Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

January 16, 2014

Thursday, January 16, 2014

Thursday, January 16, 2014

Tonight's picture was taken in January of 2004. Mattie was my side kick at all times. If I went into the kitchen, there he would be! It is ironic that when you are a parent of an active (VERY active!!!) toddler, there are times that you wish for just two minutes of alone time. Time to catch your breath and sit still. As our children age, we quickly realize that these precious toddler and preschool years go by way too fast. Of course experiencing Mattie's death has only furthered my feelings that I made the right decision to be a full time mom so that I could spend my days with Mattie and not miss out on his short life and development. 


Quote of the day: The tragedy of life is what dies inside a man while he lives. ~ Albert Einstein


My dad had to have day surgery procedure today. Since my parents live in Los Angeles, it does make it a bit harder to help and be supportive from a distance. Yet thanks to modern technology, my mom and I were in constant communication. But even day surgery lands up being just that..... A FULL DAY! Naturally before any surgery, and keep in mind the best surgery to have is NO SURGERY, one always feels anxious and scared. In our family, just entering a hospital can be traumatic. Which of course is the result of Mattie's cancer battle and death. 

At one point today, my mom informed me that my dad finally made it into the recovery room. As I learned all too well from Mattie's three massive surgeries (some of which were over 8 hours long), the recovery process is almost worse than the surgery itself. But just the mention of "recovery" actually makes me very uneasy. It did because in my mind I can still picture Mattie in the recovery unit. 

After Mattie's three surgeries, he was always taken to the PACU (Post-Anesthesia Care Unit). In my perspective the PACU is like a war zone and it requires a special team of nurses and physicians to work in this space. Mainly because people are waking up from anesthesia and a whole host of reactions can happen from that, both physically and psychologically. In addition to coming off of anesthesia, pain also set in. 

Typically when Peter and I were called inside the PACU (which means going through a closed set of doors), I could hear Mattie screaming and crying all the way down the hallway. It is blood curdling and even worse to observe. Mattie was frightened, immobilized, and in tremendous pain. To top it off, you are surrounded by other patients. All around you! It is like one big room with a ton of hospital beds. So in essence you are experiencing the pain, but magnified. Magnified by every patient within the room! Seeing Mattie after limb salvaging surgery was overwhelming. Mattie was bandaged up, with drainage tubes everywhere, he was disoriented, agitated, crying, hooked up to several monitors, and the worst in pain. We not only had one of these experiences, we had THREE! So unfortunately when I hear recovery, I am taken back to 2008 and 2009 in the PACU of Georgetown University Hospital. I imagine some people think that over time these memories fade and they become easier. Unfortunately they don't! 

Mind you parents are not always allowed in the PACU early on in the recovery process. But because we were so concerned, the wonderful staff within the PICU called down to the PACU and made our visiting possible. Certainly it was daunting for us to be there, but Mattie really needed us and frankly I think the staff was happy to have parents there to manage Mattie's fears and emotions.  

Thankfully tonight as I write this my dad is on his way home and hopefully he will have a good night. I am just conditioned to think that surgery brings about pain, fear, and chaos. But I need to remind myself that not every surgery is like Mattie's, THANKFULLY!

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