Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

December 10, 2016

Saturday, December 10, 2016

Saturday, December 10, 2016

Tonight's picture was taken in December of 2003. We took Mattie to Lowe's in hopes of capturing a photo of him by the trees and Christmas lights. Mattie was a year and a half old and it was practically impossible to get him to sit still for a photo. We knew it would never work at home. There were certain stores that Mattie liked like Target, Lowes, and Home Depot. Given that Lowes and Home Depot sell Christmas lights and trees, I figured there would be adequate stimulation there and a holiday background for a good photo. This photo was NOT the one that landed on the front of our card, but I think it was priceless nonetheless.  

Quote of the day: Then the Grinch thought of something he hadn't before! What if Christmas, he thought, doesn't come from a store. What if Christmas...perhaps...means a little bit more! Dr. Seuss

We were invited this afternoon to a Winter Concert presented by Halau O'Aulani, which is a non profit that teaches and perpetuate the cultures, traditions and values of the People of Hawaii through dances, languages, arts, music, history and customs.

Mattie's preschool teacher, Lana, gave us two tickets to this show. Lana has been involved with this organization for twenty years. She is married to a man from Hawaii, and I learned that this non profit provides the only school of its kind on the East coast. Children and adults attend the school every Sunday and share culture, music, and dance together. 

The first part of the concert featured more traditional Hawaiian pieces. After the intermission, the show highlighted Christmas music. The first part of every song was sung in Hawaiian, followed by singing in English. It was very energizing and at one point, we were all asked to stand and hold hands. Even reaching across the aisles in the audience. Everyone felt united in song. 

One of the songs sung was White Christmas. Watching the symbolic dancing set to White Christmas was very special. Though I did not record their version, I did find a similar one on line so you can see what I am talking about. 

White Christmas:

The organization invited youth in the audience who study with them, to come to the stage twice. It was wonderful to see how they are learning their cultural art form. Some of the teen males in the audience were outstanding. 

While we were watching the performance, we thought we recognized two people. It turns out that Emily and Matthew are two of the leaders of this group. I met Emily through my friend Mary. Emily was in nursing school at Georgetown and now works at National Children's Medical Center. Both Emily and Matthew volunteer for Mattie Miracle and run our challenge wall at each of our walks. It was amazing to see them out of that context and to see how they spend their weekends. 

Would this have been something Peter and I would have naturally chosen to see? Probably not. But we enjoyed it and especially loved getting away from our constant Foundation weekend work. So the true gift that Lana shared with us today.... was a break filled with music, dance, and the opportunity to learn more about the Hawaiian culture.  

No comments: