Proud of my work -- 16 Years of Service

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



A Remembrance Video of Mattie

September 19, 2019

Thursday, September 19, 2019

Thursday, September 19, 2019 

 Tonight's picture was taken on September 12, 2008. Mattie was home between chemotherapy cycles and that day decided to put together a foam puzzle of the world map. Mattie had a great time doing it and then once it was completed, I had him sit on the puzzle and I entitled this photo.... 'Mattie sitting on top of the world.'
Quote of the day: It is the secret of the world that all things subsist and do not die, but retire a little from sight and afterwards return again. ~ Ralph Waldo Emerson
Round two at the dentist's office today. Everyone seemed pleased with my progress since Tuesday. Though achy, I think it feels better to have that permanent partial crown out of my mouth. I really had trouble believing that some people have a sensitivity to the porcelain bonding agent associated with the crown. But if I did not see the difference for myself, I probably wouldn't believe it!

 Unfortunately I missed this Facebook Live session today, in which the lead researcher for the Psychosocial Standards of Care, Lori, presented on a panel. The panel took place at the National Institutes of Health (NIH). NIH wanted to acknowledge childhood cancer awareness month and decided to do this live chat today. NOT TO TALK ABOUT THE MEDICINE, but instead to focus on psychosocial care. I tell you this is HUGE! A huge change and a serious acknowledgment that comprehensive care must include psychosocial care. NIH is all about the medicine and it funds the most significant clinical trials addressing childhood cancer. Which is why the fact that they chose to talk about something other than the medicine, stunned me. 

Peter participated in the Facebook Live session today. Check out the video link below of the session. Specifically, go to minute 22:00 (where you will hear Lori talking about Peter and me) and be sure to see the medical doctor at minute at 38:26 (absolutely priceless!).
NIH Facebook Live Session:

 https://www.facebook.com/cancer.gov/videos/1287919811387799/?__xts__[0]=33.%7B%22logging_data%22%3A%7B%22page_id%22%3A127165553989732%2C%22event_type%22%3A%22clicked_all_page_posts%22%2C%22impression_info%22%3A%22eyJmIjp7InBhZ2VfaWQiOiIxMjcxNjU1NTM5ODk3MzIiLCJpdGVtX2NvdW50IjoiMCJ9fQ%22%2C%22surface%22%3A%22www_pages_home%22%2C%22interacted_story_type%22%3A%22565413710334575%22%2C%22session_id%22%3A%223a5bdd97b1299ee25c3656686b469f9e%22%7D%7D
Posted by The Brown Family (DC) at 6:11 PM

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