Mattie Miracle 9th Annual Walk & Family Festival -- Raised over $97,000

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

April 4, 2017

Tuesday, April 4, 2017

Tuesday, April 4, 2017 -- Mattie would have been 15 years old today! 
Mattie died 394 weeks ago today. 

Tonight's picture was taken in April of 2004, right before Mattie's second birthday party. My mom snapped this photo! Ironically I do not have many photos of the three of us together, therefore this photo is very special to me. Mattie had a train themed birthday party that year. Mainly because he was in LOVE with trains, and all things with wheels. Unlike his first birthday, Mattie had a good time at his second party and understood why there were so many people gathered and having fun. At all of Mattie's parties I always planned a special book to read aloud and lots of games and activities for the children. 

Quote of the day: Your children are the greatest gift God will give to you, and their souls the heaviest responsibility He will place in your hands. Take time with them, teach them to have faith in God. Be a person in whom they can have faith. When you are old, nothing else you've done will have mattered as much. ~ Lisa Wingate

It is hard to believe that Mattie was born 15 years ago. As of today, we have celebrated more birthdays without Mattie, than when he was alive. That is a challenging reality to face for any parent. How do you even acknowledge such a day!? It is a great question. The answer for us is always to be out of town, as there are no birthday parties to plan and for the most part with time people forget. Not on purpose, but it happens, yet for us, we never forget. Not just holidays and milestone moments, but everyday. Everyday, because cancer has robbed us of a future as a family each and every day. 

I posted a remembrance on Facebook today and I tried to recall all the special characteristics that describe Mattie. There are so many, but here are a few:

  • bright
  • curious
  • engaging
  • humorous
  • a good friend
  • loyal
  • a little engineer (as he liked to disassemble his toys and put them back together)
  • loved nature
  • loved collecting acorns, leaves, stones, shells, pinecones, etc
  • loved Legos (and could build just about any lego kit)
  • loved constructing with cardboard boxes
  • loved music
  • loved to paint and use clay
  • loved vanilla frosted donuts and vanilla ice cream
  • loved bugs, especially ones that scared me
  • loved anything with wheels
  • loved to sing and to be sung to
  • was called Mattie Moon in preschool
  • always included the sun in all his creations (which is why the sun and moon remind us of Mattie)
  • and the list goes on....................................

Peter and I went to Butterfly World today. It opened in 1988, and is the largest butterfly park in the world, and the first park of its kind in the Western Hemisphere. The facility houses around 5000 live butterflies.

Butterfly World is a park we ventured to many times with Mattie and my parents. I am not sure what is more captivating the butterflies, the flowers, or the piped in classical music. All I know is the three combined make it a heavenly, peaceful, and moving experience. You are greeted at the entrance to the park with music and these beautiful bougainvillea. 

Once inside the butterfly house, it looks like this. You are able to freely move about while thousands of butterflies are floating about. The whole thing is screened in to protect the butterflies. But imagine strolling through this and listening to music that evokes feelings that transport you to a simpler existence for two hours. 
Peter snapped some wonderful photos of butterflies, flowers, and birds we saw along our journey.
Another beauty. Butterfly World does a good job educating its visitors about all stages of the metamorphosis process, which is most likely why a school group was touring the facility today. 
Two white monarch butterflies. 

This butterfly is called a piano key, maybe because of its black and white stripes at its base. 
 This is a Gouldian Finch from Australia. 

This cutie was traveling around with a feather in his beak. Helping to build a nest.  
To me these are the "triplets!" They hung out and flew around together. 
I had a butterfly visitation today. 
Amazing colors, no? What I love about this butterfly is that you can really see how it evolved from a caterpillar. Look at its body!
A passion flower. The park is filled with incredibly unique and colorful flowers, vines, and trees. 

This flower has a woody vine that has unusual blossoms. Roman Catholic priests of the late 1500's named it for the Passion (suffering and death) of Jesus Christ. They believed that several parts of the plant, including the petals, rays, and sepals, symbolized features of the Passion.
On Mattie's visits to Butterfly World, he and Peter always fed the lorikeets. These birds are medium sized arboreal parrots characterized by their specialized brush-tipped tongues for feeding on nectar of various blossoms and soft fruits, preferably berries.

In Mattie's memory, Peter fed the Lorikeets today. Something Mattie would have approved of!
Peter even jumped on the bouncing suspension bridge. Another Mattie favorite!
On our way back to the hotel, I got a caramel sundae from McDonald's. Another Mattie favorite. Mattie HATED chocolate, and loved vanilla ice cream and caramel. 

1 comment:

Margy Jost said...

Vicki, So many thoughts ran through my head when I saw your FB post and now while I read your blog as Mattie's 15th birthday, April 4, 2017 ends. The date may end but everything else remains, the forever loss of Mattie in your daily life and the fact that since 2009, you have faced each day without him. Your family picture is lovely.
Today's quote, should be framed and in every home for Parents to read daily.

I have always told you that I love your blog and I truly love every picture, you post of Mattie! I never knew him yet his photos tell their own Mattie story too. I find myself smiling back at many of them. I feel sadness that he had to go through so much, fighting Cancer.
I thought of you so many times today as you spent Mattie's birthday doing things, he once loved doing with you. The greatest gift, a child can receive, is loving, caring parents! Mattie will always have that!
I will also always be so sorry that he died, leaving both of you to navigate life without him.