Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

March 15, 2016

Tuesday, March 15, 2016

Tuesday, March 15, 2016 --- Mattie died 339 weeks ago today.

This has to be one of my favorite photos that I took of Mattie and Peter. It was taken in March of 2003. We were visiting my parents in LA and we took Mattie to the LA Zoo. At the Zoo there was a bank of bamboo that Mattie found fascinating. I am not sure Peter knew what Mattie was doing behind him. Peter was looking for shade, but while Peter had that objective, Mattie had another!



Quote of the day: You feel fine, and then, when your body can't keep fighting, you don't. ~ Nicholas Sparks


It has been a non-stop day! This morning Peter and I had a conference call with Dr. Peter Adamson. Dr. Adamson is the chair of the Children's Oncology Group (COG), a clinical trials group supported by the National Cancer Institute (NCI), and is the world's largest organization devoted exclusively to pediatric cancer research. Dr. Adamson was also recently appointed by President Obama to the National Cancer Advisory Board. So in essence he is considered a major leader in the field of pediatric oncology. We reach out to him today because we want COG's support of the Psychosocial Standards. It is important to have COG's support because they guide the majority of thinking and research in the field. Though we haven't received an official quote of support yet, I am happy to report that COG will support the standards that were developed and published in December. That is a huge achievement. 

Recently I went out with one of Peter's colleagues from Canada, who is a medical doctor. He told us that the Hippocratic oath is to cure sometimes, treat often and care always. So in essence, CURE, COMFORT, and CARE. Yet in our opinion medicine has forgotten about comfort and care. Instead, the focus is solely on the cure and when a cure isn't possible, well watch out. Chaos will erupt because the system isn't programmed to manage, cope, or support patients and families along the journey of a health crisis. I love the three C's and it has become my new mantra. A mantra that we have been stating all along.... comprehensive cancer care must include psychosocial care (the care and comfort). It this is a language doctors understand, then in my opinion we have to remind them of the oath they took when becoming a doctor.  

After the phone call, I then had a full day at Georgetown Hospital. After meetings there, I had the opportunity to visit with my niece and sister-in-law who were in town touring the University as a potential school for my niece. It is always interesting to see the campus through another generation's eyes! 

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