MATTIE MIRACLE VIRTUAL WALK WAS AN $110,000 SUCCESS!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 11, 2021

Monday, January 11, 2021

Monday, January 11, 2021

Tonight's picture was taken in December of 2007. Mattie was five years old and it was the last "normal" Christmas we had together. It is hard to believe that a year later, Mattie was diagnosed with cancer. That evening we took Mattie down to the National Mall to see the Nation's Christmas tree. It was a family tradition, and I am so glad we made the time to do these things and to take plenty of photos. 





Quote of the day: Today's coronavirus update from Johns Hopkins.

  • Number of people diagnosed with the virus: 22,612,384
  • Number of people who died from the virus: 376,051

It was another crazy day in "paradise." My mom and my dad had doctor appointments today. Two different doctors, at the same time. So I dropped my mom off at the doctor and then drove my dad and the caregiver to his doctor appointment. Fortunately my mom's doctor isn't far away from her home, so she could walk back to the house once she was done. 

While waiting for the doctor to come in to examine my dad, my dad's caregiver asked me in front of him whether he has a DNR ("Do Not Resuscitate"). HONESTLY!!! I can't think of a more insensitive and out of touch question and conversation! This is the same caregiver who had me cleaning the inside of trash cans and cleaning windows! I feel it it important to put her personality into context. Because at times you just want to throttle her. In any case, because she was persistent, I said NO my dad doesn't have a DNR! However, I am my dad's medical power of attorney and therefore know his wishes and can execute on them. She did not like this answer and kept at me about a DNR. It got worse, she then proceeded to tell me what a DNR is! 

That I did not crown her on the head right then and there was a feat. Peter and I absolutely know what a DNR is, as Peter had to complete one for Mattie. So YES I KNOW WHAT A DNR is!!! Clearly my dad was listening to all of this, and I sensed his anxiety. Therefore, I said my dad is in a much better place physically and the need for a DNR is NOT needed. 

But specifically my dad's medical power of attorney documents his "choice not to prolong life"............................

I do not want my life to be prolonged if (1) I have an incurable and irreversible condition that will result in my death within a relatively short time, (2) I become unconscious and, to a reasonable degree of medical certainty, I will not regain conscious (3) the likely risks and burdens of treatment would outweigh the expected benefits

After the doctor's appointment, I dropped my dad and his caregiver back home and I went to the grocery store. I always feel like I am playing beat the clock and the caregiver leaves at noon, and anything outside the house has to be done before that point. Not easy, as we are involved in cognitive brain games and PT exercises altogether. 

On top of everything else, I also balanced a visit from an electrician to address the installation of security motion sensor lights and the exterminator to address the rat issue outside. Cooked another big meal, served it, cleaned it up and  managed my dad's bathroom issues from irritable bowel syndrome. When I tell you I never sit still I am not kidding. There is no peace and day in and day out of this produces a very bad quality of life for me and my mom.

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