Wednesday, September 4, 2019
Tonight's picture was taken on September 7, 2008. This was during Mattie's first month of treatment. That evening, Peter surprised Mattie with a gift from his colleagues in Peru. They wrote a song for Mattie entitled, "My Little Child." The song was precious and Mattie LOVED it. He played it over and over again that night, I can't tell you how it energized Mattie. He was dancing to it for at least an hour, and I captured the motion in this photo.
Quote of the day: No one is actually dead until the ripples they cause in the world die away. ~ Terry Pratchett
I had the opportunity to talk to two women today who are spearheading a docuseries on Childhood Cancer. They got connected to me through Dr. Shad (who now is the chief of pediatrics at Children's Hospital at Sinai, Baltimore, MD). As a recap, Dr. Shad was one of Mattie's doctors at Georgetown Hospital, and was on call the night/day that Mattie died. Since Mattie's death we have remained close to Dr. Shad, and she also sits on the Mattie Miracle board.
We are very honored that Dr. Shad recommended our non-profit to be featured in this docuseries. Mattie Miracle is different! We are unique because our sole focus is on psychosocial advocacy, awareness, and support for children with cancer and their families. It is wonderful to have this opportunity to share Mattie, his story, and the Foundation's mission with the world (as the docuseries is geared to the non-cancer community). Mattie Miracle pioneered new territory in the advocacy space to include psychosocial care in comprehensive cancer treatment.
I am happy to say that the docuseries is a grass roots effort and is being funded from corporate sponsors and other individuals, all of whom are not coping with childhood cancer. Mattie Miracle is opposed to projects that solicit from childhood cancer families, as our goal is to serve this community, not profit from them. The director and producer of this docuseries are familiar with the childhood cancer space and the director in particular is passionate about bringing attention to childhood cancer, as her best friend's son died at the age of 13 from the disease.
It was a good call today and now we have about a month to prepare to be interviewed in mid-October. The interview will take place in our home. I am used to writing about Mattie and our experience daily, but talking about it is different. So in order to craft a logical message, I will have to think it through. Dig through photos and also provide videos. I RARELY if ever look at Mattie videos. Videos somehow seem more real than photos. But in order to convey what Mattie was like and how he was affected by cancer, videos are needed. Frankly I remember taking more photos of Mattie in the hospital than videos, but I will begin digging through my electronic files. Unfortunately Mattie's journey was before i-phones, so taking photos and videos back then were a bit more challenging. Nonetheless, I always had my trusty camera in hand. Thankfully I did, otherwise there would have been many lost moments, never to be seen or heard again.
More about the Docuseries: https://www.thepromisedoc.com
Tonight's picture was taken on September 7, 2008. This was during Mattie's first month of treatment. That evening, Peter surprised Mattie with a gift from his colleagues in Peru. They wrote a song for Mattie entitled, "My Little Child." The song was precious and Mattie LOVED it. He played it over and over again that night, I can't tell you how it energized Mattie. He was dancing to it for at least an hour, and I captured the motion in this photo.
Quote of the day: No one is actually dead until the ripples they cause in the world die away. ~ Terry Pratchett
I had the opportunity to talk to two women today who are spearheading a docuseries on Childhood Cancer. They got connected to me through Dr. Shad (who now is the chief of pediatrics at Children's Hospital at Sinai, Baltimore, MD). As a recap, Dr. Shad was one of Mattie's doctors at Georgetown Hospital, and was on call the night/day that Mattie died. Since Mattie's death we have remained close to Dr. Shad, and she also sits on the Mattie Miracle board.
We are very honored that Dr. Shad recommended our non-profit to be featured in this docuseries. Mattie Miracle is different! We are unique because our sole focus is on psychosocial advocacy, awareness, and support for children with cancer and their families. It is wonderful to have this opportunity to share Mattie, his story, and the Foundation's mission with the world (as the docuseries is geared to the non-cancer community). Mattie Miracle pioneered new territory in the advocacy space to include psychosocial care in comprehensive cancer treatment.
I am happy to say that the docuseries is a grass roots effort and is being funded from corporate sponsors and other individuals, all of whom are not coping with childhood cancer. Mattie Miracle is opposed to projects that solicit from childhood cancer families, as our goal is to serve this community, not profit from them. The director and producer of this docuseries are familiar with the childhood cancer space and the director in particular is passionate about bringing attention to childhood cancer, as her best friend's son died at the age of 13 from the disease.
It was a good call today and now we have about a month to prepare to be interviewed in mid-October. The interview will take place in our home. I am used to writing about Mattie and our experience daily, but talking about it is different. So in order to craft a logical message, I will have to think it through. Dig through photos and also provide videos. I RARELY if ever look at Mattie videos. Videos somehow seem more real than photos. But in order to convey what Mattie was like and how he was affected by cancer, videos are needed. Frankly I remember taking more photos of Mattie in the hospital than videos, but I will begin digging through my electronic files. Unfortunately Mattie's journey was before i-phones, so taking photos and videos back then were a bit more challenging. Nonetheless, I always had my trusty camera in hand. Thankfully I did, otherwise there would have been many lost moments, never to be seen or heard again.
More about the Docuseries: https://www.thepromisedoc.com
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