Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

December 14, 2015

Monday, December 14, 2015

Monday, December 14, 2015

Tonight's picture was taken in December of 2007. That evening we took Mattie to Brookside Gardens in Maryland to see a Christmas light display. Brookside Gardens does a magical job, because you park your car and then walk through all the gardens that are decked out in lights, animated lights, and you name it. I had never seen anything like it before and I still remember how special that night was even today, 8 years later!!! After walking through the gardens, we came inside for cookies and hot chocolate (well Mattie did not drink the hot chocolate naturally since he HATED anything chocolate), and Mattie posed with the Garden's wonderful bronze frog statue! 

Quote of the day: If you want to test your memory, try to recall what you were worrying about one year ago today. ~ E. Joseph Cossman


Whenever I see this quote I literally laugh! I laugh because I don't have to struggle too hard to imagine what I was thinking about a year ago today! Mattie is always on my mind, trying to survive his loss is always there, and I would have to say worrying about getting very ill is pervasive. Most people my age do not worry about some of the things that weigh heavily on my mind. 

Today I went to Georgetown University Hospital to support my friend who was having surgery and her family. There is something about returning to Georgetown and having to go through a procedure that puts me on heightened alert. Though I wasn't the one undergoing the surgery, guess who was checking in with me by text message? If my faithful readers guessed Linda (Mattie's child life specialist), you guessed correctly. Linda was brought into my life through Mattie, but now she is a crucial part of our lives. Going through anything that I perceive as a medical crisis, must involve Linda. She became that important to all three of us (Mattie, Peter, and me). 

While I was outside the surgery center today, who did I bump into? But Mattie's first anesthesiologist at the hospital. The doctor who oversaw his broviac catheter placement. Peter and I happened to LOVE this doctor and when she saw me, she recognized me. She did not know that Mattie died however, so we talked about that, she told me she was leaving the hospital to go to Children's Hospital of Philadelphia, and then she hugged me several times. A real love. 

Naturally I can't seem to get through a procedure, even while supporting my friend, without getting aggravated at a medical resident! From my experience in the hospital with Mattie, I learned that you want to move right to an attending physician. In fact, on November 18th when I was getting surgery, I requested no residents come into my room (while conscious) and Linda made sure to that. They have a way of setting me off. As an educator I greatly believe in the importance of training and learning, however, it is the attitude and demeanor of a majority of residents that doesn't sit well with me. 

So a surgical resident came in to see my friend today and handed her scripts for medications she could take post surgery (so her husband could fill them while she was in surgery). Here is the kicker..... the resident thought my friend was having a completely different surgery and started talking to her about this other surgery and the fact that she was staying overnight. Naturally we confronted him because he was all wrong and instead of correcting his error he kept back peddling, saying this is what it said in the system and so forth. In all reality, he needed to do his homework before entering a patient's room. I get that he may be tired and on overload, but that isn't acceptable, nor was his attitude appreciated.

Fortunately Linda sent a patient advocate to see us and I told her about our encounter with this resident. Of which she promised me she would follow up with him and the head of the department! All I know is I don't approach a hospital like a normal person, I approach it probably as someone who has been living in the system and I know staying quiet and not being sharp are recipes for disaster in a hospital setting. Unfortunately in our healthcare system the person who makes the most noise, gets the most attention. 


The photographic highlight of our day, came from our Facebook friend, Tim Beck. He created two patchwork quilts in which Mattie was incorporated. 

Mattie is in the fifth row, fourth from the left!













This patchwork is a tribute to dads! I was so happy Tim included Peter.

Mattie and Peter are dead center.... third row, and third from the left!

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