Tuesday, February 25, 2020 -- Mattie died 543 weeks ago today.
Tonight's picture was taken on February 14, 2004. Mattie was almost two years old. I snapped this photo because Mattie loved trying on my shoes or Peter's. He would go clip clopping around our home. The funny part was when he would also try to put on Peter's pants! It was hysterical, as he tried to walk around with big shoes and pants. Honestly there was more material than boy.
On an aside, I can see the furniture on the right hand side of this photo. We had to move that piece, because when Mattie was in preschool, our neighbor was moving and she gave Mattie her upright piano for free. She wanted him to learn to play. I can't look at that piano now without thinking of Mattie or our neighbor Susan. Many of our neighbors fell in love with Mattie.
Quote of the day: Life's under no obligation to give us what we expect. ~
Margaret Mitchell
Over the next two weeks, Peter and I have several Mattie Miracle meetings. Starting tomorrow, we are meeting with the Department of Health and Human Services, followed by a visit to the senate. The goal is two fold, to introduce ourselves so that these entities so they understand who Mattie Miracle is and what we have become which is the center for excellence in psychosocial care for children with cancer. The second goal is to find ways we can work together to bring attention to the psychosocial standards of care and most importantly to implement them at treatment sites. This isn't a small task, but I would say the next two weeks are about bringing awareness to the issues and the Standards and to signal to others that we have owned this space for quite some time.
Back in 2012, when we told people that Standards of Care were needed and that our vision was to create them, people thought.... sure, but at the same time.... no way! In three years, with the assembly of an incredible team of professionals, the vision became a reality. I try to remember this, because what seemed like it was impossible, was actually very possible. It is a matter of finding the right people who are committed to a cause, understand what our implementation vision is, and who want to be part of this healthcare solution!
Tonight's picture was taken on February 14, 2004. Mattie was almost two years old. I snapped this photo because Mattie loved trying on my shoes or Peter's. He would go clip clopping around our home. The funny part was when he would also try to put on Peter's pants! It was hysterical, as he tried to walk around with big shoes and pants. Honestly there was more material than boy.
On an aside, I can see the furniture on the right hand side of this photo. We had to move that piece, because when Mattie was in preschool, our neighbor was moving and she gave Mattie her upright piano for free. She wanted him to learn to play. I can't look at that piano now without thinking of Mattie or our neighbor Susan. Many of our neighbors fell in love with Mattie.
Quote of the day: Life's under no obligation to give us what we expect. ~
Margaret Mitchell
Over the next two weeks, Peter and I have several Mattie Miracle meetings. Starting tomorrow, we are meeting with the Department of Health and Human Services, followed by a visit to the senate. The goal is two fold, to introduce ourselves so that these entities so they understand who Mattie Miracle is and what we have become which is the center for excellence in psychosocial care for children with cancer. The second goal is to find ways we can work together to bring attention to the psychosocial standards of care and most importantly to implement them at treatment sites. This isn't a small task, but I would say the next two weeks are about bringing awareness to the issues and the Standards and to signal to others that we have owned this space for quite some time.
Back in 2012, when we told people that Standards of Care were needed and that our vision was to create them, people thought.... sure, but at the same time.... no way! In three years, with the assembly of an incredible team of professionals, the vision became a reality. I try to remember this, because what seemed like it was impossible, was actually very possible. It is a matter of finding the right people who are committed to a cause, understand what our implementation vision is, and who want to be part of this healthcare solution!
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