Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

September 28, 2013

Saturday, September 28, 2013

Saturday, September 28, 2013

Tonight's picture was taken in November of 2005. In fact, this photo was featured on the cover of our Christmas 2005 card. I remember taking this photo as if it were yesterday! Today, Peter and I went to this restaurant in Maryland in which this photo was captured. Just seeing the outside of this restaurant brings me back to this time. Taking a Christmas photo of Mattie was always my mission in November. Peter and I have some funny stories over the years about how these photos were captured. When Mattie was a toddler we had to practically stand on our heads to get him to smile for a photo. However, by three years old (as you see in the photo), Mattie naturally smiled for the camera and understood my November antics in preparation for Christmas.


Quote of the day: Take a walk with a turtle. And behold the world in pause. ~ Bruce Feiler


One of the reasons Mattie loved the particular restaurant we visited today in Maryland was its beautiful pond by the entrance. Mattie loved the fish and turtles. As you can see on the rock, these two turtles were out basking in the (partial) sunshine. I particularly love the turtle on the left, with his back leg stretched out! There is something to be said about tonight's quote. All I know is these turtles gave us pause today, just like they always gave Mattie pause. Seeing them gives us the opportunity or the permission to stop moving, slow down, and absorb what is around us.

Before visiting one of Mattie's favorite restaurants, we had the opportunity to attend a childhood cancer festival organized by one of the cancer foundations we have come to know and support. The founders of today's event are just like us, parents of an only child who lost his battle to cancer.

While at the event, we were introduced to another couple who lost their child to cancer. We spoke to them for quite some time, shared stories, and I realized just how different their grieving process has been from ours. It has been very different probably for two very specific reasons. The first reason is their son was diagnosed with cancer at age 5. But then he went into remission, until the cancer came back in his 20s. The mom mentioned that after her son survived his first battle and as he grew and aged no one believed that he ever suffered from cancer when he was a child. Mostly because over time his friends changed and friends only see the vibrant and strong teen and young adult in front of them. The second issue that I think strongly impacts their grieving process was the fact that as a military family they moved around a lot. So the network of people who knew them while their son was battling cancer was no longer geographically close to them. When they moved locations, they had to start over again, with a whole new group of people. Naturally the new group did not walk the journey with them and therefore couldn't possibly provide the same support.

As this mom was talking, her story truly made me pause. I frankly am not sure I could manage and cope if I left the Washington, DC area. I tried to put myself in her position, and the notion of having to explain to people that I did have a son, he battled cancer and died would be challenging. If I moved none of the new people I would meet would have known Mattie. Or even truly understood that he was an important part of our lives. This is a dynamic I never even thought about until I interacted with this couple today. Who supports you through grief if you leave your network behind? I really do not have an answer and unfortunately neither did this couple!

Certainly comparing grief stories is not always helpful. Because comparing can lead to competition. I have learned that lesson early on in our grieving process. So instead, I have come to just understand that we all grieve differently and therefore need different things to cope through life. Yet when I did hear today's story, it is hard for me not to step back and place myself into their shoes. All I know is if I moved like they did, I would not only have a community of people who knew and loved Mattie around me, but this would also change the dynamic of the work I could do for the Foundation. It has taken us time to build community support for the Foundation, and of course at the core we have support from those who knew Mattie and us as a family. Starting from scratch somewhere else doesn't only sound daunting, it sounds impossible.

No comments: