Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

March 7, 2021

Sunday, March 7, 2021

Sunday, March 7, 2021

Tonight's picture was taken in March of 2009. Mattie went through many food phases while in cancer treatment. The phase would usually last a couple of weeks to a month. This particular phase revolved around chicken tenders and french fries. When Mattie said he was hungry and wanted to eat, we literally would make the world stop to answer that call. Since cancer impacted Mattie's stomach, throat, and digestion, it made him unable to eat.  Seeing Mattie request food was a glorious sight, which was why I probably snapped a photo of that moment in time. 



Quote of the day: Today's coronavirus update from Johns Hopkins.

  • Number of people diagnosed with the virus: 28,987,905
  • Number of people who died from the virus: 524,963


I came across an article entitled, What cancer survivorship can teach us about Covid-19. It caught my attention because it was comparing the long term effects of cancer with that of COVID-19. Two different diseases, but apparently one can learn from the other. 

The biggest myth about cancer is that once you complete treatment, you are done, cured, and life returns to normal. Unfortunately this isn't the case. Once you are diagnosed with cancer, it will always be a part of your life. The treatment alone can cause other physical illnesses (diabetes, heart disease, vision loss, hearing loss, secondary cancers, sterility, etc), as well as mental health issues and challenges. 

Like with cancer survivors, a similar phenomenon is happening with Covid-19 survivors. Long-term symptoms extend beyond obvious targets like lung function to areas such as eye and dental health. And up to 1 in 5 Covid-19 survivors are diagnosed with a psychiatric disorder within 90 days.

Given that we have been dealing with Covid-19 for a year, health providers are beginning to see that the survivorship management model used for cancer patients, may need to be adopted for survivors of the pandemic. 

I literally googled, centers/clinics for post-covid care, and I can't tell you how many articles popped up, like this one (https://www.aamc.org/news-insights/post-covid-19-clinics-help-survivors-recover). Doctors know that some patients will have severe or disabling symptoms post recovery, but the problem is they don't know how to identify or predict which patients this will be! 

We are conditioned as a society to believe that when we get sick, we can go to the doctor, take some medicine, and things will improve. It is hard to believe in the year 2021, that this actually isn't the case for many diseases. Now adding Covid-19 to that long list. It is important that we talk about the long term effects of diseases and that we also develop treatment strategies and plans to help patients and their families manage and cope in order to have a better quality of life. 

No comments: