Tonight's picture was taken in January of 2009. Mattie was home between treatments and despite being wiped out (as you can see in his expression), he still found a way to be humorous and creative. With a Styrofoam box, he transformed it into something that looked like a bicycle helmet using his favorite..... TAPE. Mattie was a wiz with tape and glue! Of course through his shirt you can see the tubes from his broviac (a catheter that came through his chest and was connected to a major vein to the heart) hanging loose, which was a constant reminder and symbol that Mattie had cancer.
Quote of the day: Losing people you love affects you. It is buried inside of you and becomes this big, deep hole of ache. It doesn’t magically go away, even when you stop officially mourning. ~ Carrie Jones
I found an email from Springer, the publishing company, in
my email inbox today. They wanted me to know that the chapter we wrote
entitled, "Parents’ Perspective on the Role of Psychosocial Care in
Pediatric Oncology" in the textbook ---Pediatric Psychosocial Oncology:
Textbook for Multidisciplinary Care--- has been released.
Peter and I are honored to have been invited to contribute a
chapter to this outstanding psychosocial resource! This textbook details the
psychosocial issues and challenges faced by children and adolescents with
cancer and their families. Through a developmental lens, the book provides
guidance and resources that will enable clinicians to understand the physical
and emotional impact of the disease from diagnosis onwards, to work with
families in distress, and to diagnose and treat a range of behavioral, psychological,
and psychiatric issues.
Each chapter is written by leaders in the psycho-oncology field and what is so special is we had the opportunity to meet and work with several of these professionals through our National Psychosocial Standards project.
To see more about the textbook and each of the chapter in the book, go to:
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