Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

July 28, 2015

Tuesday, July 28, 2015

 Tuesday, July 28, 2015 -- Mattie died 307 weeks ago today. 

Tonight's picture was taken in April of 2009. I remember this moment as if it were yesterday. Mattie wanted to create an alligator. He had it in his mind that was what he needed to build. Except this wasn't from a kit and we did not have enough GREEN Lego pieces. That meant that Peter had to run to the Lego store and get all the supplies that Mattie needed to build what Mattie conceptualized. Of course that was hard to estimate, since Peter really had no idea what Mattie envisioned. As you can see, this was the final alligator project that Mattie and Peter created together. Mattie, with his usual sense of humor, put his hand in the alligator's mouth to show us how sharp his teeth were!



Quote of the day: There is strength in numbers. When the bricks stick together, great things can be accomplished. Steve Klusmeyer (a quote about Legos)


I received two articles from friends today about LEGOs! One of the articles discusses how David Junge co-directed a documentary on Legos that is coming to movie theaters on July 31. I had no idea that Legos was headed to bankruptcy about a decade ago, but thankfully this family run business reinvented themselves and listened to the demands of their audience, they are now the LARGEST toy company in the world. Legos appeals not only to children, but they are loved by adults as well. 

The second article about a Lego prosthetic arm, that I attached below, truly caught my attention today. When I saw the child featured in the article/video, he reminded me a little bit of Mattie. Maybe it was his energy level, his whimsical smile, or his clear passion and joy of Legos. Either case, the engineer who is working on the design of such prosthetics had this to say, “There were many problems I was trying to understand. The negative perception that kids have of prosthetics; the focus that companies put on engineering and not on the human part of a child; the social isolation felt by kids because of their condition and how hard it can be for them to build strong self-esteem." 

I loved this quote because it speaks to this professional's level of empathy and understanding of the complexity of losing a limb. I would imagine that losing a limb at any age is devastating, but certainly for a child, it is incredibly scary and to have a prosthetic and seen as different are major psychosocial concerns. Concerns that this engineer wanted to learn more about and help children design arms they could feel good about, proud of, and empower them to use their creativity to help them regain use of functioning. All I know is when I watched this video, I watched it with Mattie in mind. I could just picture his reaction to a Lego prosthetic arm and it is hard to imagine that things that appear to just be "toys" are used for serious tools and medical resources today. 


Lego Brickumentary

http://www.cbsnews.com/news/beyond-the-brick-lego-documentary-offers-inside-look-number-one-toy-company/




The Lego prosthetic arm that children can create and hack themselves

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