A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



January 31, 2019

Thursday, January 31, 2019

Thursday, January 31, 2019

Tonight's picture was taken in August of 2002. Mattie was four months old and by that point absolutely LOVED rice cereal. One thing for certain, as a baby, Mattie was an eater! When you look at this photo, Mattie seemed a bit dozy, as that tended to happen around feeding times. It was like he was in heaven eating that his eyes got glossy!


Quote of the day: A moment's insight is sometimes worth a life's experience.  Oliver Wendell Holmes


I really like Oliver Wendell Holmes' quote tonight. In a way this could be our motto. Our moment of insight (or in our case, 14 months of insight helping Mattie) has provided us with knowledge and experience for a lifetime. These insights from Mattie's cancer journey help guide, shape, and direct the Foundation. 

Today, I attended a webinar for a National Cancer Institute's (NIH) Request for Application. In essence a grant to conduct a clinical trial on improving outcomes in childhood cancer survivors. 

While on the call, this slide flashed on the screen. Basically it was pointing out that the grant would support interventions that address either the biomedical or psychosocial effects of cancer.  

The reason NIH is announcing this funding request is thanks to the STAR Act. A bill that Mattie Miracle worked on with several other childhood cancer advocacy groups. However, it is thanks to Mattie Miracle that the word PSYCHOSOCIAL is even incorporated into this bill. That may not sound like a big deal, but it is! Typically these types of grants are reserved for medical research. I am thrilled that there is now a new avenue of support for psychosocial researchers. 

Meanwhile, we have hit an all time temperature low this year. It takes cold to a whole new level. Look at the Potomac River. It is frozen! Despite the single digits and the wind, Sunny wants to be out and about in it. So I was right along side him. One of our walks was an hour long. In the first 15 minutes of that walk, I became absolutely numb, which made walking for an hour possible. 

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