Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

July 10, 2015

Friday, July 10, 2015

Friday, July 10, 2015

Tonight's picture was taken in June of 2009. Mattie was in the clinic of the Hospital and playing at the art therapy table. With him was Katie, one of his HEM/ONC nurses and Jocelyn, his good buddy who was also battling osteosarcoma. If you look closely you will see that Mattie designed an alligator that day out of a large wooden clip and decided to catch my finger in the alligator's mouth! We still have this alligator on display in our kitchen! He is attached to my copper pot rack and stares at me with his beady eyes. 


Quote of the day: None of these parents believed that their child’s death was a good thing. They would have given up all their new found activism, insights and altruism, their re-ordered sense of what really matters in life, to have their child back. ~ Richard Tedeschi (psychologist who coined the term post-traumatic growth)


My friend in cancer sent me an article entitled, The Science of Post-Traumatic Growth (PTG). This is a field that came about in 1995. The term itself is not to be confused with post-traumatic stress disorder [Post-traumatic stress disorder (PTSD) is a mental health condition that's triggered by a terrifying event — either experiencing it or witnessing it. Symptoms may include flashbacks, nightmares and severe anxiety, as well as uncontrollable thoughts about the event.] According to the University of North Carolina-Charlotte's Post-Traumatic Growth Research Group, where Richard Tedeschi practices, post-traumatic growth is defined in the following manner:


What is post-traumatic growth? It is positive change experienced as a result of the struggle with a major life crisis or a traumatic event. The idea that human beings can be changed by their encounters with life challenges, sometimes in radically positive ways, is not new. The theme is present in ancient spiritual and religious traditions, literature, and philosophy. What is reasonably new is the systematic study of this phenomenon by psychologists, social workers, counselors, and scholars in other traditions of clinical practice and scientific investigation.

After experiencing a traumatic event, people often report three ways in which their psychological functioning increases:

1.      Relationships are enhanced in some way. For example, people describe that they come to value their friends and family more, feel an increased sense of compassion for others and a longing for more intimate relationships.

2.      People change their views of themselves in some way. For example, developing in wisdom, personal strength and gratitude, perhaps coupled with a greater acceptance of their vulnerabilities and limitations.
3.      People describe changes in their life philosophy. For example, finding a fresh appreciation for each new day and re-evaluating their understanding of what really matters in life, becoming less materialistic and more able to live in the present.


The article opens up discussing Candice Lightner. Her name may not ring a bell with you, but I bet MADD does. Candice lost her daughter to a hit a run drunk driver in 1980, and this horrible tragedy inspired her to advocate and create MADD, an organization which has saved more than 300,000 lives so far. The point of this very meaningful opening paragraph was to show the reader that out of trauma and tragedy can come growth and great change. Though I do not think this article highlights this well, other Post-Traumatic Growth articles do mention that none of us who survive a trauma sit down and think.... 'gee I am happy I experienced this great loss so that it will raise my awareness and I can now achieve some sort of higher level of growth!' As the research does point out, NOT EVERYONE who experiences a trauma also experiences post-traumatic growth. Therefore expecting such growth to happen also puts ridiculous pressure on a person who is already managing a great deal. 

Do I suspect that growth happens for other reasons? Yes. It happens in my opinion for protective purposes. If we do not find a mechanism to invest in the world that is positive, then what is there? For Candice it became creating MADD and helping educate communities about drunk drivers, in order to help save lives and try to prevent other tragedies like her daughter's from occurring. For Peter and I, we have Mattie Miracle. If you don't direct your issues into something positive, the issues have a way of taking over. It is that simple. If you want to put a name on it, as post-traumatic growth, well okay. However, for some of us the growth is linked to post-traumatic stress, and it is hard to separate the two. They are constantly at odds with each other.  

Nonetheless, I wholeheartedly agree that after Mattie's cancer and death, I am no longer am the person I was before and the three factors listed above are spot on. How I view relationships have changed, my views of myself and life's vulnerabilities are clearer, and most definitely my philosophy on life is completely different. 

All of these things combined made it very easy to walk away from the life I led before. I could no longer teach, work with students and at times deal with a "healthy" population, and for the most part I do not like thinking, talking, or planning for the future. I don't even like thinking months in advance. With Mattie's cancer I had to live in the moment, and with the loss of Mattie that seems to be the mode that works best for me.

The Science of Post-Traumatic Growth:
http://www.livehappy.com/science/positive-psychology/science-post-traumatic-growth

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