Wednesday, January 30, 2019
Tonight's picture isn't exactly a photo! It is a video that I came across on You Tube. One day, while home from the hospital, Mattie decided to sit at the piano and just started to create. Mattie really wanted to learn how to play the piano, and was signed up for lessons that year. Until he was diagnosed with cancer. I am not sure what was more amusing... Mattie playing away or the phone ringing and Mattie basically telling me to answer it.
Quote of the day: A little thought and a little kindness are often worth more than a great deal of money. ~ John Ruskin
Peter and I received an email today from a lovely social worker in Canada who we have the pleasure of getting to know. She worked with us on the development of the Psychosocial Standards of Care, we have presented together at conferences, and we continue to work together on the implementation of the Standards.
When Peter and I met this wonderful professional in 2012, at our first think tank in California, we immediately liked her. What she was saying resonated with us, and it was abundantly clearly that she has respect and compassion for her patients. Which is why she is able to comprehend how challenging it is for Peter and I to have lost Mattie to cancer and yet living with this tragedy we continue to try to improve care for others. I sometimes believe people don't appreciate how emotionally difficult it can be for us to do the work that we do each day. Which is why receiving this message meant so much to me. I am sharing it below..........
Dear Vicki and Peter,
I always enjoy your newsletters and am always amazed at all you have accomplished. I just wanted to say that I had a chance to look at your January newsletter and looked at the You Tube 10th anniversary video.
It was so inspiring and such a tribute to Mattie in all you have accomplished and the number of lives you have touched because of his journey. You have brought comfort, compassion, and reduced suffering for hundreds of children and their families. Your footprint on the big stage of childhood cancer is undeniable and has set the stage for so much more good work.
Seeing the photos of you with Mattie always chokes me up. It brings such raw awareness every time of your loss and his painful story. Knowing what it cost you (and him) to be where you are at now is hard to describe. The good that has arisen from so much despair. What an incredibly beautiful boy.
I am so grateful to know each of you. Thank you!
Tonight's picture isn't exactly a photo! It is a video that I came across on You Tube. One day, while home from the hospital, Mattie decided to sit at the piano and just started to create. Mattie really wanted to learn how to play the piano, and was signed up for lessons that year. Until he was diagnosed with cancer. I am not sure what was more amusing... Mattie playing away or the phone ringing and Mattie basically telling me to answer it.
Quote of the day: A little thought and a little kindness are often worth more than a great deal of money. ~ John Ruskin
Peter and I received an email today from a lovely social worker in Canada who we have the pleasure of getting to know. She worked with us on the development of the Psychosocial Standards of Care, we have presented together at conferences, and we continue to work together on the implementation of the Standards.
When Peter and I met this wonderful professional in 2012, at our first think tank in California, we immediately liked her. What she was saying resonated with us, and it was abundantly clearly that she has respect and compassion for her patients. Which is why she is able to comprehend how challenging it is for Peter and I to have lost Mattie to cancer and yet living with this tragedy we continue to try to improve care for others. I sometimes believe people don't appreciate how emotionally difficult it can be for us to do the work that we do each day. Which is why receiving this message meant so much to me. I am sharing it below..........
Dear Vicki and Peter,
I always enjoy your newsletters and am always amazed at all you have accomplished. I just wanted to say that I had a chance to look at your January newsletter and looked at the You Tube 10th anniversary video.
It was so inspiring and such a tribute to Mattie in all you have accomplished and the number of lives you have touched because of his journey. You have brought comfort, compassion, and reduced suffering for hundreds of children and their families. Your footprint on the big stage of childhood cancer is undeniable and has set the stage for so much more good work.
Seeing the photos of you with Mattie always chokes me up. It brings such raw awareness every time of your loss and his painful story. Knowing what it cost you (and him) to be where you are at now is hard to describe. The good that has arisen from so much despair. What an incredibly beautiful boy.
I am so grateful to know each of you. Thank you!
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