Tonight's picture was taken in January of 2009. I will never forget this day! Mattie had a bone scan to see if new tumors had formed. What should have been a one hour test turned into three hours. Why? Because the tech and radiologist kept seeing things on the scan and therefore wanted more and more images. I finally confronted them and connected them to Mattie's surgeon, who explained they were seeing scar tissue from where prosthetics were placed in Mattie's arms. It is very hard to sit still for a bone scan and Mattie was starving, as he couldn't eat or drink anything to prep for the test! I promised Mattie that we would take him to the Japanese restaurant on the hospital's campus if he complied with the testing. Somehow Mattie managed to endure the testing and this photo was taken at the restaurant. As a treat, Mattie's art therapists and child life specialist also came with us. The man cooking the food at our table, was playing a game with us. He wanted to see if he threw a shrimp at us, who could catch it in our mouths! As you can see, Mattie was laughing watching shrimp flying in the air.
Quote of the day: Today's coronavirus update from Johns Hopkins.
- number of people diagnosed with the virus: 24,045,025
- number of people who died from the virus: 398,588
It was my second full day back in Washington, DC. I came back exhausted from Los Angeles, but it did not really hit me until today. If I stop moving, I fall asleep. I am unable to concentrate on anything, and have yet to return to doing my Mattie Miracle work, which has piled up since I left! I could feel bad or guilty about this, but it serves no purpose. So instead, I am trying to ease back into life without being a caregiver. Which means resting and regaining my physical and emotional strength.
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