Proud of my work -- 16 Years of Service

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



A Remembrance Video of Mattie

June 2, 2015

Tuesday, June 2, 2015

Tuesday, June 2, 2015 -- Mattie died 299 weeks ago today.

Tonight's picture was taken in October of 2002. Mattie was six months old and I have to say this photo makes me laugh. It makes me laugh because Mattie for the most part hated his crib. Sleeping and lying in his crib were not things he enjoyed doing. In fact, I would put Mattie in his crib for short periods of time (like you see here) just to get him used to being in there. But I would say for the first three months of his life he slept on my shoulder. Than after that, he slept in his car seat which I placed inside his crib. Eventually Mattie transitioned to his crib.... but it was a process. 


Quote of the day: There is no education like adversity. ~  Benjamin Disraeli


I will share more photos from the Walk, but before I do so, I visited two hospitals today. I was at Georgetown in the morning for a meeting. While there, I bumped into Jey, Mattie's "big brother." For our faithful readers, you know that Jey was the man who worked in the radiology department and transported Mattie and to and from his scans and procedures. Jey came into our lives early on and understood Mattie's fears beautifully but he also respected Peter and I. Jey would visit Mattie each time we were in the hospital, and since we were always there, we saw Jey often. Jey shared with me his memories today of Mattie and of course the day Mattie died. Jey is the one who took Mattie's body to the hospital morgue. He wouldn't allow anyone else to transport Mattie! Jey was very protective of Mattie and shortly after Mattie's death, Jey left his position at the hospital and took a position in hospital security, working OUTSIDE the building! However, he still helps patients and their families. You should see him outside talking to people, making them smile and feeling like they MATTER! As I said to Jey today, you don't need a title or a degree to help people. It is simply in his nature, he is the ultimate patient ambassador and we are lucky enough to have found him in 2008! Jey helps me keep Mattie's memory alive and like he told me today.... HE CAN'T LEAVE GEORGETOWN, and guess what? I wouldn't want him too! He is one of the few remaining people left that is our institutional knowledge!

Then later in the afternoon, I went to Washington Hospital Center. I went in for a usual check up and came out with my head spinning because my doctor wants me to get rescanned! An issue which I thought was done and finished, she wants me to follow up on. The problem with this doctor is her insensitivity because she doesn't realize how she just sent me from zero to 100 with anxiety. Needless to say, I have already emailed my oncologist because in her mind when I saw her in the Fall, she was fine with my status. So apparently these two doctors are not on the same page. Lovely! So after dealing with her, I got back on the phone with Georgetown Hospital today to book my scan for next week. All I know is Mattie isn't the only one at this point who needs a child life specialist! 


Tonight's photos from the Foundation Walk feature other kid friendly activities! We had a table for face painting! This is always a very popular stop and our activity coordinator, Debbie, provides and sets up wonderful supplies for our volunteers! Including princess style hand held mirrors for the children to look at their finished product!

A happy painted face!





















Another painted beauty! I saw some children with spiders, hearts, bugs, flowers.... but really what ever the child requested was painted on!


















There were also kid tattoos provided at the face painting table!



This year we had the fifth grade St. Stephen and St. Agnes Girl Scout Troop at the Walk who hosted a "create a bird feeder" for kids. As you can see they set out bird seed and used twig balls. Frosting was used as the glue to stick the seed to the twig balls. They decided to do this project because they knew how much Mattie loved birds and wanted to do this in his memory. 

Also at the Walk was Nancy from Studio G. Nancy works with Georgetown University Hospital. Nancy volunteered her time at the walk to help kids build a "Bug Mobile." She learned from Linda (Mattie's child life specialist) that Mattie loved bugs. So Nancy created this fun activity in Mattie's memory. Mattie would have absolutely loved this creation! The bugs were adorable! 

Here is what the final product looks like.... two bug mobiles!!! The heart on top helps, but picture plastic bugs hanging from it with little chimes on the bottom!

No comments: