Tonight's photo was taken in February of 2004. It had just snowed and look at Mattie's eyes as he was staring right outside of our front door!!! Mattie was fascinated and intrigued, after all in Washington, DC it doesn't snow often. Mattie was a year and a half in this photo and I still have that cute hat and mittens. They were one of our favorites. Mattie really did not like wearing a coat, hat, and mittens, but he was motivated if it meant he could go outside and play. Mattie took to snow immediately, he needed no time for adjustment. He just had an understanding for the fun, exploration, and adventure one could have with this white stuff.
Quote of the day: Don't forget, a person's greatest emotional need is to feel appreciated. ~ H. Jackson Brown Jr
Today is a grey, raining, and depressing looking day in Washington, DC. The Foundation is having a busy weekend. Starting this evening we are meeting with two of the psycho-oncologists who are working closely with us on establishing a psychosocial standard of care. We will be working all day on Saturday and Sunday in hopes of combing through all the data we have gathered so far. This is really an ominous task, because you wouldn't believe all that we have compiled so far. We have four working groups, and in total there are 40 professionals working on this project. It truly is remarkable to see how far we have come from our psychosocial symposium we hosted on Capitol Hill in March of 2012. We connected with an amazing and motivated group of professionals who are just as committed as we are to developing a standard. Which is NO easy undertaking.
Since I will be working all weekend, I had a day filled with chores. One task which I wasn't expecting was to go to our local shopping mall. Believe it or not, MORE CANDY has come into Mattie Miracle, and I met my friend at the mall so that we could transfer candy from her car to mine. One batch of candy came from Mattie's elementary school. Apparently they assembled 50 goodie bags and brought them to chapel this week and blessed the bags before giving them to us. The notion of this is lovely and hopefully the children who receive these goodies at the hospital will feel the healing wishes and prayers attached to these bags.
Alexandria City, VA is a fascinating place. It just isn't possible to traverse around this town without bumping into people you know. A foreign concept for me living in DC!!! Any case, while my friend and I met at the mall, we ran into another friend and her daughter. So though my day was filled with one task after another, it was lovely in the midst of all of this to run into friends unexpectedly. Needless to say while I type this, I have a trunk filled with candy AGAIN!!! Wow on so many levels.
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