing and palpitations. I saw my internist, but I knew I needed to see specialists. I see a cardiologist next week, and today I went to see a pulmonologist. I spent two and a half hours in the office today. In that period of time, I had a pulmonary functioning test (a breathing test), a chest x-ray, and a walking test in which I was connected to two pulse oximeters to measure the level of oxygen saturation in my blood.

I sometimes feel when I tell people that I am not feeling well, they discount what I am saying because in essence I am always sick with something. But I know this isn't in my head. So far, every time I have complained on an issue, there was indeed a problem. Today's walking test revealed an anomaly, so tomorrow, I am headed for a CT angiogram. Hopefully soon I will have some more data to help explain why I feel the way I do. However, I felt that this office took me seriously today and wants to help me feel better, so I found a knot to hold onto and it is much appreciated. My doctors are located within the hospital Mattie was born in and was diagnosed in, so returning to Virginia Hospital Center is always bittersweet. As for my CT scan tomorrow, the procedure will be done in the same location where I took Mattie for his x-ray on that infamous July 23, 2008 day in which I learned he had osteosarcoma.

No comments: