Tuesday, March 29, 2022 -- Mattie died 652 weeks ago today.
Tonight's picture was taken in March of 2003. Mattie was 11 months old and it was his first trip to Los Angeles. I had a conference to attend in Anaheim, so we all went out. Mattie had big trouble adjusting to the time difference, so for the first several days he was up at 4am, which was 7am east coast time. Peter and I felt like walking zombies. No matter how we encouraged Mattie to go back to sleep, he just wouldn't do it. No surprise to me as Mattie had two modes.... on and off. Once on, it was very difficult shutting Mattie off.
Quote of the day: Normalize being a little crazy for what you believe in. ~ Maxime Lagacé
Today I feel totally out of it. I have been dealing with a head cold for days now and standing outside yesterday at my friend's memorial and walking Sunny, did not help me. My only symptoms are a post nasal drip, a sore throat at times, and sinus pressure and congestion. What I need is sleep, rest, and no stress. Not going to happen here.
I did my usual routine and chores, and dealt with a nurse's visit to examine my dad. Later this afternoon, I sat down and put together a Google docs form for the Foundation. I have wanted to create an application for families coping with childhood cancer to apply for funding for therapy sessions. In fact, I am working with a social worker in Michigan, who has earmarked one of her patients to be the first recipient of our funding program. She is working with me to help design the form and the logistics for such a request. Ironically there are NOT many non-profits out there that provide financial support for therapy.
Though my days are very full, I am determined not to let the Foundation fall by the wayside. I assure you this isn't easy given all that I am balancing. But as our supporters know, we won $10,000 (through Shark Tank) to start this new therapy initiative, and I am committed to make it happen this year!
Here's what the application is beginning to look like..........................
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