Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

March 21, 2016

Monday, March 21, 2016

Monday, March 21, 2016

Tonight's picture was taken on March 10, 2009. Mattie had low white blood cell counts, as a side effect of chemotherapy. Which was why he entered the child life playroom with a mask on, to protect himself from germs. But any time Mattie wanted to get out of his hospital room and interact with the outside world, I welcomed it. Frankly I never feared he would catch an infection (though that was a distinct possibility), mainly because his quality of life was always high on my radar scope. As Mattie's treatment went on, he became more and more closed off to people, and preferred isolation. Yet on science days, Mattie always perked up. He loved experimentation, getting messy, and learning about how things worked..... as this photo clearly depicted. 


Quote of the day: We keep moving forward, opening new doors, and doing new things, because we're curious and curiosity keeps leading us down new paths. Walt Disney


As we are preparing for Mattie Miracle's upcoming Walk, I always seek feedback from our Walk committee on ideas. Especially ideas to promote the Walk and give it more visibility. I have found whether I like it or not, I have to really use social media to get the word out, and be creative in how you deliver this message multiple times!!! So the idea was presented to me that we needed a Twibbon for Facebook. To be perfectly honest, I had NO IDEA what a Twibbon even was. So that meant I had to do some research and pull Peter into this process. Peter is far more technologically savvy than me, and if something needs to be figured out, he is tech support for the Foundation. Together with his technological skills and my creative skills we are an interesting package. 

So what is a twibbon (for those just like me)? It is basically a visual marketing and promotional campaign for Facebook and Twitter. Sounds good right? A way to market the Walk for free? Well naturally NOTHING is simple. To design a twibbon was HELL. If you look at the Facebook photos below you will see a commonality. They all have an orange ribbon border with our walk logo on it. Well that is a twibbon (like a campaign ribbon, that is added to a pre-existing photo). So we basically had to create the template, pay for it so that others could upload it to their facebook sites! It literally took us two days to learn the technology to create a twibbon, to then create it to fit the right dimensions of a Facebook profile photo, and then had to learn how to distribute the twibbon and help people upload the photo to their site (because even that part isn't intuitive)!!! 

As of today, here are all our supporters who have changed over their Facebook profile photo to our twibbon! We are encouraging others to........ 

Join our Twibbon Campaign and help us spread awareness about our upcoming Walk & Family Festival on May 15th in Alexandria, VA. 

We also want people to know that you don't have to live in our area to participate in the Walk! We added a new option at registration... a virtual walker so you can help us raise funds to meet the psychosocial needs of children with cancer and their families anywhere in the Country!

The photos above belong to:

First row (left to right): Peter Brown, Ann Henshaw, Margy Jost, Peggy Elkind, Tina Lytle
Second row (left to right): Maria Santagada Smith, Mattie Miracle, Mary Rivera, Dawnee Giammittorio, Ali Sharkey
Third row (left to right): Barbara Anderson, Cathy Abid, Brian Sweet, Nancy Sweet, Janice Cohen
Fourth row (left to right): Sara Pula, Mary Doane, Ashley Johnson, Toni Johnson, Chris Gauris
Fifth row (left to right): Vicki, Tamra Bentson, Jane Pisano, Mike Doane, Cassandra Hostetler


To add our Twibbon to your Facebook page, go to:

http://twibbon.com/support/mattie-miracle-walk


No comments: