Proud of my work -- 16 Years of Service

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



A Remembrance Video of Mattie

April 27, 2020

Monday, April 27, 2020

Monday, April 27, 2020

Tonight's picture was taken in May of 2008. I remember this trip on the Potomac River vividly. It was a Friday afternoon, and Peter got home early from work. So we all walked down to the water front and boarded the "Matthew Hayes." It took us for a ride around the river and since Mattie was a big boat fan, we figured he would love it. Which he did. Now whenever I see the Matthew Hayes in the harbor, I reflect back on this very day. 








Quote of the day: Today's coronavirus update from Johns Hopkins

  • number of people diagnosed with the virus: 985,443
  • number of people who died from the virus: 55,952



We have a routine each day that involves walking Sunny and then we take a separate long walk around the National Mall. These are the things that provide structure to our days. After which, I some how get lost on the computer. Answering emails and doing Foundation work. In addition to what I do on a regular basis, I got involved in a research study in Seattle. Which asked me to recruit childhood cancer families to the study. A study to highlight the lived experience of childhood cancer families during the Coronavirus. 

All I know is what should appear a simple ask, has taken up a large amount of my time. As screening people for a study is time consuming and can be a logistical nightmare to schedule when the researcher and participants are on different time zones. I literally get facebook messages, emails, and even text messages from people about these interviews. I thought once I got these folks scheduled, my commitment would be done. But apparently I learned this week that this might not be the case. I believe in supporting research but to a point. Especially when it isn't a study I developed or am funding! 

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