Proud of my work -- 16 Years of Service

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



A Remembrance Video of Mattie

March 6, 2020

Friday, March 6, 2020

Friday, March 6, 2020

Tonight's picture was taken in March of 2009. I wasn't actually present when this photo was taken. Peter was in the child life playroom with Mattie. That day, they got out this interactive board for Mattie to stand on to try to imitate the yoga character on the TV screen. Ironically there was a contest among Peter, Mattie, and Nurse Katie. Apparently Mattie won! But in all reality the fact that Mattie even attempted to do this was HUGE. As Mattie was wheelchair bound and couldn't walk or put his full weight on his right leg. 




Quote of the day: Any fool can be happy. It takes a man with real heart to make beauty out of the stuff that makes us weep. ~ Clive Barker


On Tuesday, we were scheduled to fly to Portland, Oregon to attend a conference. We have never been to Oregon and the beauty of conferences is you can get a feeling for a place you wish to return. 

In any case, we learned today that the conference was canceled due to the coronavirus. It was a smart decision, especially given that the majority of attendees all work with a vulnerable population... children with cancer. Several of our research grant recipients were going to be presenting at this conference, so it is a sad state of affairs that conferences, flights, and vacations are being cancelled. Unfortunately we are out of pocket for the lost conference registrations and American Airlines is being difficult with us. It reminds me once again, DO NOT book flights way ahead of your event, because it makes it harder to get compensated. Because we booked these flights in September of 2019, we are getting penalized. 

Meanwhile, Peter reminded me of this event back in 2003..... 17 years ago today, I defended my dissertation. At the time, I thought that whole process was torture and down right hazing. But in comparison to childhood cancer, it was very doable. Or one could say, it prepared me for the future battle with childhood cancer and running Mattie Miracle!

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