Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

April 1, 2022

Friday, April 1, 2022

Friday, April 1, 2022

Tonight's picture was taken in March of 2003. Mattie was 11 months old and in one of his favorite gadgets... Tot Wheels. In other words a walker. Walkers were controversial during the time Mattie was a toddler, nonetheless (as they were viewed as unsafe and slowed down the ability to walk), it was a big hit in our home. It gave Mattie freedom and independence to zoom around the house and outside. Given Mattie was a late walker, he gravitated to this device. It brought him happiness, therefore, you know it was a hit with me. 


Quote of the day: The world breaks everyone, and afterward, some are strong at the broken places. ~ Ernest Hemingway


We got to Insight today around 10am for my dad's intake. What is very clear is that everyone who works there is very nice, friendly, and passionate about helping others. I have no doubt about this, but I am on the fence about the benefit of the program for my dad. I think ultimately what the program will accomplish is respite from managing his hour by hour needs. 

We had a group meeting with the head of nursing and the social services coordinator. My dad was involved in this meeting and they asked him basic questions. Some of which he was able to answer, and some he totally was off the mark, such as.... are you allergic to anything? He said no! He is allergic to several things and also is not tolerant to dairy. 

After they interviewed him and they could CLEARLY see what I see... that my dad has moderate stage dementia, they escorted him to an activity room for about 90 minutes, while we continued the intake. My mom and I spoke extensively with the social worker, the program director, and then the nurse. These women understand some of the challenges I have been facing and one told me she could tell that I am exhausted. Which I am! However, what she doesn't understand is I am balancing two parents, not just the needs of one. 

In any case the social worker tried to express how I must be feeling about this whole situation. Though I understood what she was saying, she wasn't really capturing what I was feeling. So I told her! I feel frustrated, angry, and upset that here I am a person with a Ph.D. and a mental health license and I can't figure out how to meet the cognitive needs of my dad. I admit that I am a person who likes to be very independent and in control. When I lose control of something that is very agitating to me. She tried to respond in an empathetic way and said I was making a good decision by bringing my dad to Insight. 

After our portion of the intake, they brought my dad back to us. Before he came back in, I asked the Program Director what he had been doing. She explained that he was part of the music program, got a snack, and took part in "facts about April" discussion. So when my dad came back into the conference room with us, we asked him what he did. Do you know he couldn't tell us ONE thing he did. It wasn't anxiety or an emotional response. Instead it is the significance of his memory impairment. Which is why I also have concerns about him participating in something I am not a part of. I won't be able to be institutional memory and therefore can't stimulate conversation with him on something I know NOTHING about! 

At times my waves of anxiety come flooding back. I had these feelings after Mattie died. In fact, after Mattie died I developed panic attacks (I learned they were panic attacks after being examined by a cardiologist. I wore a heart monitor and underwent testing. Thankfully my heart was physically fine.). I trained myself how to cope and manage them, but initially to combat the intense anxiety, I walked AND I WALKED. Some days I walked over ten miles. 

Now I can't escape and walk because I am running the show. That said, I can feel the anxiety coming on and the feeling that I am trapped and can't escape. So far I am able to cope with those feeling, but each afternoon, I do try to get outside with Sunny regardless of the weather. I feel fortunate to have wonderful nature trails so close to our home. I love it, but so does Sunny. 

Peter came out with us today. Our walks are our time to catch up with each other. 
Though I am overwhelmed, the fact that the cherry trees are blooming has NOT been lost on me. They are a thing of beauty and provide hope after surviving a long winter. 

No comments: