Mattie Miracle 9th Annual Walk & Family Festival -- Raised over $97,000

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

January 15, 2016

Friday, January 15, 2016

Friday, January 15, 2016

Tonight's picture was taken on January 12, 2009. Mattie was sitting in a bed at Memorial Sloan Kettering in NYC. He was there to start his first infusion of an immunotherapy drug for Osteosarcoma. The condition of using this experimental drug was it had to be started at Sloan Kettering. This was a day I will never forget nor will I forget Sloan Kettering. A hospital that I wish NEVER to say again! Ever. It is as large as a factory and the type of care and attention you get are equal to that of being on an assembly line. I had it out with everyone there, including the main researcher of the clinical trial. He conveniently failed to tell us the extensive blood draws and other testing Mattie would have to undergo before his medication infusion. An infusion in which they did not want to use his broviac catheter but to insert an IV in his arm. I went ballistic and took Mattie off the study but still demanded the medication. In addition to that fiasco they felt that they had to x-ray Mattie's chest to make sure his broviac catheter was inserted correctly. Mind you this catheter was inserted at Georgetown Hospital and it was how he had been receiving his chemo, blood draws, and all other medications for the last five months. I even had Mattie's scans with us to show Sloan Kettering that the catheter was fully functional. But forget it, they insisted on taking their own x-rays. If that wasn't bad enough they did not prepare us for the nasty reaction Mattie was going to have to the immunotherapy infusion. Right after the infusion they sent us back to the hotel. It was in the hotel that this frightening scene unfolded --- high fevers, Mattie was shaking like a leaf and also seemed listless --- and when I called their after hours number, they were LESS than helpful! However, what we learned was Mattie needed Demerol (a narcotic for pain) after almost every immunotherapy infusion. 

Quote of the day: The weird, weird thing about devastating loss is that life actually goes on. When you’re faced with a tragedy, a loss so huge that you have no idea how you can live through it, somehow, the world keeps turning, the seconds keep ticking. ~ James Patterson

Patterson's quote tonight is so true! While you may be personally dealing with grief and loss and your world is collapsing all around you, the rest of the world seems to be just fine. It is spinning, functioning, and business as usual. It is a feeling that is hard to describe, yet if you have experienced loss, trauma, or something else that is life altering you know exactly what I am talking about. I would have to say that this realization is the first true encounter a bereaved person has with reality... and the reality is that there is me and everyone else. Unfortunately to add to this, I would say that this feeling (especially with a traumatic loss) can last forever. 

I am signing off for tonight. I spent a lot of time working at the computer today, but as always no day is complete for me without sharing a Mattie memory of the blog. 

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