Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

February 2, 2016

Tuesday, February 2, 2016

Tuesday, February 2, 2016 -- Mattie died 333 weeks ago today.

Tonight's picture was taken in February of 2009. I mentioned Mattie's footprint on the blog a few days ago. This footprint was taken by his art therapists in clinic. They added it to a welcome sign in the pediatric unit of the hospital. A friend of Facebook sent me this photo today. It is not a photo I have because I was standing on Mattie's left side and this mom was standing behind Mattie. Frankly I did not remember that this mom was even in clinic with me that day! This welcome sign has Mattie's footprint on the right hand side, and on the left hand side is a hand print. But the hand print belongs to Morgan, who at the time was a baby undergoing treatment for leukemia. 


Quote of the day: Death is never easy when you know the people doing the dying. ~ Oliver North


In May 2015, Vice President Biden's son, Beau, died at the age of 46 to brain cancer. Since that tragic loss, VP Biden is committed to finding better treatments and an end to this complex disease. Naturally as a parent advocate, I know MANY parents who have lost children to cancer. However, not having VP Biden's political position we do not have access to the resources to make our requests a reality. 

Yesterday there was an hour long twitter session in which advocates and others could have a dialogue with Dr. Francis Collins (the NIH director) about this Cancer Moonshot initiative. 

This photo was circulating all over the internet. While the cancer community is thankful to VP Biden for his personal commitment to a cancer "moonshot," this moonshot MUST include childhood cancer.

Of course we at Mattie Miracle take it one step further that in addition to funding and supporting biomedical research, this initiative must also support psychosocial research to care for children and families throughout the cancer trajectory.

Research highlights the importance of psychosocial care for managing pain, adherence to treatment, and overall quality of life. It is time to step up and truly address comprehensive cancer care which means addressing the WHOLE patient and their FAMILY MEMBERS.

Yet when you look at the White House fact sheet (https://www.whitehouse.gov/the-press-office/2016/02/01/fact-sheet-investing-national-cancer-moonshotfor the Cancer Moonshot initiative, look at what is glaringly missing..... Psychosocial Research and Care. 


The idea that a concerted government push can lead to a “cure” for cancer is nearly a half century old, stretching back to President Nixon’s failed “War on Cancer.” The chances of reaching a moment of victory as the analogy “moonshot” suggests seem entirely unrealistic.

“This is not about getting to one point in a certain period of time,” said Dr. Harold Varmus, a Nobel laureate and former director of the National Cancer Institute. Unlike in 1971, when President Nixon launched his cancer war, researchers now understand that cancer is not one disease but essentially hundreds. The very notion of a single cure — or as Mr. Obama put it, making “America the country that cures cancer once and for all” — is misleading and outdated (NYT article:
http://www.nytimes.com/2016/01/14/health/moonshot-to-cure-cancer-to-be-led-by-biden-relies-on-outmoded-view-of-disease.html?action=click&contentCollection=Politics&module=RelatedCoverage&region=Marginalia&pgtype=article).


$1 Billion Planned for Cancer Moonshot:

http://www.nytimes.com/2016/02/02/us/politics/dollar1-billion-planned-for-cancer-moonshot.html?_r=2

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