MATTIE MIRACLE VIRTUAL WALK WAS AN $110,000 SUCCESS!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

July 27, 2020

Monday, July 27, 2020

Monday, July 27, 2020

Tonight's picture was taken on July 29, 2008. Mattie had undergone a bone biopsy earlier in the week and it was time for his big bandage to come off. Mattie did not like the sensation of tape being removed from his skin. In many ways, the motion to remove a bandaged triggered volatile reactions. Mattie did not want me near his arm or the bandage and so you can see him gingerly trying to remove it himself. Over time, as Mattie became more fragile and also more exhausted from chemotherapy, we took over and managed weekly bandage changing and cleaning of his broviac (the catheter in his chest that connected to a major blood vessel in the heart). Every aspect of cancer care required the impossible and the extraordinary from all three of us.  


Quote of the day: Today's coronavirus update from Johns Hopkins
  • number of people diagnosed with the virus: 4,276,856
  • number of people who died from the virus: 147,303

I received a newsletter from the Evermore Foundation today. I know the founder, as she is a bereaved mom, whose daughter died at the same hospital as Mattie. We actually served on a hospital grand round presentation together after our children died. Like me, she created a non-profit. Her non-profit is dedicated to making the world a more livable place for bereaved people and families. Where all families and professionals have access to care, programs, tools and resources to cope and adapt to loss.

The newsletter came with this link. The link took me to a document entitled, Bereavement Facts and Figures. I encourage you to check it out, because it is noteworthy! The facts that caught my attention were:

  1. The prevalence and incidence of bereavement is high due to the “multiplier effect,” meaning for every one death multiple individuals are impacted.
  2. Family survivors are now themselves at risk of poor physical health outcomes, premature death, and other adverse consequences that can alter the life course.
  3. Parents who lose a child at any age are at risk of premature death as early as age 40, with mothers dying from unnatural causes in the first three years and natural causes 10-18 years later. 
  4. Bereaved parents are more likely to suffer cardiac events, immune dysfunction, depressive symptoms, poorer well-being, less purpose in life, more health complications, marital disruption, psychiatric hospitalization, cancer incidence, and premature death as early as age 40.
  5. Parents who lose a child before age 40 are at greater risk of developing dementia when compared non-bereaved parents.

Shedding light on the bereaved and the long term consequences of grief is not only necessary but crucial to the health and well-being of our society. Grief is one of those things that truly isn't discussed or adequately addressed and supported in our world. Yet the loss of a loved one has psychological and health consequences for those left behind. Grief isn't just an issue the first year after a death, instead I have learned from personal experience that it is a lifelong journey.



"Speaking Grief" Full Length Documentary Trailer (3 minutes):


No comments: