Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

May 16, 2013

Thursday, May 16, 2013

Thursday, May 16, 2013

Tonight's picture was taken in October of 2002. Mattie was six months old and to me his facial expression says it ALL! Mattie strongly disliked being strapped down to anything, including his stroller. He did not like being confined at all and actually preferred being carried or even walking with me supporting his arms. Mattie wanted to move past the crawling and toddling phase right to walking. It frustrated him that he couldn't do this.

Quote of the day: We can’t help everyone, but everyone can help someone. ~ Dr. Loretta Scott

Peter is still not feeling great, and I am exhausted. Yet we moved past these feelings today and kept plugging away. Of course the question is how much longer can we endure this pace? I know for me the answer is NOT much longer! I am pulling in 16 hour or more days and managing everything from the administrative aspects of the Foundation to a great deal of the Walk logistics. Peter took today and tomorrow off from work, and I am glad he did, because we both needed to go at it today to make our Sunday deadline. We have family coming into town Friday and Saturday, so basically from my perspective things need to be solidified by tomorrow afternoon!

The highlight of my day today was receiving a link to the article that Amber Healy wrote for the Connections Newspaper about Mattie Miracle and the Walk. The title of the article was..... Miracles Continue in Mattie's Memory. Some of you may recall that I had a phone interview with a reporter last week, and we chatted about Mattie and the Foundation for 40 minutes. She then asked to talk to a few people in our care community, so I connected Amber with Ann (our Team Mattie Coordinator), with Tricia (Mattie's outstanding and all time favorite nurse), and Linda (Mattie's incredible Child Life Specialist). When Peter and I read the article today, I have to say that Tricia's comments truly moved us. In fact we were both crying. We both reacted to her comments the same way and keep in mind that we were in two separate rooms while reading the article. Tricia was able to capture the dynamics we lived through and she deeply understands the bonds that we formed within the hospital and within our care community. I know health care professionals are supposed to maintain emotional boundaries, but early on, I realized that these were impossible to maintain given our situation. With a grave crisis like ours, guess what? Boundaries go out the window and instead the only way to truly help people is to relate to them as humans.... on an emotional level! Not every one is capable of this, and what happened over the time Mattie was in treatment was we migrated away from those health care professionals who were incapable of being real and invested. After all, they weren't just prescribing antibiotics, these were people who held Mattie's life and future in their hands! I am sure these special bonds explains why we remain very close to Tricia even today, three years after Mattie died. The fact that Tricia could elucidate on this feeling and actually stated it, made me smile. She said what I had always felt, but no one had the courage to say, and that was nurses connected with Mattie, Peter, and I on a deep level. This deep connection is important to me and I admire those who are courageous enough to share with me what is in their heart.

Miracles Continue in Mattie's Memory
http://www.connectionnewspapers.com/news/2013/may/16/miracles-continue-matties-memory/

I end tonight's posting with a beautiful picture that Peter's mom sent me today. Around Horn Pond was a mama swan with three of her cygnets. This is a sighting Mattie would have absolutely LOVED! Just seeing the picture today reminded me of Mattie. To my Missouri friend QueenB, add swans to your Mattie list. He loved them, and I can't think of swans now without thinking of my own cygnet!

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