MATTIE MIRACLE VIRTUAL WALK WAS AN $110,000 SUCCESS!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

July 28, 2020

Tuesday, July 28, 2020

Tuesday, July 28, 2020 -- Mattie died 565 weeks ago today.

Tonight's picture was taken on July 27, 2008. Only four days after Mattie's cancer diagnosis. I can still remember the feelings we had during that moment in time. It was before the news really sunk in and a plan was developed. Back then it felt like a switch turned on inside of us and we couldn't sleep, eat, or truly sit still. A total level of agitation, anxiety, and fear rolled into one. Yet we tried the best we could to keep Mattie engaged and doing the things he liked. Such as sandbox time on our deck!


Quote of the day: Today's coronavirus update from Johns Hopkins

  • number of people diagnosed with the virus: 4,309,230
  • number of people who died from the virus: 148,298


Mattie Miracle is proud to announce that the Psychosocial Standards of Care officially have a published toolkit. The toolkit is comprised of the Matrix and Guidelines. 

This toolkit is necessary, because the Standards themselves are voluminous and though scientifically rigorous in their creation, it has been difficult for clinicians to implement them without evidence based guidance. This is where the toolkit comes in. Mattie Miracle has provided on going support for this work and we also paid for the toolkit's publication (specifically providing the public open access to the publication indefinitely). 

I welcome you to check out the publication and don't forget to look at the supporting information link at the bottom of the article to access the Matrix and Guidelines. 

https://www.onlinelibrary.wiley.com/doi/10.1002/pbc.28586

The Matrix, is an assessment tool treatment sites can use to score how well their program meets each of the 15 psychosocial standards of care. The score is provided on a five point Likert scale. The higher a score on the Matrix, the more comprehensive a program is at meeting a Standard of Care. 
The Guidelines are a companion tool to the Matrix. Guidelines provide specific guidance on “how to” improve the implementation of each Standard and the center's level/quality of care.






Just like the development of the Standards (2012-2015), which was a three year process, the creation of the toolkit was a four year endeavor (2016-2020). Truly this type of historic evidence based research is a labor of love and we are so grateful to the core research team for their tireless efforts, commitment, and passion to see the Standards in action. The Matrix and Guidelines will enable this to be possible. Now: 

  1. treatment programs will have an easier time assessing whether their psychosocial services are in line with the Standards of Care, 
  2. the Matrix and Guidelines will help clinicians' improve the quality of psychosocial care provided to children and families, and 
  3. ultimately these tools will enable quality Standards of Care implementation research. 

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