Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

August 27, 2018

Monday, August 27, 2018

Monday, August 27, 2018

Tonight's picture was taken in February of 2009. Sitting next to Mattie was Anna. Anna was Mattie's physical therapist. It happened to be Anna's birthday that day, and Mattie decided to share his homemade cupcakes with her! Whenever I think of physical therapy in ANY context, the immediate vision that pops into my head is Anna. Anna and Mattie and their journey together. Anna worked very hard at managing Mattie's lack of mobility and his pain. Mattie put Anna through her paces and forced her to think outside the box when working with him. But she rose to the occasion and they had a great relationship together. What I always appreciated about Anna was her honesty about Mattie's physical abilities post surgeries and helped to manage our expectations regarding Mattie's ability to walk again. What I mean by this is after Mattie underwent his second limb salvaging surgery, he NEVER walked independently again. The doctors seemed surprised by this, but Anna wasn't. She wasn't because she understood the nature of rehab. Since Mattie couldn't put pressure on his arms, there was no way he was easily going to regain strength and abilities in his legs. As he couldn't use crutches or do any weigh bearing exercises. 


Quote of the day: If you believe it will work out, you’ll see opportunities. If you believe it won’t, you will see obstacles. ~ Wayne Dyer


I had my first physical therapy appointment today to help manage the pain in my hip. The orthopedic doctor I saw in July wants to try more conservative options first before leaping into surgery. Which I appreciate. He referred me to a physical therapist who specializes in hips, specifically the hip issue I have. I have something called a labral tear. It is an issue that will NEVER heal itself. So one may ask..... then why do physical therapy? The thinking is to relieve some of the inflammation around the tear, in hopes that it will improve my mobility and decrease my pain. In theory this makes sense, given that the doctor believes I have been living with this tear for a number of years.  

A hip labral tear occurs where there is damage to the labrum within the hip joint. The hip joint is where the thigh bone meets the pelvis. It is described as a ball-and-socket joint. This design allows the hip to move in several directions. The bony socket is surrounded by a ring of cartilage called the labrum. The labrum provides additional stability to the hip joint. A labral tear results when a part of the labrum separates or is pulled away from the socket. Most often, a labral tear is the result of repetitive trauma to the hip, either due to running or repeated twisting and cutting.

Given my experiences with Anna, I outright asked this therapist today for her option on my condition. Since she has treated many people with labral tears, I wanted to know how helpful physical therapy was going to be. Basically I wanted her to manage my expectations. Given that I have an impingement (bony abnormality in the hip joint) as well, the success with physical therapy is much lower. She feels that we will know in four weeks if this option will work. However, she tried to normalize the surgery for me. Needless to say, I will take it one step at a time. All I know is after she applied these hands-on treatments to gently move my muscles and joints in my hip, my pain level this evening has increased significantly! I am moving to icing my hip, in hopes that this pain goes away. Mind you, I have been on a high dose of a prescribed anti-inflammatory since April. It is the only thing that allows me to function at all. But now, even on this medication, I am feeling pain after today's manipulation. It doesn't really inspire me to go to physical therapy twice a week. 

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